Journal of Policy and Practice in Intellectual Disabilities This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Corrigendum
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 17, 2014 Category: Disability Tags: Corrigendum Source Type: research

Involving People With Intellectual Disabilities Within Research Teams: Lessons Learned from an Irish Experience
This study used a reflective analysis focused on the main findings from the three studies, focus groups with people with ID and supporters who conducted the research, and interviews with people to whom the findings were disseminated. The analysis suggested that a team approach including active supporters and experienced researchers was critical to their feasibility. The studies generated knowledge particularly on the perspectives of people with ID on their rights. As a result of participation in these studies, some changes at the individual and social levels occurred, but these were relatively limited. The implications of ...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 17, 2014 Category: Disability Authors: Edurne García Iriarte, Patricia O'Brien, Darren Chadwick Tags: Original Article Source Type: research

The Need for Self‐Determination and Imagination: Personal Budgeting and the Management of Disability Services in Finland
This article discusses the social positions that are occupied by the professionals and service users in the pilot project. These positions were analyzed within the context of expected change in disability service culture. Research data consisted of interviews and recorded discussions collected among the service users and professionals involved in the pilot. The positions constituted were analyzed by discourse analytical method to find out if the power relations changed because of a shift in the locus of decision making. The study showed there is a need for a change in attitudes to enable people with disabilities to live wi...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 17, 2014 Category: Disability Authors: Susan Eriksson Tags: Original Article Source Type: research

Addressing Challenging Behavior in People With Profound Intellectual and Multiple Disabilities: Analyzing the Effects of Daily Practice
Abstract As some people with profound intellectual and multiple disabilities (PIMD) are at a high risk of developing a challenging behavior, it is useful to look at measures taken to prevent or diminish this type of behavior. The authors undertook a study of how self‐injurious, stereotypical, destructive, or aggressive behaviors are addressed in daily practice in residential facilities. A stratified sample of 30 people with the most severe and frequently reported challenging behaviors was selected from a dataset of 181 children and adults with PIMD. Individual comprehensive service plans were used to determine whether ch...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 17, 2014 Category: Disability Authors: Petra Poppes, Annette A. J. Van der Putten, Carla Vlaskamp Tags: Original Article Source Type: research

An Effective Program Design to Support Older Workers With Intellectual Disability to Participate Individually in Community Groups
Abstract The foreshadowed increase of older people with intellectual disability has become a reality in many developed countries. As these adults age, improved quality of life can be achieved through applications of conjoint policy aims of inclusion and participation. A transition‐to‐retirement (TTR) program developed for employees of a large multisite disability employment service in Sydney, Australia, used these aims to effect successful partial retirement. The authors describe the program logic of the TTR, detailing its conceptual components as the first step to enabling it to be tested and replicated in other setti...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 17, 2014 Category: Disability Authors: Christine Bigby, Nathan J. Wilson, Roger J. Stancliffe, Susan Balandin, Diane Craig, Nicolette Gambin Tags: Original Article Source Type: research

The Definition of “Context” and Its Application in the Field of Intellectual Disability
This article presents an operational definition of “context” and discusses its components and assumptions with respect to the field of intellectual disability. The authors synthesized the literature upon which the definition is based and described how the definition can be used in the field of intellectual disability both to describe the personal and environmental factors that affect human functioning and to provide a framework for supports planning and policy development. The authors note that by defining context as an integrative concept, there will be greater clarity in theoretical models and research. Further, even...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 17, 2014 Category: Disability Authors: Karrie A. Shogren, Ruth Luckasson, Robert L. Schalock Tags: Original Article Source Type: research

Psychosocial Functioning and School Achievement of Children With Mild Intellectual Disability in Polish Special, Integrative, and Mainstream Schools
Abstract The authors sought to assess the effectiveness of integrative and inclusive education in Poland as well as to determine the relations between the psychosocial functioning and school achievement of pupils with mild intellectual disability attending special, integrative, and mainstream schools. Nearly 900 (n = 859) grade four pupils rated their social and emotional integration within their school and took a school achievement test. Pupils from integrative and mainstream schools achieved significantly higher scores in the school achievement test than pupils from special schools, whereas students from special scho...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 17, 2014 Category: Disability Authors: Grzegorz Szumski, Maciej Karwowski Tags: Original Article Source Type: research

Stress and Resilience for Parents of Children With Intellectual and Developmental Disabilities: A Review of Key Factors and Recommendations for Practitioners
Abstract Parents of children with intellectual and/or developmental disabilities experience more stress in comparison to parents of normally developing children. Chronic stress could negatively influence parents' health while also impacting their ability to meet their child's needs. Despite this, there is a subset of parents who remain resilient in the face of significant stress in their lives. Knowledge of the factors that promote parental resilience could positively impact the services these families receive. The authors conducted a systematic review of research article databases and found support for coping style, optim...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 17, 2014 Category: Disability Authors: Justin W. Peer, Stephen B. Hillman Tags: Original Article Source Type: research

Vulnerability to Loneliness in People with Intellectual Disability: An Explanatory Model
Abstract Research with typically developing groups has identified loneliness as a significant predictor of a range of physical and mental health problems. This paper reviews research about loneliness in children and adults with intellectual disability. Although a considerable body of evidence has highlighted the difficulties individuals with intellectual disability have with friendships, there is a relative scarcity of research focused explicitly on loneliness. The available evidence suggests that up to half of persons with intellectual disability are chronically lonely, compared with around 15–30% of people in the gener...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2014 Category: Disability Authors: Linda Gilmore, Monica Cuskelly Tags: Original Article Source Type: research

Facilitating and Impeding Factors for Knowledge Translation in Intellectual and Developmental Disabilities: Results from a Consultation Workshop in Iran
Abstract The authors report on the outcome of a consultation workshop held in Iran, which focused on knowledge translation (KT) and intellectual and developmental disability (IDD). The goal was to learn more about the contextual factors that facilitate and impede KT in applications related to IDD in Iran. Forty‐six stakeholders participated, representing the perspectives of policy‐makers, administrators, parents, practitioners, and researchers. The authors introduced a conceptual framework for KT and assessed KT capacity using a validated tool. They facilitated discussions among stakeholder groups with respect to conte...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2014 Category: Disability Authors: Shahin Shooshtari, Sayyed Ali Samadi, Khatoon Zarei, Saba Naghipur, Toby Martin, May Lee Tags: Original Article Source Type: research

Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up?
Abstract Action research—research collaborations between professional researchers and community members to address community concerns—has become increasingly popular in developmental disability research. Advocates of these approaches argue that they reflect the value of including people with disabilities in matters that affect them and generate benefits for people with disabilities and for research. However, it is not clear how well action research with adults with developmental disabilities reflect core action research principles. The authors identified 21 action research projects with adults with developmental disabi...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2014 Category: Disability Authors: Erin Stack, Katherine E. McDonald Tags: Invited Paper Source Type: research

Mental Health of Children and Adolescents with Intellectual and Developmental Disabilities edited by David Dossetor , Donna White and Lesley Whatson (Eds.) Publisher: IP Communications, Melbourne 2011, 442 pages, AUD$80.00 ISBN: 978‐0‐9808649‐2‐2 (paperback)
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - March 5, 2014 Category: Disability Authors: Trevor R. Parmenter Tags: Book Review Source Type: research

Challenges in Implementing Inclusive Education in Ireland: Principal's Views of the Reasons Students Aged 12+ Are Seeking Enrollment to Special Schools
Abstract In Ireland, an increasing number of students with special educational needs are leaving mainstream schools and enrolling in special education schools. A comparable context is countries that share an inclusion ideology and are at the implementation stage of inclusive education. The authors sought to investigate the reasons why students aged 12+ are leaving mainstream education and transferring to special schools, and to identify what burden this places on the special schools. Data were obtained from questionnaires sent to 54 special school principals. These administrators reported on their experiences with 246 tran...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 5, 2014 Category: Disability Authors: Aine Kelly, Catherine Devitt, Donal O'Keffee, Anne Marie Donovan Tags: Original Article Source Type: research

Targeting Health Improvement via a Nutritional Intervention Program for Adults With Developmental Disabilities and Challenging Behaviors
This article describes how the need for a nutritional intervention program for group home staff was determined, the nature of the program itself, and the impact of the program upon meal composition and on staff and residents. Subjects were supervisors and group home staff members responsible for providing meals in four group homes to 21 residents. The program consisted of two training sessions for staff and follow‐up monitoring through daily photographing of meals, weekly communications with staff, and monthly measuring of the body mass of group home residents. The program was assessed through a time series evaluation of...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 5, 2014 Category: Disability Authors: Meaghan Edwards, Michael Holder, Nehama Baum, Roy Brown Tags: Original Article Source Type: research

Attention Deficit Hyperactivity Disorders Symptomatology Among Individuals With Down Syndrome
Abstract The prevalence of attention deficit hyperactivity disorders (ADHD) among individuals with Down syndrome (DS) has been difficult to ascertain. This is because many of the phenotypic features of DS may resemble the clinical manifestations of DS and the myriad methodological challenges in diagnosing ADHD in children with intellectual disabilities (ID). With this in mind, the authors set to determine the prevalence of ADHD symptomatology in a cohort of children and young adults in a DS clinic. Subjects were 83 children and adults, ages 5–38, who were attending the Down Syndrome Center at the Hadassah Mount Scopus Un...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 5, 2014 Category: Disability Authors: Simon Edvardson, Nadira Msallam, Pnina Hertz, Sarah Malkiel, Isaiah D. Wexler, Ariel Tenenbaum Tags: Original Article Source Type: research