Assessment of cognitive performance among Mexican children and adolescents afflicted by simple to complex congenital heart diseases. Preliminary study
Among patients afflicted by congenital heart diseases (CHD) diverse, and complex neurological alterations are commonly observed. These have neither been completely identified nor understood. With the aim of identifying specific neurocognitive alterations among children and adolescents afflicted by CHD we investigated the possible presence of cognitive disorders related to the presence of cardiovascular disease with the aid of a sample of 20 patients (12 teenagers and 8 school-age children). Taken altogether, 9 of them were afflicted by simple and 11 by complex pathologies (respectively, CHDs/c). (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 15, 2018 Category: Cardiology Authors: Gabriel Gonz ález-González, F. Bernardo Pliego-Rivero, Mario Rodríguez-Camacho, Gustavo Mendieta Alcántara, Gloria A. Otero Ojeda Source Type: research
Supporting the family left behind – Loss of a child to congenital heart disease
Congenital heart disease is a significant cause of childhood morbidity and mortality. Advances in medical and surgical therapies for children with congenital heart disease have both prolonged and enhanced the lives of children and their families affected by congenital and acquired heart disease. While many of these children will ultimately lead happy and productive lives, a significant proportion of this patient population will succumb to their disease. This paper will briefly highlight the incidence and outcomes of congenital heart disease as well as provide an in-depth review of techniques, such as hospital-based bereave...
Source: Progress in Pediatric Cardiology - February 15, 2018 Category: Cardiology Authors: Laura Kitzmiller, Andrea M. Kline-Tilford Tags: Review Source Type: research
The patient journey to home after major cardiac surgery in infancy
Major technological advances in pediatric surgical and intensive care in recent decades, particularly for neonates, have resulted in the survival of children with previously life-threatening congenital heart defects (CHDs) including those with significant comorbidities. Despite these positive steps forward, many cardiac infants remain medically vulnerable after surgery hence the process of discharge home as well as the period early after discharge are crucial phases in the patient journey. In order to ensure children achieve the best outcomes and parents are adequately supported in caring for them, preparation for discharg...
Source: Progress in Pediatric Cardiology - February 15, 2018 Category: Cardiology Authors: Kate L. Brown, Liz Smith Tags: Review Source Type: research
Reframing pediatric cardiac intensive care outcomes: The importance of the family and the role of pediatric medical traumatic stress
With mortality in the pediatric cardiac intensive care unit (CICU) low at 2 –4%, the majority of children survive their admission. While the CICU experience is often part of a broader story of living with and managing cardiac disease, many children are impacted by CICU experience with changes to their physical health, neurocognition, psychological health, and quality of l ife. Risk factors for poor outcomes after a CICU admission include potentially fixed and immutable factors such as congenital heart disease severity, therapeutic interventions, and hospitalization characteristics. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 15, 2018 Category: Cardiology Authors: Lauren M. Yagiela, Felicity W.K. Harper, Kathleen L. Meert Tags: Review Source Type: research
Assessment of cognitive performance among Mexican children and adolescents afflicted by simple to complex congenital heart diseases. Preliminary study
Among patients afflicted by congenital heart diseases (CHD) diverse, and complex neurological alterations are commonly observed. These have neither been completely identified nor understood. With the aim of identifying specific neurocognitive alterations among children and adolescents afflicted by CHD we investigated the possible presence of cognitive disorders related to the presence of cardiovascular disease with the aid of a sample of 20 patients (12 teenagers and 8 school-age children). Taken altogether, 9 of them were afflicted by simple and 11 by complex pathologies (respectively, CHDs/c). (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 15, 2018 Category: Cardiology Authors: Gabriel Gonz ález-González, F. Bernardo Pliego-Rivero, Mario Rodríguez-Camacho, Gustavo Mendieta Alcántara, Gloria A. Otero Ojeda Source Type: research
Reframing pediatric cardiac intensive care outcomes: The importance of the family and the role of pediatric medical traumatic stress
With mortality in the pediatric cardiac intensive care unit (CICU) low at 2 –4%, the majority of children survive their admission. While the CICU experience is often part of a broader story of living with and managing cardiac disease, many children are impacted by CICU experience with changes to their physical health, neurocognition, psychological health, and quality of l ife. Risk factors for poor outcomes after a CICU admission include potentially fixed and immutable factors such as congenital heart disease severity, therapeutic interventions, and hospitalization characteristics. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 15, 2018 Category: Cardiology Authors: Lauren M. Yagiela, Felicity Harper, Kathleen Meert Tags: Review Source Type: research
Supporting the family left behind – Loss of a child to congenital heart disease
Congenital heart disease is a significant cause of childhood morbidity and mortality. Advances in medical and surgical therapies for children with congenital heart disease have both prolonged and enhanced the lives of children and their families affected by congenital and acquired heart disease. While many of these children will ultimately lead happy and productive lives, a significant proportion of this patient population will succumb to their disease. This paper will briefly highlight the incidence and outcomes of congenital heart disease as well as provide an in-depth review of techniques, such as hospital-based bereave...
Source: Progress in Pediatric Cardiology - February 15, 2018 Category: Cardiology Authors: Laura Kitzmiller, Andrea M. Kline-Tilford Tags: Review Source Type: research
The patient journey to home after major cardiac surgery in infancy
Major technological advances in pediatric surgical and intensive care in recent decades, particularly for neonates, have resulted in the survival of children with previously life-threatening congenital heart defects (CHDs) including those with significant comorbidities. Despite these positive steps forward, many cardiac infants remain medically vulnerable after surgery hence the process of discharge home as well as the period early after discharge are crucial phases in the patient journey. In order to ensure children achieve the best outcomes and parents are adequately supported in caring for them, preparation for discharg...
Source: Progress in Pediatric Cardiology - February 15, 2018 Category: Cardiology Authors: Kate L. Brown, Liz Smith Tags: Review Source Type: research
Obstacles to prediction of outcome in pediatric cardiomyopathy
The 4th International Conference on Cardiomyopathy in Children (4th ICCC), held May 18-19th, 2017, in Bethesda, Maryland, included a session titled “Current Controversies in Diagnosis and Management” which focused on three presentations concerning management issues that represent persistent sources of disagreement within the field: “Management and Indications for Transplant in Restrictive Cardiomyopathy” presented by Dr. Elizabeth Blume , “Evidence Concerning Efficacy of Exercise Restriction in Hypertrophic Cardiomyopathy” presented by Dr. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 13, 2018 Category: Cardiology Authors: Steven D. Colan Tags: Review Source Type: research
Role of comprehensive care in Fontan survivors: A multidisciplinary team approach
The current standard management strategy for patients born with single ventricle heart disease includes a series of palliative surgeries, culminating in the Fontan operation. With the recognition that survivors of Fontan palliation are at risk for developing a wide breadth of complications, spanning multiple different organ systems, interest in developing multidisciplinary teams dedicated to the care of these patients has emerged. The key element of this approach is the recognition that the care paradigm in which Fontan patients simply see their cardiologist annually for an echocardiogram is no longer adequate or appropria...
Source: Progress in Pediatric Cardiology - February 10, 2018 Category: Cardiology Authors: Michael V. Di Maria, Shaji C. Menon Tags: Review Source Type: research
Young people with congenital heart disease — Transitioning to adult care
Congenital heart disease is the most common congenital anomaly and approximately 90% of those born with congenital heart disease today are likely to survive to adulthood. The majority require life-long specialist follow-up, requiring transition to adult-oriented services. The high frequency of patients lost to follow-up and with lapses in care is daunting and suggests that current transition preparation may be inadequate. In this review we define transition and the goals of transition and describe the concept of transition readiness. (Source: Progress in Pediatric Cardiology)
Source: Progress in Pediatric Cardiology - February 4, 2018 Category: Cardiology Authors: Karen Uzark, Jo Wray Tags: Review Source Type: research
