Journal of Policy and Practice in Intellectual Disabilities This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Using Cognitive Mapping and Qualitative System Dynamics to Support Decision Making in Intellectual Disability Care
Abstract Provider organizations specializing in supporting people with intellectual disabilities (ID) are under pressure because of public policy reforms, changes in society, and increased customer expectations. The combination of all these factors makes long‐term decision making a challenge for the managers of such organizations. The majority of research examining decision making in ID service organizations has commonly studied the issue from the perspective of healthcare providers. The authors contend that the degree of success of ID support providers depends on their ability to appreciate the views and interests of se...
Source: Journal of Policy and Practice in Intellectual Disabilities - January 23, 2015 Category: Disability Authors: Meri Duryan, Dragan Nikolik, Godefridus Merode, Leopold M. G. Curfs Tags: Original Article Source Type: research

The Infrastructure of Participant Direction for Medicaid‐Funded In‐Home Autism Services for Children in Massachusetts
Abstract Although the prevalence of autism spectrum disorders (ASDs) among young children has grown, it has been noted that affected low‐income children and children from ethnic and racial minority families are less likely to be diagnosed with ASD and to receive services. To help address such disparities, the Autism Division of the Massachusetts Department of Developmental Services instituted an Autism Waiver Program funded jointly by the Commonwealth of Massachusetts and the U.S. federal government. The program was designed to help low‐income children with autism under age nine from diverse cultural backgrounds gain a...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2014 Category: Disability Authors: Walter Leutz, Marji E. Warfield, Maria Timberlake, Giuseppina Chiri Tags: Original Article Source Type: research

Foot Health and Mobility in People With Intellectual Disabilities
Abstract Foot disorders affect people with intellectual disability and have an impact on their ability to mobilize; their prevalence appears to be higher than in the general population. Foot problems are recognized as part of certain syndromes associated with intellectual disabilities. Bony deformities of the foot, general health disorders, musculoskeletal disorders, and inappropriate footwear contribute to the development and aggravation of foot disorders. People with intellectual disability generally are disadvantaged as they do not have sufficient access to podiatric services even when foot problems are well known. Atte...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2014 Category: Disability Authors: Ken Courtenay, Anita Murray Tags: Original Article Source Type: research

The Story of Intellectual Disability: An Evolution of Meaning, Understanding, & Public Perception edited by Michael Wehmeyer (Editor) Publisher: Paul H. Brookes, Baltimore, USA 2013, 277 pages (text), US$49.95 ISBN: 978 1 55766 987 2 (Paperback)
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2014 Category: Disability Authors: Ivan Brown Tags: Book Review Source Type: research

Use of a Psychometric Instrument as a Referral Process for the Required Level of Specialization of Health and Social Services
Abstract In Québec, services of people with intellectual disability (ID) are divided into three levels of care based on the World Health Organization model. Currently, no standardized tool is used to assess the level of specialization of care required by persons with ID in the province despite the Ministry of Social and Health Services' reference framework, which stipulates that services should be fair and easily accessible to all. The present study examined potential tools to address this situation. The scores on the Supports Intensity Scale‐French version (SIS‐F), Adaptive Behavior Assessment System‐II, and Scales...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2014 Category: Disability Authors: Audrée Tremblay, Diane Morin Tags: Original Article Source Type: research

Older Women With Intellectual Disabilities: Overcoming Barriers to Autonomy
Abstract Women with intellectual disabilities often experience limitations to their autonomy despite the enactment of international treaties, such as United Nations Convention on the Rights of Persons with Disabilities and the World Health Organization's Active Ageing: A Policy Framework. The authors examined the perception of autonomy experienced by 55 older women with intellectual disabilities residents in New South Wales (Australia) and Czech Republic (Europe). The aim was to identify factors both limiting and contributing to a perception of autonomy held by older‐aged women with intellectual disabilities. The women w...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2014 Category: Disability Authors: Iva Strnadová, David Evans Tags: Original Article Source Type: research

Enhancing the Resilience of Parents of Adults With Intellectual Disabilities through Volunteering: An Exploratory Study
Abstract The resilience of parents of people with intellectual disability (ID) has increasingly become a concern in the field. However, very little research has focused on resilience interventions. In Hong Kong, the authors made an initial attempt to enhance the resilience level of parents of adults with ID through their participation in a volunteer program. The purpose of this study was to investigate the relationships between participation in the volunteer program and the resilience protective factors of parents. A pretest–posttest design was used involving 36 of the participants who were recruited from the 6‐month v...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2014 Category: Disability Authors: Phyllis K. S. Wong, K. W. Fong, T. L. Lam Tags: Original Article Source Type: research

Strengths and Limitations of Health and Disability Support Administrative Databases for Population‐Based Health Research in Intellectual and Developmental Disabilities
Abstract Individuals with intellectual and developmental disabilities (IDD) experience high rates of social and health disadvantage. Planning effective services that meet the needs of this vulnerable population requires good population‐based data that are collected on a routine, ongoing basis. However, in most jurisdictions, none of the commonly available data (e.g., health or disability benefits administrative data) completely captures the IDD population. To more accurately identify persons with IDD in a population, one solution is to link data across multiple sources. To do this, the authors report on an effort to crea...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2014 Category: Disability Authors: Elizabeth Lin, Robert Balogh, Barry Isaacs, Helene Ouellette‐Kuntz, Avra Selick, Andrew S. Wilton, Virginie Cobigo, Yona Lunsky Tags: Original Article Source Type: research

Special Issue of JPPID on Down Syndrome
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 12, 2014 Category: Disability Tags: Announcement Source Type: research

Demographic Changes in the Older Adult Population of Persons with Intellectual Disability in Germany
Abstract The authors examine how the demographic structure of older adults with intellectual disability in Germany is changing. Using the example of Westphalia‐Lippe, a region with 8.3 million inhabitants, an alteration of the age structure is projected through to the year 2030. The projection is based on personal data of current recipients of services for people with disability from the regional funding authority (Landschaftsverband), as well as on educational statistics. Assumptions were drawn from the current utilization of support services. It is projected that the percentage of older adults among the German adult po...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 12, 2014 Category: Disability Authors: Friedrich Dieckmann, Christos Giovis Tags: Original Article Source Type: research

Policy Development and Implementation for Disability Services in Rural New South Wales, Australia
This study highlights the importance of “rural proofing” policy to consider people who live and work in rural areas. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 12, 2014 Category: Disability Authors: Angela Dew, Gisselle Gallego, Kim Bulkeley, Craig Veitch, Jennie Brentnall, Michelle Lincoln, Anita Bundy, Scott Griffiths Tags: Original Article Source Type: research

Viability of a Dementia Advocacy Effort for Adults with Intellectual Disability: Using a National Task Group Approach
This article describes the origins of this group, its functions and accomplishments, as well its role with respect to national dementia advocacy, as a prototype for other national efforts that can be used to promote the interests of adults with intellectual disability affected by dementia and improve the quality of their lives. Suggested are means for replication of such an effort in other national environments. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 2, 2014 Category: Disability Authors: Matthew P. Janicki, Seth M. Keller Tags: Invited Paper Source Type: research

Taiwan's National Policies for Children in Special Education: Comparison with UNCRPD, Core Concepts, and the American IDEA
Abstract The goals for special education policy in Taiwan are to enable students with disabilities to develop their capacities to the fullest, have equal opportunity to access an effective education, live independently, fully participate in their communities, and become economically as self‐sufficient as possible, thereby contributing to their communities in various ways. The authors compare these policies to three conceptual models, one international and two national, and ask: (1) to what extent do these policies have congruence with the recently promulgated United Nations Convention on the Rights of Persons with Disabi...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 2, 2014 Category: Disability Authors: Chun‐Yu Chiu, H. Rutherford Turnbull Tags: Original Article Source Type: research

IASSIDD Academy on Education, Teaching, and Research: The Genesis and Evolution of an Idea
Abstract The author provides an overview of the development of the IASSIDD Academy from its inception to December 2013. The commentary represents the personal reflections of the founding director of the Academy in terms of its mission and its history of carrying out activities around the world. Outlined are some of the challenges and successes, as well as some of the future needs in terms of the Academy's relevance both inside and beyond IASSIDD. The author notes that with the formation of a board of directors, the development of IASSIDD Academy bylaws along with mission statements, and the design and work with various age...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 26, 2014 Category: Disability Authors: Roy I. Brown Tags: Invited Paper Source Type: research

Analysis of Special Education Policy in Turkey and United States: Improving Turkey's Policy for Students with Intellectual Disability
Abstract The authors compare the special education law of Turkey with comparable law of the United States. The basis of the comparison is the legal framework represented by the six principles of the special education law of the United States, the Individuals with Disabilities Education Act. Within each principle, the special implications for students with intellectual disability are noted. Suggestions for improving Turkey's special education law are made. These relate principally to the principles of zero reject and issues related to discipline; appropriate education, and issues concerning related services and supplementar...
Source: Journal of Policy and Practice in Intellectual Disabilities - August 26, 2014 Category: Disability Authors: Bekir Fatih Meral, H. Rutherford Turnbull Tags: Original Article Source Type: research