Population Aging and Intellectual and Developmental Disabilities: Projections for Canada
Abstract Population aging is expected to have a dramatic impact on the need for services and supports among adults with intellectual and developmental disabilities. The expected size of the population of older adults affected remains unknown. The aims of this paper are to present methods to project the age‐structure of the adult population with intellectual and developmental disabilities 10 years into the future, apply those methods to data from Ontario, Canada, and discuss their relative merit. Two methods were used. The first method relies on knowledge of the prevalence of intellectual and developmental disabilities ac...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 20, 2016 Category: Disability Authors: H élène Ouellette‐Kuntz, Lynn Martin, Katherine McKenzie Tags: Brief Research Report Source Type: research

Dictionary of Developmental Disabilities Terminology (3rd ed.) edited by Pasquale J. Accardo and Barbara Y. Whitman (Eds.) Publisher: Paul H. Brookes Publishing Co., Baltimore, MD, USA 2011, 512 pages, paperback, US$39.95, €31,11, £34,95 ISBN: 978‐1‐59857‐070‐0
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - December 20, 2016 Category: Disability Authors: Ivan Brown Tags: Book Review Source Type: research

Issue Information
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - December 20, 2016 Category: Disability Tags: Issue Information Source Type: research

Community Living for Adults with Intellectual Disabilities: Unravelling the Cost Effectiveness Discourse
Abstract The requirements for a rigorous cost‐effectiveness analysis are considered. The evidence base on services for people with ID is then reviewed with an emphasis on the transition from institutional services to those in the community and postdeinstitutionalization research on the costs and outcomes of different forms of community provision. Despite certain limitations, a number of conclusions are possible: (a) overall, community services provide for a better quality of life than institutional care; (b) whether community service costs are more or less than institutional costs may depend on factors such as funding me...
Source: Journal of Policy and Practice in Intellectual Disabilities - December 8, 2016 Category: Disability Authors: David Felce Tags: Invited Paper Source Type: research

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Journal of Policy and Practice in Intellectual Disabilities,Volume 14, Issue 4, Page 311-318, December 2017. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - December 5, 2016 Category: Disability Source Type: research

Conceptualising Educational Quality of Life to Understand the School Experiences of Students With Intellectual Disability
Abstract Various international reports over several decades present a less‐than‐favorable educational experience for students with disabilities. The continued failure of policy to address the factors that influence a quality education is contrary to the goals of the United Nations Convention on the Rights of Persons with a Disability. Research has found that quality‐of‐life domains have a close relationship to the articles contained in the Convention, one of which has a specific focus on education. Analyzing education from the perspective of quality of life may serve as an agent to effect needed change for students...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 30, 2016 Category: Disability Authors: Rhonda Faragher, Mark Van Ommen Tags: Quality of Life ‐New Directions Source Type: research

The Impact of Support Services Teams: Community ‐Based Behavioral Health Support Interventions
This study shows that the use of interdisciplinary teams for people with IDD and behavioral health challenges can be effective in reducing the use of services. These teams can help to build community capacity to work with these individuals and avoid more costly ER and hospital services and reduce the number of medications prescribed. (Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - November 30, 2016 Category: Disability Authors: Randall Owen, Anne Bowers, Tamar Heller, Kelly Hsieh, Robert Gould Tags: Original Article Source Type: research

Family Quality of Life in the Democratic Republic of the Congo
This study explores Congolese conceptions of FQOL and examines the appropriateness of adapting a common FQOL measurement tool for use in a Congolese context. Data are derived from four focus groups, conducted with 21 family members of persons with disabilities and 2 family advocates in Kinshasa, DRC. Participant conceptions of FQOL were highly similar to common understandings of FQOL globally. Participant discourse identified poverty and resiliency as potentially crucial underlying factors in FQOL in the DRC. FQOL is an important concept to measure in the DRC. Measurement must take poverty and resiliency into consideration...
Source: Journal of Policy and Practice in Intellectual Disabilities - November 30, 2016 Category: Disability Authors: Heather M. Aldersey, Grace L. Francis, Shana J. Haines, Chun Yu Chiu Tags: Quality of Life ‐New Directions Source Type: research

Childhood Victimization in a National Sample of Youth with Autism Spectrum Disorders
This study aims to assess the victimization experiences of one such population: American children diagnosed with autism spectrum disorders (ASDs). Utilizing the Juvenile Victimization Questionnaire (JVQ), this study obtained past‐year and lifetime prevalence rates of interpersonal violence in a sample of children with ASDs (N = 262). Results showed that almost 89% of these children had experienced an incident of victimization in their lifetime, while almost as many (82.1%) had experienced an incident within the last year. Among those who had been victimized once within the last year, 92% experienced at least a second...
Source: Journal of Policy and Practice in Intellectual Disabilities - October 18, 2016 Category: Disability Authors: Rebecca D. Pfeffer Tags: Original Article Source Type: research

Involving Service Users with Intellectual Disability in Research: Experiences from the STOP Diabetes Study
Abstract The involvement of service users (people who use health and social care services) in research is central to UK policies, is an integral component of many research funding programs and improves the quality and uptake of research. People with intellectual disability are often excluded from research involvement. The purpose of this article is to describe how adult service users with intellectual disability were involved in the early stages of a diabetes screening study conducted in Leicestershire, UK. People who volunteered were involved in five key areas: publicity, study documentation and process development, accep...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 17, 2016 Category: Disability Authors: Freya Tyrer, Alison J. Dunkley, Rebecca Spong, Satheesh K. Gangadharan, Sabyasachi Bhaumik, Kamlesh Khunti Tags: Brief Research Report Source Type: research

Development of Self ‐Help, Language, and Academic Skills in Persons With Down Syndrome
Abstract Using visual analysis by means of scatterplots, correlational analysis, and linear regressions, the authors explored the skills of individuals with Down syndrome in the areas of self‐help, language, academics, and computer skills. By combining data of several Dutch studies, they obtained 1,252 different observations made by parents on 862 individuals, aged <1–35 years. Research shows advancement in language skills up to the age of 12, with plateauing afterward. In contrast, self‐help skills still increase in adolescence and young adulthood. Academics and computer skills improve up to the age of 14. Howeve...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 24, 2016 Category: Disability Authors: Gert de Graaf, Erik de Graaf Tags: Special Issue Article Source Type: research

Corrigendum
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 24, 2016 Category: Disability Tags: Corrigendum Source Type: research

Investigating the Lived Experience of People with Down Syndrome with Dementia: Overcoming Methodological and Ethical Challenges
Abstract Adults with Down syndrome are at increased risk of dementia at a significantly younger age and remain under‐represented as participants in dementia‐related research. Because little is known about their personal experiences either immediately postdiagnosis or as dementia progresses, there is little opportunity that shared individual experiences can shape future policy and practice. To remedy this omission, the author examined methodological and ethical challenges identified as part of a research study that included people with Down syndrome affected by dementia. It has been contended that traditional qualitativ...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 24, 2016 Category: Disability Authors: Karen Watchman Tags: Original Article Source Type: research

Effect of Taekwondo Training on Lower Body Strength and Balance in Young Adults with Down Syndrome
Abstract Research with individuals with Down syndrome (DS) suggests that increasing strength and balance may lead to increases in independence and self‐reliance. Taekwondo has been shown to increase strength and balance in typically developing (TD) individuals. A study was undertaken to determine whether Taekwondo training can improve lower body strength and balance of young adults with DS. Forty‐four adults with DS aged 21–30 years were assigned to either taekwondo classes 2 days/weeks for 10 weeks (n = 22) or a control group (n = 22). Measurements were taken prior to training, after 5 weeks and after 10 wee...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 24, 2016 Category: Disability Authors: Kathy Carter, Michael Horvat Tags: Special Issue Article Source Type: research

Teacher Identified Professional Learning Needs to Effectively Include a Child With Down Syndrome in Primary Mathematics
Abstract The practices of effective primary school teachers including students with Down syndrome in their mathematics classes are largely unexplored and many teachers feel unprepared to teach students with an intellectual disability. The authors sought to find out what these specific professional learning (PL) needs were and if they changed over time. A mixed methods study was undertaken to investigate the practices of primary mathematics teachers including students with Down syndrome in regular class lessons in two Australia educational jurisdictions. A variety of approaches was used to gain an understanding of their pra...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 24, 2016 Category: Disability Authors: Rhonda Faragher, Barbara Clarke Tags: Original Article Source Type: research