Home surveillance monitoring for high risk congenital heart newborns: Improving outcomes after single ventricle palliation - why, how & results
Survival to discharge home after first stage palliation of children born with hypoplastic left heart syndrome continues to increase. The palliated hypoplastic left heart syndrome infant exists in a unique situation. They are deemed stable for discharge to the home, yet they remain at high risk for serious morbidity, growth failure and death during the interstage period, which is the time from discharge home after first stage palliation until the second-stage surgical intervention. Single center interstage death rates of 10 –19% are reported. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 3, 2018 Category: Cardiology Authors: Jo Ann Nieves, Nancy A. Rudd, Nancy Dobrolet Tags: Review Source Type: research
The design and implementation of the integrated pediatric heart failure care program
The heart failure and heart transplant program at St. Louis Children's Hospital and Washington University School of Medicine began as one cardiologist and nurse coordinator serving as consultants for heart transplant patients in the hospital. As patient volumes increased, the program grew accordingly and has developed into an integrated heart failure program, which is part of a larger multidisciplinary team. The heart failure and heart transplant program provides comprehensive care for patients both in the hospital and at home, from the initial diagnosis of cardiomyopathy, through advanced heart failure, heart transplant a...
Source: Progress in Pediatric Cardiology - February 3, 2018 Category: Cardiology Authors: Jamie Backowski, Chesney Castleberry, Kathleen Hurley, Mary Mehegan, Mary Fujarski, Crystal Buesking, Peggy Rasp, Charles Canter, Kathleen Simpson Tags: Review Source Type: research
Home surveillance monitoring for high risk congenital heart newborns: Improving outcomes after single ventricle palliation why, how & results
Survival to discharge home after first stage palliation of children born with hypoplastic left heart syndrome continues to increase. The palliated hypoplastic left heart syndrome infant exists in a unique situation. They are deemed stable for discharge to the home, yet they remain at high risk for serious morbidity, growth failure and death during the interstage period, which is the time from discharge home after first stage palliation until the second-stage surgical intervention. Single center interstage death rates of 10 –19% are reported. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 3, 2018 Category: Cardiology Authors: Jo Ann Nieves, Nancy A. Rudd, Nancy Dobrolet Tags: Review Source Type: research
The design and implementation of the integrated pediatric heart failure care program
The heart failure and heart transplant program at St. Louis Children's Hospital and Washington University School of Medicine began as one cardiologist and nurse coordinator serving as consultants for heart transplant patients in the hospital. As patient volumes increased, the program grew accordingly and has developed into an integrated heart failure program, which is part of a larger multidisciplinary team. The heart failure and heart transplant program provides comprehensive care for patients both in the hospital and at home, from the initial diagnosis of cardiomyopathy, through advanced heart failure, heart transplant a...
Source: Progress in Pediatric Cardiology - February 3, 2018 Category: Cardiology Authors: Jamie Backowski, Chesney Castleberry, Kathleen Hurley, Mary Mehegan, Mary Fujarski, Crystal Buesking, Peggy Rasp, Charles Canter, Kathleen Simpson Tags: Review Source Type: research
The pediatric experience of living with a ventricular assist device
The objective of this review is to better understand the experience of having a ventricular assist device from the perspective of the child. The literature findings were categorized into the following themes: the persistent threat of mortality, identification with the device, the perception of life pre-device, and caregiver strain. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 2, 2018 Category: Cardiology Authors: Shauna di Bari, Hari Tunuguntla, Barbara Elias, Justin Elhoff Tags: Review Source Type: research
Cardiovascular health supervision for Duchenne Muscular Dystrophy; data from the MD STARnet
In 2005, the American Academy of Pediatrics (AAP) published a policy statement on cardiovascular health supervision for Duchenne Muscular Dystrophy (DMD). Data is lacking on its effect on cardiovascular care. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 2, 2018 Category: Cardiology Authors: Carol A. Wittlieb-Weber, Cristian Pantea, Sergey Krikov, Christina Westfield, Deborah J. Fox, Shree Pandya, Jerry Bounsanga, Nicholas E. Johnson, Russell J. Butterfield, Y. Swamy Venkatesh, Emma Ciafaloni Source Type: research
Differential response to heart failure medications in children
There have been many advances in the treatment of heart failure over the past several years. While these advancements have resulted in improved outcomes in adults with heart failure, these same treatments do not seem to be as efficacious in children with heart failure. Investigations of the failing pediatric heart suggest that there are unique phenotypic, pathologic and molecular differences that could influence how children with heart failure response to adult-based therapies. In this review, several recent studies and the potential implications of their findings on informing the future of the management of pediatric hear...
Source: Progress in Pediatric Cardiology - February 2, 2018 Category: Cardiology Authors: Shelley D. Miyamoto, Carmen C. Sucharov, Kathleen C. Woulfe Tags: Review Source Type: research
A part of the team: The changing role of palliative care in congenital heart disease
Palliative care teams have historically not been involved in the treatment of children with congenital heart disease. When palliative care is involved, most consults occur too late during “crisis” situations when patients are already critically ill, and most had no prenatal involvement of the palliative care team. Early involvement of palliative care teams can reduce patient and family stress as well as allow palliative care to participate in longitudinal care planning and decisi on making. Palliative care teams should be introduced as part of the larger heart center team to avoid misperceptions that families may have ...
Source: Progress in Pediatric Cardiology - February 2, 2018 Category: Cardiology Authors: Naomi Goloff, Brian F. Joy Tags: Review Source Type: research
The pediatric experience of living with a ventricular assist device
The objective of this review is to better understand the experience of having a ventricular assist device from the perspective of the child. The literature findings were categorized into the following themes: the persistent threat of mortality, identification with the device, the perception of life pre-device, and caregiver strain. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 2, 2018 Category: Cardiology Authors: Shauna di Bari, Hari Tunuguntla, Barbara Elias, Justin Elhoff Tags: Review Source Type: research
Cardiovascular health supervision for Duchenne Muscular Dystrophy; data from the MD STARnet
In 2005, the American Academy of Pediatrics (AAP) published a policy statement on cardiovascular health supervision for Duchenne Muscular Dystrophy (DMD). Data is lacking on its effect on cardiovascular care. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 2, 2018 Category: Cardiology Authors: Carol A. Wittlieb-Weber, Cristian Pantea, Sergey Krikov, Christina Westfield, Deborah J. Fox, Shree Pandya, Jerry Bounsanga, Nicholas E. Johnson, Russell J. Butterfield, Y. Swamy Venkatesh, Emma Ciafaloni Source Type: research
Differential response to heart failure medications in children
There have been many advances in the treatment of heart failure over the past several years. While these advancements have resulted in improved outcomes in adults with heart failure, these same treatments do not seem to be as efficacious in children with heart failure. Investigations of the failing pediatric heart suggest that there are unique phenotypic, pathologic and molecular differences that could influence how children with heart failure response to adult-based therapies. In this review, several recent studies and the potential implications of their findings on informing the future of the management of pediatric hear...
Source: Progress in Pediatric Cardiology - February 2, 2018 Category: Cardiology Authors: Shelley D. Miyamoto, Carmen C. Sucharov, Kathleen C. Woulfe Tags: Review Source Type: research
A part of the team: The changing role of palliative care in congenital heart disease
Palliative care teams have historically not been involved in the treatment of children with congenital heart disease. When palliative care is involved, most consults occur too late during “crisis” situations when patients are already critically ill, and most had no prenatal involvement of the palliative care team. Early involvement of palliative care teams can reduce patient and family stress as well as allow palliative care to participate in longitudinal care planning and decisi on making. Palliative care teams should be introduced as part of the larger heart center team to avoid misperceptions that families may have ...
Source: Progress in Pediatric Cardiology - February 2, 2018 Category: Cardiology Authors: Naomi Goloff, Brian F. Joy Tags: Review Source Type: research
Adults with congenital heart disease – Facing morbidities and uncertain early mortality
In the current era, most individuals born with congenital heart disease will reach adulthood. There are now more adults than children living with congenital heart disease in developed countries, and the population continues to expand. Although the life-saving accomplishments achieved in pediatric cardiology are to be extolled, longer-term sequelae also warrant close attention. Adults with moderate or complex disease continue to face cardiac and noncardiac comorbidities as well as a shorted life expectancy. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - January 21, 2018 Category: Cardiology Authors: Jill M. Steiner, Adrienne H. Kovacs Tags: Review Source Type: research
Systematic literature review of pathophysiology of postural orthostatic tachycardia syndrome (angiotensin II receptor subtypes imbalance theory)
Pathogenesis of postural orthostatic tachycardia syndrome (POTS) is incompletely understood. Study aimed to identify different theories of possible POTS pathogenesis and to formulate evidence-based pathogenesis that correlates with different clinical pictures. Five databases searched systematically using predefined key words. Inclusion criteria for studies were comparing POTS patients to normal population regarding different pathogenesis. Predefined exclusion criteria for studies were: animal subjects-non POTS-case reports AND review articles. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - January 19, 2018 Category: Cardiology Authors: Mohamed Nagiub, William Moskowitz, John Fortunato Source Type: research
