Journal of Policy and Practice in Intellectual Disabilities This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Patients With Fragile X Syndrome Attending a Specialized Centre in Chile: Parent Satisfaction, Costs and Adherence
Abstract The study aim was to evaluate the administration and achievements of a Fragile X syndrome (FXS) centre in Chile. Families with children with FXS who sought care at our centre (CDTSXF) answered a survey to evaluate parent satisfaction. We analyzed adherence to management and the costs of CDTSXF operation. The percentage of parents satisfied with CDTSXF management ranged from 38% for speech development, to 100% for general management. The financial costs covered 70% of economic costs of centre operation. Patient adherence was associated with the age at admission to CDTSXF. Low satisfaction with language development ...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Authors: V íctor Faundes, Isabel Salas, Paulina Correa‐Burrows, Paula Soto, María Ignacia Peña, Ángela Pugin, Paulina Bravo, Lorena Santa María, Paulina Morales, Bianca Curotto, Solange Aliaga, María Angélica Alliende Tags: Original Article Source Type: research

Autism Spectrum Disorders: Family Demographics, Parental Stress, and Family Quality of Life
This article examined the impact of family demographic characteristics and parental stress on the quality of life in families of children with ASD. Method: The sample was recruited from four autism service providers in a southwestern state in the United States and consisted of 236 parents of children with ASD. Data were collected using the Beach Center Family Quality of Life Scale and the Parental Stress Scale. Findings: Findings showed that parent's gender, marital status, education, family income, or perceived parental stress was a predictor of quality of life in families of children with ASD and that family income and p...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Authors: Yun ‐Ju Hsiao Tags: Original Article Source Type: research

Handling Plurality and Dealing With Difficult Work Experiences. A Comparative Study of Human Service Professionals ’ Work With Individuals With Intellectual Disabilities
This article examines how administrators in social services (n = 70) and habilitation staff in healthcare (n = 40) in Sweden experience difficulties in their work with people with intellectual disabilities. The research aim was to investigate the most typical aspects of difficult working situations and to apply a comparative analysis of differences and similarities, where the respondents' organizational affiliations are taken into account. The results are primarily based on a content analysis. Contextual standardized questions were included in this study. The results revealed that experiences of difficulties were c...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Authors: Jens Ineland, Martin Molin, Lennart Sauer Tags: Original Article Source Type: research

Behavior Support: Teachers ’ Guides to Inclusive Practices (3rd Ed.) L.M. Bambara, R. Janney and M.E. Snell Publisher: Paul H. Brookes Publishing Co., Baltimore, Maryland, USA 2015. 208 pages, US$34.95 ISBN: 978‐1‐59857‐886‐7 (Paperback and Ebook)
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Authors: Jill Burgess Tags: Book Review Source Type: research

Applying Restrictive Measures in the Care of Adolescents With Mild Intellectual Disabilities: Attitudes of Support Staff and Policy Implications
Abstract Research suggests that restrictive measures are widely used on adolescents with mild intellectual disabilities. In the Netherlands, restrictive measures are defined as all measures that limit the freedom of a person. In most countries, legislation and policies that seek to reduce the use of restrictive measures focus on seclusion and mechanical and physical restraints. The study aimed to investigate the extent to which restrictive practices are used in the care of adolescents with mild intellectual disabilities while also exploring the attitudes of support staff toward these interventions. A survey study was done ...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Authors: Vivianne E. T. D örenberg, Anke J. E. de Veer, Anneke L. Francke, Petri J. C. M. Embregts, Maroesjka van Nieuwenhuijzen, Brenda J. M. Frederiks Tags: Original Article Source Type: research

A Review of Global Literature on Using Administrative Data to Estimate Prevalence of Intellectual and Developmental Disabilities
This study reviews literature from 12 countries in which retrospective administrative data have been used to estimate population‐based prevalence of IDD, identifies promising practices in that literature, and discusses the feasibility of applying those promising practices to other countries. Administrative data sources can be used to identify the number of people with IDD (numerators) in the presence of population estimates from which people with IDD are drawn (denominators) for discrete geographic locations. Case ascertainment methods, age groupings, data years captured, and other methods vary, contributing to a wide va...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Authors: Daniel J. Friedman, R. Gibson Parrish, Michael H. Fox Tags: Brief Research Report Source Type: research

Clinical Judgment, Robert L. Schalock and Ruth Luckasson, Publisher: AAIDD American Association on Intellectual and Developmental Disabilities, Washington, DC, USA., 2014, 2nd ed., US$30.00, ISBN: 978 ‐0‐940898‐00‐4
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Authors: Vivienne Riches Tags: Book Review Source Type: research

Validity of Self ‐Reported Height and Weight to Derive BMI in Adults Participating in Special Olympics
The objectives of this study were to determine the validity of self‐reported height, weight, and derived body mass index (BMI), and to determine the diagnostic accuracy of derived BMI to identify overweight and obesity. Self‐reported height and weight were collected from 40 adult Special Olympics participants. The validity of self‐reported height and weight was determined by comparing them to measured height and weight. The differences between self‐reported and measured height, weight, and derived BMI were not significantly different; however, these findings were derived from results with wide confidence intervals....
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Authors: Kristin Dobranowski, Meghann Lloyd, Pierre C ôté, Robert Balogh Tags: Brief Research Report Source Type: research

Issue Information
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - December 1, 2017 Category: Disability Tags: Issue Information Source Type: research

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Journal of Policy and Practice in Intellectual Disabilities,Volume 14, Issue 4, Page 268-278, December 2017. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - November 29, 2017 Category: Disability Source Type: research

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Journal of Policy and Practice in Intellectual Disabilities,Volume 14, Issue 4, Page 332-340, December 2017. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - November 22, 2017 Category: Disability Source Type: research

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Journal of Policy and Practice in Intellectual Disabilities,Volume 14, Issue 4, Page 285-292, December 2017. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - November 22, 2017 Category: Disability Source Type: research

Classifying Functioning of Children and Adolescents with Intellectual Disability: The Utility of the International Classification of Functioning, Disability and Health for Children and Youth
Abstract Observational cross‐sectional study carried out in a pediatric neurodevelopment unit of a tertiary‐care hospital. A sample of 355 children with median ((min.–max.) 1.0–17.3) years with intellectual disability (30.4% borderline, 43.1% mild, 19.7% moderate, 5.1% severe, and 1.7% profound disability) was seen over a period of 3 years. Based on clinical observation and psychological evaluation, a neurodevelopmental pediatrician selected ICF‐CY body functions codes, and respective qualifiers, to effectively describe functioning of children. Based on evaluation reports, a psychologist and a special educator a...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 22, 2017 Category: Disability Authors: Maria do Carmo Vale, Lu ís Pereira‐da‐Silva, Maria João Pimentel, Teresa Nunes Marques, Helena Rodrigues, Gilda Cunha, Maria do Céu Machado, Manuela Sanches‐Ferreira, Rune J. Simeonsson Tags: Original Article Source Type: research

Transition to Retirement: A Guide to Inclusive Practice, Roger J. Stancliffe, Nathan J. Wilson, Nicolette Gambin, Christine Bigby, and Susan Balandin, Publisher: Sydney University Press, Australia, 2013, RRP $25 ISBN or other cataloguing identification: PB  + DVD, ISBN 9781743323274
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Authors: Laurence Taggart Tags: Book Review Source Type: research

Different Speeds and Different Needs: How to Teach Sports to Every Kid by Gary Barber Publisher: Paul H. Publishing Co., Baltimore, MD, USA 2010, 257 pages, Price: £28.50 ISBN‐13: 978‐1‐59857‐100‐4 ISBN‐10: 1‐59857‐100‐1
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - September 26, 2017 Category: Disability Authors: Jennifer Leigh Tags: Book Review Source Type: research