Journal of Policy and Practice in Intellectual Disabilities This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Applying a General Measure of Frailty to Assess the Aging Related Needs of Adults with Intellectual and Developmental Disabilities
Abstract Adults with intellectual and developmental disabilities often experience premature aging and high levels of frailty. Frailty characterizes health complexities and identifies adults with increased risks for adverse outcomes. This paper compared the prevalence of frailty amongst adults (aged 18–99 years) with and without intellectual and developmental disabilities. Frailty was measured using the Frailty Marker, based on the Adjusted Clinical Groups‐Predicative Model, and was compared between a cohort of 51,138 adults with intellectual and developmental disabilities and a random sample of 3,272,080 adults without...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 1, 2017 Category: Disability Authors: Katherine McKenzie, H élène Ouellette‐Kuntz, Lynn Martin Tags: Brief Research Report Source Type: research

Trauma ‐Informed Day Services: An Initial Conceptualization and Preliminary Assessment
Abstract Trauma‐informed care (TIC) is a systems‐focused philosophy of service delivery based upon principles of choice, collaboration, empowerment, safety and trustworthiness that recognizes the pervasive impact of trauma across the human experience. In a grassroots effort, one organization developed an innovative, trauma‐informed day program to meet the needs of individuals with intellectual and developmental disabilities (IDD) who were recently deinstitutionalized. The present study is intended to provide an initial conceptualization and preliminary assessment of TIC within IDD services in order to understand its ...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 1, 2017 Category: Disability Authors: John M. Keesler, Cory Isham Tags: Original Manuscript Source Type: research

Parent ‐Implemented Language Interventions for Children with a Developmental Delay: A Systematic Review
Conclusions: Intervention programs aimed at facilitating the communication and language development of children with a DD appear to improve a child's general communication abilities but have limited impact on expressive language development. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - March 1, 2017 Category: Disability Authors: Danielle J. A. Te Kaat ‐van den Os, Marian J. Jongmans, M(Chiel). J. M. Volman, Peter E. M. Lauteslager Tags: Original Article Source Type: research

Safety First! The Topic of Safety in Reversed Integration of People With Intellectual Disabilities
Discussion: In reversed integration, safety is still a highly relevant topic and of great concern for the DSPs and the family members. DSPs are more concerned with controlling risks and keeping everybody safe than looking at the opportunities the new environment offers, like enhancing social integration. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - March 1, 2017 Category: Disability Authors: Eleonora Venema, Carla Vlaskamp, Sabine Otten Tags: Original Manuscript Source Type: research

Giving Voice to Persons With Intellectual Disabilities About Family Quality of Life
Abstract Research in the field of disability should include the voice of individuals with intellectual disabilities (ID), since these individuals are considered to be the experts on their own experiences. Quality of life (QoL) is a worldwide concept that has been studied in many areas, including ID. Since about the year 2000, researchers have studied QoL of families in many countries around the world, but this body of research has mostly reflected the views of the main caregiver of the person with ID. The major purpose of this study was to give voice to persons with ID, and to explore their perspectives about their FQoL. F...
Source: Journal of Policy and Practice in Intellectual Disabilities - February 28, 2017 Category: Disability Authors: Raquel Alveirinho Correia, Maria Jo ão Seabra‐Santos, Paula Campos Pinto, Ivan Brown Tags: Quality of Life ‐New Directions Source Type: research

From Advocacy to Activism: Families, Communities, and Collective Change
This article provides an analysis of family quality of life in the context of parents’ struggle to access equitable education for their children with disabilities, and suggests that the Quality of Life (QoL) conceptual framework (Brown, Schalock, & Brown, ), having already expanded to include the individual to the family unit, be further extended to engage the community. To illustrate, we describe two community‐based projects aimed at moving family involvement in special education away from a model of individual advocacy, situated within western ethnocentric organizational structures that rely on sociocultural capi...
Source: Journal of Policy and Practice in Intellectual Disabilities - February 28, 2017 Category: Disability Authors: Janet Story Sauer, Priya Lalvani Tags: Quality of Life ‐New Directions Source Type: research

Rethinking FQoL: The Dynamic Interplay Between Individual and Family Quality of Life
Abstract Family quality of life (FQoL) is an emerging concept to understand and improve the well‐being and quality of life (QoL) of families. While there has been a lot of effort to conceptualize life domains of families and measurement tools are devised, few studies concentrate on an in‐depth understanding of FQoL. The specific aim of the current study is to understand the relation between individual QoL and FQoL, by studying families with a child/children with intellectual and developmental disabilities (ID/DD) in the Netherlands. This can contribute to a stable foundation of the concept of FQoL. Methods: An explorat...
Source: Journal of Policy and Practice in Intellectual Disabilities - February 28, 2017 Category: Disability Authors: Femke Boelsma, Irene Caubo ‐Damen, Alice Schippers, Menco Dane, Tineke A. Abma Tags: Original Article Source Type: research

The Nature of Quality of Life: A Conceptual Model to Inform Assessment
Abstract The phenomenon of quality of life (QoL) has been subject to ongoing debate and many models have been proposed. Over the latter half of the 20th century, QoL models have proliferated, particularly in relation to the population with intellectual disabilities (ID) which have arguably improved living conditions and helped to guard against abuse. While this is a complex phenomenon, there is agreement across a wide literature that QoL has two distinct aspects relating to the individual (whether disabled or not) and the resources necessary for a “good” QoL. Considerable support is also provided for a number of divers...
Source: Journal of Policy and Practice in Intellectual Disabilities - February 28, 2017 Category: Disability Authors: Alison Alborz Tags: Original Article Source Type: research

Editorial for Special Issue on Quality of Life: Exploring New Grounds
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - February 28, 2017 Category: Disability Authors: Alice Schippers, Geert Van Hove Tags: Quality of Life ‐New Directions Source Type: research

Issue Information
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - February 28, 2017 Category: Disability Tags: Issue Information Source Type: research

Content of Personalized Socioeducational Programs for Adults with Profound Intellectual and Multiple Disabilities. The Risk of Restricting Perspectives in Adulthood
Abstract Supporting individuals with profound intellectual and multiple disabilities (PIMD) in the intricate pattern of their relationships with their physical and social environment undoubtedly represents the main challenge that faces those closely involved with them, and this applies to individuals of all ages, including adults. In an effort to find out more about the priorities applied in the support of adolescents and adults with multiple disabilities in French‐speaking Switzerland, we have analyzed the content of personalized programs (PP's) with particular attention to the long‐term objectives. The programs of 58...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 22, 2016 Category: Disability Authors: G. Petitpierre, J. Gyger, L. Panchaud, S. Romagny Tags: Original Article Source Type: research

Social and Cultural Considerations in Family Quality of Life: Jewish and Arab Israeli Families' Child ‐Raising Experiences
Abstract This paper compares the family quality of life (FQOL) of families with a child with disability in Jewish and Arab communities in Israel. Social, political, and cultural realities have an effect on all members of society. For families with a child with disability there are additional challenges. Being a minority family with a child with a disability adds to the challenges. One hundred fifty‐eight Jewish and 105 Arab Israeli caregivers of children with disabilities responded to the Family Quality of Life Survey (FQOLS‐2006), which operationalizes FQOL as a construct of six measurement dimensions in nine core fam...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 22, 2016 Category: Disability Authors: Dana Roth, Ivan Brown Tags: Quality of Life ‐New Directions Source Type: research

Minutes of the General Assembly & Awards Ceremony August 17th, 2016, 11:30 ‐13:00 MCEC PL‐2, Melbourne, AUSTRALIA
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - December 20, 2016 Category: Disability Tags: Minutes Source Type: research

When Funding Meets Practice: The Fate of Contemporary Therapeutic Approaches and Self ‐Determination in a Consumer‐Centred Disability Funding Scheme
This article highlights the potential for a consumer‐centred model of funding (the Australian National Disability Insurance Scheme, or the NDIS), to undermine therapeutic approaches in Early Childhood Intervention (ECI) that facilitate self‐determination amongst young children with a disability or developmental delay and their families. This process of undermining is not intentional but a consequence of deeply held cultural assumptions regarding how health care should be delivered and assessed. The article brings together multiple “strands” of evidence and theory regarding self‐determination, disability funding, ...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 20, 2016 Category: Disability Authors: Myfanwy McDonald, Kate Davis, Nicole Mahar Tags: Original Article Source Type: research

Geographical Barriers to Mental Health Service Care Among Individuals With an Intellectual Disability in the Republic of Ireland
This article examines differences in access to psychiatry services for those with an ID according to geography, in the context of a small European country (Republic of Ireland). The sample consisted of 753 individuals aged 40 and over with ID in the Republic of Ireland, with data collected from the Intellectual Disability Supplement of the Irish Longitudinal Study on Aging (IDS‐TILDA). The primary outcome of interest was attendance with any psychiatrist and the primary independent variables were area of residence (health service region and degree of county urbanicity). Logistic regression was used to analyze associations...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 20, 2016 Category: Disability Authors: Hugh Ramsay, Niamh Mulryan, Philip McCallion, Mary McCarron Tags: Original Article Source Type: research