Journal of Policy and Practice in Intellectual Disabilities This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Care in the Community: Home Care Use Among Adults With Intellectual and Developmental Disabilities Over Time
Abstract Community‐based healthcare services have quickly evolved over the last few decades to respond to the growing population of older adults, and their desire to remain independent in the community. In Ontario, Canada, deinstitutionalization has resulted in all persons with intellectual and developmental disabilities living—and aging, in the community. This paper compares use of home care services in Ontario among adults (age 18–99 years) with and without intellectual and developmental disabilities over time. Home care use over a 5‐year period was compared between a cohort of 46,008 adults with intellectual and...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Authors: Lynn Martin, H élène Ouellette‐Kuntz, Katherine McKenzie Tags: Brief Research Report Source Type: research

Invasive Clinical Intervention Education for Social Care Support Workers of Adults: A Review of the Current Literature
Abstract As with the general population, people with intellectual disabilities are ageing, are living longer often with coexisting complex needs and with more requiring care and support. The focus of care is community‐based rather than institutional and it is therefore necessary to ensure that the workforce responsible for delivering care has the appropriate knowledge and skills to safely deliver the interventions required. The aim of this review is to evaluate the scope of invasive clinical interventions (ICIs) that social care support workers (SCSWs) are currently delivering and the preparation received to undertake th...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Authors: Louise Hoyle, Michael Brown, Jayne Donaldson, Thanos Karatzias Tags: Original Article Source Type: research

Habilitation Service Utilization Patterns Among Children With Mild Intellectual Disability
DiscussionIt is urgent that integration/inclusion in one organizational system, that is, school, does not result in exclusion in another system, such as pediatric habilitation services, which also aim to promote active participation in society. Pediatric habilitation professionals, teachers, and health units at schools need to interact in a manner so that children with mild ID, independent of type of school setting, have access to disability‐related services outside school. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Authors: Lena M. Olsson, Elisabeth Elgmark Andersson, Mats Granlund, Karina Huus Tags: Original Article Source Type: research

A School ‐Based Case Study: Developing Interprofessional Competencies to Support Students With Dual Diagnosis
This study queries the need to refine the CIHC model for school‐based mental health settings. It is suggested that the model would be enhanced by a greater emphasis on culturally responsible practice and a greater integration of inclusive education competencies for professionals who work with students who have dual diagnosis in schools. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Authors: Twyla Salm Tags: Original Article Source Type: research

The Relationship of Person ‐Environment Fit to Perceptions of Autonomy, Competency and Satisfaction Among Older Adults with Developmental Disabilities
Abstract The overlay of age‐related cognitive and physical impairments onto existing intellectual and physical disabilities, a paucity of informal social relationships, a limited education and low income levels place the current generation of aging adults with intellectual disabilities at risk of premature behavioral limitations and increased dependency. Person‐environment fit and its relationship to perceptions of autonomy, competency, and satisfaction were explored through qualitative data collected from consumers. Face‐to‐face, in home interviews were conducted with 91 consumers who were asked to assess their ow...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Authors: B. Lynn Hutchings, Erica Chaplin Tags: Original Article Source Type: research

Impact of an Individualized Planning Approach on Personal Outcomes and Supports for Persons With Intellectual Disabilities
This study compares traditional planning to individualized planning on supports obtained and personal objectives accomplished using a randomized between‐group design. Persons receiving an individualized planning process improved in both supports and personal outcomes as compared to the traditional planning group. When the traditional planning group subsequently received individualized planning, they replicated the results of the first individualized planning group. The findings support implementation of an individualized planning approach in service agencies for individuals with ID. (Source: Journal of Policy and Practic...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Authors: Leanne Gosse, Dorothy Griffiths, Frances Owen, Maurice Feldman Tags: Original Article Source Type: research

Issue Information
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Tags: Issue Information Source Type: research

A New Protocol to Assess the Subjective Wellbeing of Adolescents with Intellectual Disability
This study reports on the PWI‐School Children with Intellectual Disability (PWI‐SCwID), which trialled a pretesting Likert training protocol to enable valid completion of the questionnaire. From this, it was aimed that the subjective well‐being of adolescents with ID would be compared to adults and adolescents without ID, and adults with ID. The PWI‐SCwID was administered to 42 adolescents with ID. They had a mean age of 15.86 years (SD = 1.70) and 52% were female. Participants were recruited from special education schools and dance classes for adolescents with Down syndrome. Thirty‐seven participants (88%) v...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 1, 2017 Category: Disability Authors: Grant A. Blake Tags: Brief Research Report Source Type: research

Dysphagia Management for People With Intellectual Disabilities: Practitioner Identified Processes, Barriers, and Solutions
Abstract Dysphagia is a significant problem for adults with ID which has received sparse attention in the research literature. Little is currently documented about how dysphagia management operates and the barriers and associated strategies to address barriers utilized in practice. A brief survey containing open‐ended questions was completed by 38 practitioners about the way their service operates, the barriers they have faced in providing support around managing dysphagia, and the solutions and strategies they have found useful. The process of dysphagia management typically involved referral and assessment, development ...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 1, 2017 Category: Disability Authors: Darren D. Chadwick Tags: Original Article Source Type: research

The Power of Population Health Data on Aging and Intellectual and Developmental Disabilities: Reactions of Knowledge Users
Abstract Recent work in Ontario (Canada) revealed that adults with intellectual and developmental disabilities experience higher rates of frailty and use of aging care services at earlier ages than the general population, and that the subset aged 65+ years is increasing. This paper describes the reaction of knowledge users to study findings and implications for policy and practice. A knowledge transfer webinar was held with nearly 200 people representing different regions of the province, participant types (family members, service providers, decision makers, researchers), and sectors (health and developmental services). Mo...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 1, 2017 Category: Disability Authors: Lynn Martin, H élène Ouellette‐Kuntz, Katherine McKenzie Tags: Original Article Source Type: research

Contextual Factors Associated with Implementing Active Support in Community Group Homes in the United States: A Qualitative Investigation
This study revealed several reported challenges to AS implementation, including the lack of leadership support, lack of buy‐in, and high staff turnover rate. Despite these difficulties, study participants identified positive impacts of AS on both DSPs and people with disabilities. Implications of these findings are discussed. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 1, 2017 Category: Disability Authors: Xueqin Qian, Ren áta Tichá, Roger Stancliffe Tags: Original Article Source Type: research

No fighting, No Biting, No Screaming. How to Make Behaving Positively Possible for People with Autism and Other Developmental Disabilities by Bo Hejlskov Elven Publisher: Jessica Kingsley Publishers, London, UK/Philadelphia, PA, USA 2010, 224 pages, £13.99/$19.95 ISBN: 9781849051262
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 26, 2017 Category: Disability Authors: Paraskevi Triantafyllopoulou Tags: Book Review Source Type: research

Giorgio Albertini (January 5, 1954 –March 2, 2017)
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 26, 2017 Category: Disability Authors: Matthew P. Janicki Tags: In Memoriam Source Type: research

Issue Information
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 26, 2017 Category: Disability Tags: Issue Information Source Type: research

Factors Associated with Age of Diagnosis in Four Neurogenetic Syndromes
Discussion: Mean age of diagnosis differed significantly in the four neurogenetic syndromes. While the presence of medical factors is likely to lead to earlier diagnosis in 22qdel and Williams syndrome, factors associated with earlier diagnosis in Fragile X syndrome were not identified. Delays in diagnosis could have significant implications with respect to understanding of children's needs and nature and level of support accessed by affected children and their families. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2017 Category: Disability Authors: Colin Reilly, Lelia Murtagh, Joyce Senior Tags: Original Article Source Type: research