Journal of Policy and Practice in Intellectual Disabilities This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

IASSIDD: Are We Practicing Knowledge Translation Effectively?
This article explores the history and impact of IASSIDD. In particular, it focuses on IASSIDD's role in the area of knowledge translation and promoting research to practice. The history of IASSIDD is documented. Its evolution is analyzed in the context of social, political, and scientific developments across the globe over the past 40 years. There has been an increased focus on evidence‐based decision making and improving practice through research. There is evidence of a shifting emphasis from a primarily medicalized understanding of people with disability and their needs, to a focus that now includes the social, cultura...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 19, 2013 Category: Disability Authors: Vianne Timmons Tags: Original Article Source Type: research

Human Rights Law for Persons With Disabilities in Asia and the Pacific: The Need for a Disability Rights Tribunal
Abstract Human rights are arguably the most significant political force shaping the life experience of people with disability. The United Nations Convention on the Rights of Persons with Disabilities sets the standard at an international level, creating both positive and negative rights, and calls upon member states of the United Nations (UN) to develop policies and enact programs to safeguard and progress these rights for people with disabilities. However, without some means of enforcement, UN conventions and national policies can amount to little more than political rhetoric. The paper reviews legal mechanisms and proces...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 19, 2013 Category: Disability Authors: Michael L. Perlin Tags: Original Article Source Type: research

Challenges of the Harmonization and Ratification of Convention on the Rights of Persons With Disabilities by Japan
Abstract There are 130 ratifications by national governments around the world of the Convention on the Rights of Persons with Disabilities (CRPD), adopted by the United Nations in December 2006. However, Japan has yet to ratify the CRPD. The author examined the social, political, and legal context in Japan, affecting the ratification of the CRPD and contrasted the approach taken by Japan with those of other countries that have ratified the CRPD and then embarked on local reforms. The author notes that in Japan, the disability rights movement has insisted that significant policy changes be undertaken before the government r...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 19, 2013 Category: Disability Authors: Nagase Osamu Tags: Original Article Source Type: research

Epilepsy and Intellectual and Developmental Disabilities
Abstract The co‐occurrence of epilepsy in people with intellectual disabilities (ID) and other developmental disabilities (DD) has received attention because it has a significant negative impact on health, well‐being, and quality of life. The current research investigating the frequency and form of epilepsy in children with ID and DD is reviewed, with particular attention is paid to children presenting with coexisting autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD). Complications in assessment and treatment arising from comorbidities are considered. The most recent and epidemiological...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 19, 2013 Category: Disability Authors: Hirokazu Oguni Tags: Original Article Source Type: research

The World Report on Disability and People With Intellectual Disabilities
Abstract The World Report on Disability was requested by the World Health Assembly, the governing body of the World Health Organization (WHO). Because disability is broader than health, WHO partnered with the World Bank. The World Report was published in 2011 and provides a comprehensive scientific analysis on the global situation of people with disability that can support the implementation of the United Nations Convention on the Rights of Persons with Disability. Progress since the global launch of the Report in June 2011 has shown areas of awareness raising, policy development, funding, research, and technical support. ...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 19, 2013 Category: Disability Authors: Alana Officer, Tom Shakespeare Tags: Original Article Source Type: research

Parents With Intellectual Disability and Their Children: Advances in Policy and Practice
Abstract In many countries, women and men with intellectual disability (ID) marry and have children of their own; however, in some countries, this is still taboo. Reproduction and parenting by people with ID is often a “hot” topic. Important questions related to this phenomenon include: Can people with ID provide “good enough” parenting? Can they be taught to be good parents? What about their children; should their children be taken away and cared for by someone else? Issues concerning healthcare that can support parenting, together with what supports are necessary for people to exercise the right to retain their f...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 19, 2013 Category: Disability Authors: Gwynnyth Llewellyn Tags: Original Article Source Type: research

Inclusive Education in Korea: Policy, Practice, and Challenges
Abstract Even though the Korean experience with special education in the public education system is limited, inclusive education for special education needs (SEN) students has been at the center of attention at the national policy level since the mid‐1990s. Since then, Korean educators and administrators have put an emphasis on the revision and regulation of special education policies, guaranteeing the rights of SEN students to learn, and fostering the quality of teachers to strengthen inclusive education. These efforts have led to progress supporting inclusive education. However, there is still much to be achieved. The ...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2013 Category: Disability Authors: Yong Wook Kim Tags: Original Article Source Type: research

Advocacy for the “Abandonados”: Harnessing Cultural Beliefs for Latino Families and Their Children With Intellectual Disabilities
Abstract Community services and supports for children with intellectual disabilities (ID) can ameliorate the negative effects of caregiving and enhance child outcomes. For example, in Central and South America, many children with disabilities are institutionalized with inadequate sanitation and medical care. In the United States, certain demographic factors (e.g., poverty, limited access to healthcare, language barriers, and immigrant status) contribute to the underdiagnosis and poor‐quality treatment of Latino families and their children with ID, thus limiting their access to effective community and family supports. Thi...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 19, 2013 Category: Disability Authors: Shana R. Cohen Tags: Original Article Source Type: research

Rural and Remote Area Service Provision for People Aging With Intellectual Disability
This study detailed a large number of items rated as important by direct care staff. A thematic analysis identified specific areas of concern including funding, training challenges and options, and access to relevant generic and specialist services. The findings of this study have implications for the delivery of rural services and training of staff. The results point to the need for changes to initial training and professional development options to support staff to work successfully with people with intellectual disabilities who are aging in rural areas. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - March 19, 2013 Category: Disability Authors: Stuart Wark, Rafat Hussain, Helen Edwards Tags: Original Article Source Type: research

Obtaining Medical Records for Women With Intellectual Disabilities in a Community‐Based Health Promotion Intervention
This article describes a procedure for obtaining retrospective medical record data for 199 women with ID who took part in a community‐based, multisite, randomized controlled trial of a health education intervention. Data were analyzed to determine rates of correct physician identification and physician response rates during the 2006–2009 study periods. To assess accuracy in identifying physicians and response rates over time, McNemar's test of paired proportions for dependent samples was used. Physician identification varied over time with correct identification being highest in more recent years. The majority of pract...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 19, 2013 Category: Disability Authors: Jamie G. Swaine, Susan L. Parish, Subharati Ghosh, Karen Luken, Grace A. Wright Tags: Original Article Source Type: research

Eating Patterns Among Students With Intellectual Disabilities After a Multifactorial School Intervention Using the Plate Model
Abstract Adolescents with intellectual disabilities (ID) have an increased prevalence of being overweight and having cardiometabolic diseases as adults, in part due to poor eating habits with an inadequate intake of vegetables. The aim of this study was to evaluate whether a multifactorial school intervention using the “Plate Model” results in improved healthy food choices with recommended ≥37.5% of vegetables. Participants with mild/moderate intellectual disabilities from an intervention school (n = 27) were compared with controls (n = 62) from two other upper secondary schools for students with ID. All were...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 19, 2013 Category: Disability Authors: Eva Flygare Wallén, Maria Müllerdorf, Kyllike Christensson, Claude Marcus Tags: Original Article Source Type: research

How Parents Experience the Quality of Support: A Survey in Residential Care
This study examined the views of parents and/or legal guardians on the quality of support provided to clients with an ID in residential care in the Netherlands, in order to improve the partnership between parents/legal guardians and facilities. A questionnaire developed in close cooperation with parents specifically for this aim was sent to 1,785 households (parents and/or legal guardians) of clients in the Netherlands. The questionnaire consists of the following five subsections: daily care, housing, day services, leisure activities, and communication. A multiple regression analysis was performed to determine which factor...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 19, 2013 Category: Disability Authors: Jorien Luijkx, Annet ten Brug, Carla Vlaskamp Tags: Original Article Source Type: research

Promoting Health of Persons With Intellectual Disabilities Using the UN Convention on the Rights of Persons With Disabilities: Early Implementation Assessment in Spain and Hungary
Abstract The article explores the initial achievements in the process of implementation of the Convention on Rights of Persons with Disabilities (CRPD) with a special focus on health of persons with intellectual disabilities (ID) in Spain and Hungary, the first countries to submit and receive a review for their report in the European Union. The CRPD is a major human rights instrument of the United Nations that was adopted in 2006 with the goal of ensuring protection of rights of persons with disabilities by holding governments accountable for the services they provide to this population. It was found that the reports desig...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 19, 2013 Category: Disability Authors: Barbara Brehmer‐Rinderer, Lucija Zigrovic, Ursula Naue, Germain Weber Tags: Original Article Source Type: research

Guidelines for Structuring Community Care and Supports for People With Intellectual Disabilities Affected by Dementia
Abstract To assist families and organizations in their planning for extended care that accompanies the diagnosis of dementia, the National Task Group on Intellectual Disabilities and Dementia Practices (NTG) in the United States adopted a set of practice guidelines covering the period from when suspicions are aroused to when care ends with eventual death. These guidelines are drawn from the research literature as well as clinical experiences and demonstrated best practices. The guidelines delineate what actions should be undertaken and are presented in a manner that reflects the progressive nature of prevalent dementias. T...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 1, 2013 Category: Disability Authors: Nancy Jokinen, Matthew P. Janicki, Seth M. Keller, Philip McCallion, Lawrence T. Force, Tags: Original Article Source Type: research