Journal of Policy and Practice in Intellectual Disabilities This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Variables That Can Enhance and Complicate Sibling Caregiving of Individuals With Intellectual and Developmental Disabilities
Abstract The increasing longevity of adults with intellectual and developmental disabilities (I/DD) has raised new issues for families. Individuals with I/DD who face difficulties in achieving full independence might remain dependent on family members such as aging parents, who may be unable to provide continued support. Therefore, reliance on siblings for the future care can be an adaptive action for many families. Sibling caregiving is a universal phenomenon and requires rigorous examination and exploration. Like other carers, siblings require support and services to fulfill their role's expectations. Nonetheless, the de...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 5, 2015 Category: Disability Authors: Mamta Saxena Tags: Original Article Source Type: research

Team‐Based Approaches in Early Intervention Services for Children With Disabilities: Irish Parents' Experiences
Abstract The authors report on a study addressing gaps in the literature regarding parents' experiences of team‐based approaches for their children with disabilities in practice in early intervention services. Specifically, this study examined the facilitators and barriers of the multidisciplinary and transdisciplinary models through a qualitative, grounded theory approach employed in which semi‐structured interviews and focus group discussions were conducted with 19 parents (15 mothers and four fathers from 18 families) of children with disabilities from two early intervention services in Ireland. The results revealed...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 5, 2015 Category: Disability Authors: Noelle Fitzgerald, Patrick Ryan, Amanda Fitzgerald Tags: Original Article Source Type: research

Factors Influencing Attentiveness of People With Profound Intellectual and Multiple Disabilities to Multisensory Storytelling
This study analyzed the relationship between the effects of these guidelines and the attentiveness of listeners with PIMD. Some 45 storytellers created an MSST book tailored to a person with PIMD. The book was read 10 times, and video recordings were made of the first, fifth, and tenth reading sessions. For each session, the percentage of attention paid to the storyteller and to the book was scored using an interval method. The relationship between adherence to the guidelines (repetition, use of original text, offering stimuli actively, and use of neutral background) and attentiveness of the person with PIMD was then analy...
Source: Journal of Policy and Practice in Intellectual Disabilities - September 5, 2015 Category: Disability Authors: Annet Ten Brug, Annette A.J. Van der Putten, Anneleen Penne, Bea Maes, Carla Vlaskamp Tags: Original Article Source Type: research

Body Mass Index of Adult Special Olympians by Country Economic Status
This study compared the prevalence of underweight, normal weight, overweight, and obesity among adult Special Olympics participants by country economic status. A total of 19,295 (men, n = 12,037) measured height and weight records were available from the Special Olympics International (SOI) Health Promotion database. The 159 countries in the database were recoded according to the World Bank's classification of country economic status as: low‐income, lower middle‐income, upper middle‐income, and high‐income. Body mass index (BMI; kg/m2) prevalence rates were calculated for underweight, normal weight, overweight,...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2015 Category: Disability Authors: Viviene A. Temple, John T. Foley, Meghann Lloyd Tags: Special Issue: World Disability Report Source Type: research

A Pilot Study on Function and Disability of Aging People with Down Syndrome in Italy
Abstract An increased life expectancy of people with Down syndrome (DS) and the occurrence of early aging are now recognized. However, few data exist on functioning and disability profile of early‐aging people with DS, which takes into account how health conditions interact with environmental factors. Based on the World Health Organization's International Classification of Functioning, Disability and Health (ICF), the authors collected preliminary data describing functioning and disability about early aging from 31 adults with DS aged 45 and older residing in the greater Milan, Italy, area. ICF checklist was used to coll...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2015 Category: Disability Authors: Venusia Covelli, Paolo Meucci, Alberto Raggi, Giulia Fontana, Matilde Leonardi Tags: Brief Research Report Source Type: research

IASSID Council Meeting: 24 August 2013
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2015 Category: Disability Tags: Minutes Source Type: research

Rights of People with Intellectual Disability in Cyprus: Policies and Practices Related to Greater Social and Educational Inclusion
Abstract The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) is the framework for national policies and practices that respect the rights of people with disabilities. UN and European human rights entities produce reports that could be used by advocacy groups, such as organizations for people with disabilities, to hold governments accountable for their commitment to international law. This paper focuses on the extent to which policies and practices concerning the education and independent living of people with intellectual disability in Cyprus allow for the full enjoyment of rights under Articl...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2015 Category: Disability Authors: Simoni Symeonidou Tags: Original Article Source Type: research

Context, Service Provision, and Reflections on Future Directions of Support for Individuals With Intellectual Disability in Singapore
Abstract The author examined how individuals with intellectual disability (ID) are supported in Singapore and what are the needs for further service development. Service provision for individuals with disabilities in Singapore is broadly reflective of its changing needs as a developing nation. Disability service provision began in the pre‐World War II period and then advanced greatly during the last 20 years with the proliferation of early intervention and specialized programs for school‐aged children as well an expansion of adult‐focused supports. Social services are organized along the “Three Ps Model” (public,...
Source: Journal of Policy and Practice in Intellectual Disabilities - June 1, 2015 Category: Disability Authors: Kenneth K. Poon Tags: Original Article Source Type: research

World Report on Disability, Intellectual Disabilities, and Disaster Preparedness: Costa Rica as a Case Example
Abstract The World Report on Disability relates concerns about the experiences of individuals with intellectual disability in disaster situations. Disaster planning related to people with intellectual disability needs to consider that (1) they experience disproportionate risk in disaster situations, (2) they are often excluded from relief processes and are disadvantaged in disaster support situations, (3) they may need specialized disability‐related supports, (4) they often have needs for assistive technology and special rehabilitative services, (5) family and community networks are important supports in disaster situati...
Source: Journal of Policy and Practice in Intellectual Disabilities - April 27, 2015 Category: Disability Authors: Laura M. Stough Tags: Special Issue: World Disability Report Source Type: research

Interprofessional Education in Canada: Addressing Knowledge, Skills, and Attitudes Concerning Intellectual Disability for Future Healthcare Professionals
This study measured healthcare students’ change in knowledge, skills, and attitudes toward individuals with ID and how it affected their readiness for interprofessional care. Subjects were graduate students from the fields of medicine, nursing, clinical psychology, occupational therapy, and physiotherapy. Course curriculum developed used a blended teaching approach with a combination of online learning, lectures, team‐based problem solving, and client interviews. Evaluation was completed on 247 learners, utilizing a pre‐post course questionnaire addressing content areas of knowledge, skills, and attitude, and by anal...
Source: Journal of Policy and Practice in Intellectual Disabilities - April 27, 2015 Category: Disability Authors: Jessica Jones, Meg McQueen, Samantha Lowe, Patricia Minnes, Alexis Rischke Tags: Original Article Source Type: research

Health, Education, Advocacy, and Law: An Innovative Approach to Improving Outcomes for Low‐Income Children With Intellectual and Developmental Disabilities
Abstract Advocates and attorneys working in medical–legal partnerships in the United States have become essential members of a multidisciplinary team that educates healthcare professionals on the rights of individuals with intellectual and developmental disabilities and represents families when appropriate services to which they are legally entitled are denied. This program description presents an innovative program in which advocates and attorneys work closely with healthcare professionals in a pediatric setting to improve implementation of clinical recommendations and outcomes for low‐income children with intellectua...
Source: Journal of Policy and Practice in Intellectual Disabilities - April 24, 2015 Category: Disability Authors: Alison R. Zisser, Maureen Stone Tags: Special Issue: World Disability Report Source Type: research

Types and Causes of Injuries of Carers of Adults With Intellectual Disabilities: Observational Study
Abstract The aim of this research was to investigate the incidence, types, and causes of injury experienced by a community‐based cohort of family and paid carers of adults with ID (n = 446) in Scotland over a 12‐month period, compared with the age and sex‐matched general population in the same geographical area (n = 1,225). We hypothesized that they would be at an increased risk of injury due to their caring/support role, and particularly as a consequence of caring for adults with ID who present physical aggression. Young and middle‐aged female and older‐aged male carers experienced more injuries in the p...
Source: Journal of Policy and Practice in Intellectual Disabilities - April 21, 2015 Category: Disability Authors: Janet Finlayson, Alison Jackson, Dipali Mantry, Jillian Morrison, Sally‐Ann Cooper Tags: Original Article Source Type: research

Needs of Chinese Families With Children With Developmental Disabilities: A Qualitative Inquiry
Abstract This qualitative inquiry focused on the perceptions that Chinese families of children with developmental disabilities have pertaining to their needs. Data were collected through focus group discussions and in‐depth interviews; transcript analysis relied on the constant comparative method. We identified seven categories of needs, subsumed under the following three thematic areas: survival needs, sufficiency needs, and enhancement needs. Survival needs refer to maintaining basic family existence and include (1) financial needs and (2) physical health needs. Sufficiency needs refer to families' needs for social inc...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 13, 2015 Category: Disability Authors: Xiaoyi Hu, Ann Turnbull, Jean Ann Summers, Mian Wang Tags: Original Article Source Type: research

Practitioner Explanations for the Increasing Use of Restraint Measures in the Care of People With Intellectual Disabilities in Norway 2000–11
This study examined professionals' explanations for this unexpected increase. ID care staff (n = 178) and local government supervisors (n = 17) completed a semi‐structured questionnaire (total n = 195). All participants were involved directly or indirectly in implementing restraint. Comparisons were made between the different levels of care staff and the supervisors. The care staff interpreted the increase as due to greater awareness of the regulations and restraint interventions. Supervisors had low expectations of a decrease in restraint rates in the future. It was felt that the new regulations on the use o...
Source: Journal of Policy and Practice in Intellectual Disabilities - March 13, 2015 Category: Disability Authors: Erik Søndenaa, Frode Dragsten, Richard Whittington Tags: Original Article Source Type: research

The Passing of Dr. Ann Clarke
(Source: Journal of Policy and Practice in Intellectual Disabilities)
Source: Journal of Policy and Practice in Intellectual Disabilities - March 13, 2015 Category: Disability Authors: Vianne Timmons, Roy I. Brown Tags: Obituary Source Type: research