Decision Regret following Treatment for Localized Breast Cancer: Is Regret Stable Over Time?
Conclusions. Decision regret following treatment was low and relatively stable over time for most women. Those facing an additional diagnosis of breast cancer following treatment may be at risk for elevated regret-related distress. (Source: Medical Decision Making)
Source: Medical Decision Making - May 5, 2015 Category: Health Management Authors: Martinez, K. A., Li, Y., Resnicow, K., Graff, J. J., Hamilton, A. S., Hawley, S. T. Tags: Original Articles Source Type: research

"I Don't Know" My Cancer Risk: Exploring Deficits in Cancer Knowledge and Information-Seeking Skills to Explain an Often-Overlooked Participant Response
Conclusions: People who report that they don’t know their colon cancer risk may have low cancer knowledge and reduced knowledge acquisition behaviors and skills. Health behavior research could benefit from including data concerning DKPR responses to risk perception questions, because individuals who respond in this way may require interventions to address potential cancer risk knowledge deficits. (Source: Medical Decision Making)
Source: Medical Decision Making - May 5, 2015 Category: Health Management Authors: Hay, J. L., Orom, H., Kiviniemi, M. T., Waters, E. A. Tags: Original Articles Source Type: research

Patients or Volunteers? The Impact of Motivation for Trial Participation on the Efficacy of Patient Decision Aids: A Secondary Analysis of a Cochrane Systematic Review
Conclusions. There is a tendency toward greater PtDA efficacy in trials in which participants initiate the pathway of care. Knowledge acquisition appears to be greater in trials where participants are predominantly patients rather than volunteers. (Source: Medical Decision Making)
Source: Medical Decision Making - May 5, 2015 Category: Health Management Authors: Brown, J. G., Joyce, K. E., Stacey, D., Thomson, R. G. Tags: Original Articles Source Type: research

The Neglected Topic: Presentation of Cost Information in Patient Decision Aids
Costs are an important component of patients’ decision making, but a comparatively underemphasized aspect of formal shared decision making. We hypothesized that decision aids also avoid discussion of costs, despite their being tools designed to facilitate shared decision making about patient-centered outcomes. We sought to define the frequency of cost-related information and identify the common modes of presenting cost and cost-related information in the 290 decision aids catalogued in the Ottawa Hospital Research Institute’s Decision Aid Library Inventory (DALI) system. We found that 56% (n = 161) of the decis...
Source: Medical Decision Making - May 5, 2015 Category: Health Management Authors: Blumenthal-Barby, J. S., Robinson, E., Cantor, S. B., Naik, A. D., Russell, H. V., Volk, R. J. Tags: Original Articles Source Type: research

Corrigendum: Doctors and Numbers: An Assessment of the Critical Risk Interpretation Test
Caverly TJ, Prochazka AV, Combs BP, Lucas BP, Mueller SR, Kutner JS, Binswanger I, Fagerlin A, McCormick J, Pfister S, Matlock DD. Doctors and numbers: An assessment of the critical risk interpretation test. Med Decis Making. 2015;35(4):512-524. (Original DOI: 10.1177/0272989X14558423) In the OnlineFirst version of this article, authors Jacqueline McCormick and Shirley Pfister were inadvertently left out of the author list. Their names have been included in the version of the article that appears in this issue. All authors have confirmed their contributions as authors. (Source: Medical Decision Making)
Source: Medical Decision Making - May 5, 2015 Category: Health Management Tags: Corrigendum Source Type: research

An Emerging Field of Research: Challenges in Pediatric Decision Making
The objectives of this article are to describe each of these challenges, to provide decision researchers with insight into pediatric decision making, and to establish a blueprint for future research that will contribute to high-quality pediatric medical decision making. Much work has been done to address gaps in pediatric decision science, but substantial work remains. Understanding and addressing the challenges that exist in pediatric decision making may foster medical decision-making science across the age spectrum. (Source: Medical Decision Making)
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Lipstein, E. A., Brinkman, W. B., Fiks, A. G., Hendrix, K. S., Kryworuchko, J., Miller, V. A., Prosser, L. A., Ungar, W. J., Fox, D. Tags: Review Source Type: research

Graphical Representation of Life Paths to Better Convey Results of Decision Models to Patients
The inclusion of patients’ perspectives in clinical practice has become an important matter for health professionals, in view of the increasing attention to patient-centered care. In this regard, this report illustrates a method for developing a visual aid that supports the physician in the process of informing patients about a critical decisional problem. In particular, we focused on interpretation of the results of decision trees embedding Markov models implemented with the commercial tool TreeAge Pro. Starting from patient-level simulations and exploiting some advanced functionalities of TreeAge Pro, we combined r...
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Rubrichi, S., Rognoni, C., Sacchi, L., Parimbelli, E., Napolitano, C., Mazzanti, A., Quaglini, S. Tags: Brief Report Source Type: research

Exploring the Response Shift Effect on the Quality of Life of Patients with Schizophrenia: An Application of the Random Forest Method
Conclusions. Our study identified differential RS reprioritization among patients with different clinical profiles. Further work is needed to determine whether RS should be interpreted as a measurement bias or as an effect integrated in a true change. (Source: Medical Decision Making)
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Boucekine, M., Boyer, L., Baumstarck, K., Millier, A., Ghattas, B., Auquier, P., Toumi, M. Tags: Original Articles Source Type: research

Catalog and Comparison of Societal Preferences (Utilities) for Lung Cancer Health States: Results from the Cancer Care Outcomes Research and Surveillance (CanCORS) Study
Conclusion. This study generated a catalog of community-weighted utilities applicable to societal-perspective cost-effectiveness analyses of lung cancer interventions and compared utilities based on the EQ-5D and SF-6D. Potential users of these scores should be aware of the limitations and think carefully about their use in specific studies. (Source: Medical Decision Making)
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Tramontano, A. C., Schrag, D. L., Malin, J. K., Miller, M. C., Weeks, J. C., Swan, J. S., McMahon, P. M. Tags: Original Articles Source Type: research

Development of an EORTC-8D Utility Algorithm for Sri Lanka
Conclusions. Preference weights for EORTC-8D health states for Sri Lanka have been derived: These will be very useful in economic evaluations of cancer-related interventions in a range of low- and middle-income countries. (Source: Medical Decision Making)
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Kularatna, S., Whitty, J. A., Johnson, N. W., Jayasinghe, R., Scuffham, P. A. Tags: Original Articles Source Type: research

Use of Bayesian Markov Chain Monte Carlo Methods to Estimate EQ-5D Utility Scores from EORTC QLQ Data in Myeloma for Use in Cost-Effectiveness Analysis
Conclusions. Mean EQ-5D utility weights can be estimated from the EORTC QLQ-C30/QLQ-MY20 for use in CEAs. Frequentist and Bayesian methods produced effectively identical models. However, the Bayesian models provide distributions describing the uncertainty surrounding the estimated utility values and are thus more suited informing analyses for probabilistic CEAs. (Source: Medical Decision Making)
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Kharroubi, S. A., Edlin, R., Meads, D., Browne, C., Brown, J., McCabe, C. Tags: Original Articles Source Type: research

A Framework for Estimating Health State Utility Values within a Discrete Choice Experiment: Modeling Risky Choices
Conclusion. Applying the correct model of risky choice is important whether a modified SG or a risk-based DCE is deployed. It is, however, possible to estimate a probability weighting function within a DCE and estimate "unbiased" utility values directly, which is not possible within a modified SG. We conclude by setting out the relative strengths and weaknesses of the 2 approaches in this context. (Source: Medical Decision Making)
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Robinson, A., Spencer, A., Moffatt, P. Tags: Original Articles Source Type: research

A Comparison of Methods for Converting DCE Values onto the Full Health-Dead QALY Scale
Conclusions. These new mapping and hybrid methods have a potentially useful role for producing values on the QALY scale from data elicited using ordinal techniques such as DCE for use in economic evaluation that makes best use of the desirable properties of each elicitation technique and elicited data. Further research is encouraged. (Source: Medical Decision Making)
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Rowen, D., Brazier, J., Van Hout, B. Tags: Original Articles Source Type: research

Quality of Life and Time to Death: Have the Health Gains of Preventive Interventions Been Underestimated?
This article explores the implications of the relation between quality of life (QoL) and time to death (TTD) for economic evaluations of preventive interventions. By using health survey data on QoL for the general Dutch population linked to the mortality registry, we quantify the magnitude of this relationship. For addressing specific features of the nonstandard QoL distribution such as boundness, skewness, and heteroscedasticity, we modeled QoL using a generalized additive model for location, scale, and shape (GAMLSS) with a β inflated outcome distribution. Our empirical results indicate that QoL decreases when appro...
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Gheorghe, M., Brouwer, W. B. F., van Baal, P. H. M. Tags: Original Articles Source Type: research

The Lead Time Tradeoff: The Case of Health States Better Than Dead
Conclusions. L-TTO produced higher utilities than TTO. Health problems are perceived as less severe if a lead period in full health is added upfront, implying that there are interactions between disjointed time periods. The advantages of this method have to be compared with the cost of modeling the interaction between periods. (Source: Medical Decision Making)
Source: Medical Decision Making - March 17, 2015 Category: Health Management Authors: Pinto-Prades, J. L., Rodriguez-Miguez, E. Tags: Original Articles Source Type: research