Telemedicine is the way forward for the management of cystic fibrosis – the case against
It is reasonable to suggest that Telemedicine could help in the management of chronic diseases by giving patients more flexibility to remain at home with opportunities to forward electronic data to healthcare professionals, reduce hospital emergency attendances and reduce overall costs. The reality, particularly in cystic fibrosis care, is this has not happened. There is concern that home-generated lung function data is of poor quality and virtually no studies show improved outcomes. The UK has a poor record in developing novel IT programmes and we need many more well designed clinical studies in Telemedicine before wading...
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Warren Lenney Tags: Review Source Type: research
Nutritional management of cystic fibrosis – an update for the 21st century
Nutritional management is an essential part of multidisciplinary care for infants, children and adults with cystic fibrosis (CF). In 2016 two updated nutritional consensus guidelines were published [1,2]. This review will explore some of the key points in the nutritional management of people with CF in the 21st Century. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Sarah Collins Tags: Review Source Type: research
Cystic Fibrosis Papers of the Year 2016
This is arguably the most exciting era in the treatment of Cystic Fibrosis (CF) with the emergence of potentially disease modifying therapies. The last year has seen fewer landmark papers, with the consolidation of existing knowledge and advances in the understanding of the patho-physiology and management of CF. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Iolo Doull Tags: Review Source Type: research
Disease-modifying drug therapy in cystic fibrosis
This article reviews progress and highlights some of the current and future challenges in CFTR modulator therapies. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Katharine Harman, Rebecca Dobra, Jane C. Davies Tags: Review Source Type: research
The impact of co-morbidity in childhood cystic fibrosis
A number of risk factors have been identified for deterioration of lung disease in children with Cystic Fibrosis (CF), and current management strategies are based on the prevention and treatment of such elements. Further challenge ensues when a patient has co-morbid disease in addition to CF, particularly when faced with rapidly deteriorating pulmonary status. It is difficult to measure the contribution of other pathologies to this decline and optimisation of both CF care and co-morbidity is paramount. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Julie A. Duncan, Sarah M.N. Brown Tags: Review Source Type: research
Highlights from the 30th North American Cystic Fibrosis Conference, Orlando 2016
This is a selection of papers presented at the 30th North American Cystic Fibrosis Conference held in Orlando in October 2016. The papers discussed are thought to be of particular interest to CF caregivers in the UK. We highlight the major themes covered in the conference including novel therapies, recently published and proposed guidelines and insights from registry studies. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Anna Shawcross, Peter J. Barry Tags: Review Source Type: research
Telemedicine is the way forward for the management of cystic fibrosis – the case against
It is reasonable to suggest that Telemedicine could help in the management of chronic diseases by giving patients more flexibility to remain at home with opportunities to forward electronic data to healthcare professionals, reduce hospital emergency attendances and reduce overall costs. The reality, particularly in cystic fibrosis care, is this has not happened. There is concern that home-generated lung function data is of poor quality and virtually no studies show improved outcomes. The UK has a poor record in developing novel IT programmes and we need many more well designed clinical studies in Telemedicine before wading...
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Warren Lenney Tags: Review Source Type: research
Disease-modifying drug therapy in cystic fibrosis
This article reviews progress and highlights some of the current and future challenges in CFTR modulator therapies. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Katharine Harman, Rebecca Dobra, Jane C. Davies Tags: Review Source Type: research
Telemedicine is the way forward for the management of cystic fibrosis – the case in favour
Despite rapid changes in Information and Communication Technology, outpatient chronic disease management has changed very little in decades. However, the introduction of Telemedicine defined here as the use of remote patient-centred clinical services including the use of video and audio connections, telemonitoring and mobile applications provides us with an ideal opportunity to revolutionise care. Its appeal in cystic fibrosis (CF) care is clear offering better access to services, the opportunity of earlier intervention and improved monitoring and self management through virtual clinics and the use of real-time application...
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Robert Ian Ketchell Tags: Review Source Type: research
Nutritional management of cystic fibrosis – an update for the 21st century
Nutritional management is an essential part of multidisciplinary care for infants, children and adults with cystic fibrosis (CF). In 2016 two updated nutritional consensus guidelines were published [1,2]. This review will explore some of the key points in the nutritional management of people with CF in the 21st Century. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Sarah Collins Tags: Review Source Type: research
Telemedicine is the way forward for the management of Cystic Fibrosis - the case in favour
Despite rapid changes in Information and Communication Technology, outpatient chronic disease management has changed very little in decades. However, the introduction of Telemedicine defined here as the use of remote patient-centred clinical services including the use of video and audio connections, telemonitoring and mobile applications provides us with an ideal opportunity to revolutionise care. Its appeal in cystic fibrosis (CF) care is clear offering better access to services, the opportunity of earlier intervention and improved monitoring and self management through virtual clinics and the use of real-time application...
Source: Paediatric Respiratory Reviews - March 16, 2017 Category: Respiratory Medicine Authors: Robert Ian Ketchell Tags: Review Source Type: research
Clostridium difficile and cystic fibrosis: management strategies and the role of faecal transplantation
This article provides an overview of the current management strategies for C.difficile in CF, including a description of the first faecal transplantation in this patient population. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 15, 2017 Category: Respiratory Medicine Authors: Roisin Dunwoody, Alan Steel, J. Landy, Nicholas Simmonds Tags: Review Source Type: research
The Royal Society of Medicine: The 30th Symposium: Cystic fibrosis in children and adults. Tuesday 15th November 2016
Despite rapid changes in Information and Communication Technology, outpatient chronic disease management has changed very little in decades. However, the introduction of Telemedicine defined here as the use of remote patient-centred clinical services including the use of video and audio connections, telemonitoring and mobile applications provides us with an ideal opportunity to revolutionise care. Its appeal in cystic fibrosis (CF) care is clear offering better access to services, the opportunity of earlier intervention and improved monitoring and self management through virtual clinics and the use of real-time application...
Source: Paediatric Respiratory Reviews - March 15, 2017 Category: Respiratory Medicine Authors: Robert Ian Ketchell Tags: Review Source Type: research
Telemedicine is the way forward for the management of Cystic Fibrosis- The case against
It is reasonable to suggest that Telemedicine could help in the management of chronic diseases by giving patients more flexibility to remain at home with opportunities to forward electronic data to healthcare professionals, reduce hospital emergency attendances and reduce overall costs. The reality, particularly in cystic fibrosis care, is this has not happened. There is concern that home-generated lung function data is of poor quality and virtually no studies show improved outcomes. The UK has a poor record in developing novel IT programmes and we need many more well designed clinical studies in Telemedicine before wading...
Source: Paediatric Respiratory Reviews - March 15, 2017 Category: Respiratory Medicine Authors: Warren Lenney Tags: Review Source Type: research
Nutritional management of cystic fibrosis an update for the 21st century
Nutritional management is an essential part of multidisciplinary care for infants, children and adults with cystic fibrosis (CF). In 2016 two updated nutritional consensus guidelines were published [1,2]. This review will explore some of the key points in the nutritional management of people with CF in the 21st Century. (Source: Paediatric Respiratory Reviews)
Source: Paediatric Respiratory Reviews - March 15, 2017 Category: Respiratory Medicine Authors: Sarah Collins Tags: Review Source Type: research
