Relationships and the transition from spinal units to community for people with a first spinal cord injury: a New Zealand qualitative study
Spinal Cord Injury (SCI) can have substantial consequences for the injured person, and also their family/wh ānau (Māori word for extended family and social networks). Family members can adopt either formal or informal care roles when the person returns home, and people with high-level care requirements may also need non-family support workers. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 14, 2018 Category: Disability Authors: John Augustus Bourke, Joanne Louise Nunnerley, Sarah Derrett, Martin Sullivan Source Type: research
Comparing Estimates of Disability Prevalence Using Federal and International Disability Measures in National Surveillance
The National Health Interview Survey (NHIS) is changing the annual inclusion of standardized disability identifiers, reinvigorating the priority to examine existing disability question sets. These sets include questions developed by the United States (U.S.) National Center for Health Statistics in conjunction with the U.S. Census Bureau (the American Community Survey questions, ACS) and United Nations (the Washington Group Short Set questions, WGSS), respectively, that are policy relevant, comparable across populations, and short enough to be included in censuses and surveys across countries. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 12, 2018 Category: Disability Authors: Eric A. Lauer, Megan Henly, Rachel Coleman Source Type: research
30-day All-Cause Readmission Rates among a Cohort of Individuals with Rare Conditions
There is a need to examine health care utilization of individuals with the rare conditions muscular dystrophies, spina bifida, and fragile X syndrome. These individuals have a greater need for health care services, particularly inpatient admissions. Prior studies have not yet assessed 30-day all-cause readmission rates. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 12, 2018 Category: Disability Authors: Kevin J. Bennett, Joshua R. Mann, Lijing Ouyang Source Type: research
Health-related lifestyles and obesity among adults with and without disability in Australia: implication for mental health care
Numerous studies have reported people with disabilities are more likely to be obese and engaged in unhealthy lifestyles. Few studies explored the mechanism of health-related lifestyles and obesity among people with disabilities. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 28, 2018 Category: Disability Authors: Qin Zhou, Nicholas J. Glasgow, Wei Du Source Type: research
Evaluation of medication use and pharmacy services for visually impaired persons: perspectives from both visually impaired and community pharmacists
Visual impairment poses various challenges to individuals in taking their medications, but there are lack of studies on visually impaired population and their use of medications and pharmacy services. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 15, 2018 Category: Disability Authors: Bo Hee Lee, Yun Jeong Lee Source Type: research
Is there a standard procedure for assessing and providing assistive devices for people with neuro-disabling conditions in United Kingdom? A nation-wide survey
Assistive devices are currently provided to people with neuro-disabling conditions to promote or maintain independence in activities of daily living. However, it is unclear whether assessment procedures performed by health care professionals to guide the provision of assistive devices are standardized. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 10, 2018 Category: Disability Authors: L. Tedesco Triccas, B. McLening, W. Hendrie, G. Peryer Source Type: research
Pilot randomized trial of a telephone-delivered physical activity and weight management intervention for individuals with lower extremity amputation
RCT of weight management intervention in limb loss (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 9, 2018 Category: Disability Authors: Alyson J. Littman, Jodie K. Haselkorn, David E. Arterburn, Edward J. Boyko Source Type: research
Proximity to Extremely Hazardous Substances for People with Disabilities: A Case Study in Houston, Texas
While numerous studies have found socially disadvantaged groups such as minorities and low-income individuals to be disproportionately distributed with respect to various health hazards and pollution sources, previous research has not examined if people with disabilities reside near facilities where accidental releases of extremely hazardous substances are likely to occur. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 9, 2018 Category: Disability Authors: Jayajit Chakraborty Source Type: research
Racial and Ethnic Differences in Post-Stroke Subjective Cognitive Decline Exist
Racial and ethnic minorities consistently demonstrate disparate post-stroke outcomes. However, there is a paucity of literature related to whether this disparity exists specifically in post-stroke cognitive decline. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 9, 2018 Category: Disability Authors: Suzanne Perea Burns, Martina Mueller, Gayenell Magwood, Brandi M. White, Daniel Lackland, Charles Ellis Source Type: research
Assessing the Association between Mental Health and Disability Indicators among Adults Living in the United States
Over 40 million people in the U.S. experience mental illness and/or disabilities. However, there has been limited characterization of the relationship between mental health and disability in national surveys. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 9, 2018 Category: Disability Authors: Eric Andrew Lauer, Emily Lauer Source Type: research
The Development and Testing of a Module on Child Functioning for Identifying Children with Disabilities in Surveys
With the advent of the 2030 Agenda for Sustainable Development and the Sustainable Development Goals (SDGs) there is an urgent and pressing need not only for quality, cross-nationally comparable data on disability but also for the disaggregation of SDG indicators by disability status. The sustainable development goals represent one of the greatest opportunities afforded persons with disabilities to transform their daily lives in a positive way; to work towards inclusion and to become part of the society; to ensure that no one is left behind. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 1, 2018 Category: Disability Authors: Catalina Devandas Source Type: research
Young adults ’ adjustment to a recent diagnosis of multiple sclerosis: the role of identity satisfaction and self-efficacy
Although multiple sclerosis (MS) is often diagnosed during young adulthood (18-30 years), there is a lack of knowledge on the psychological adjustment to the illness among recently diagnosed young adult patients. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 1, 2018 Category: Disability Authors: Emanuela Calandri, Federica Graziano, Martina Borghi, Silvia Bonino Source Type: research
Do Electronic Health Records support the complex needs of people with disability?
Beginning in the 1990 ’s, a series of seminal reports by the Institute of Medicine (now National Academies of Sciences, Engineering, and Medicine) identified and discussed concerns about delivering quality medical care to all Americans (1-4). In particular, studies noted that people with chronic, usually multiple, cond itions may be at particular disadvantage in traversing the health care system, especially related to coordination of care (5). This of course has significant implications for people with disability. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 1, 2018 Category: Disability Authors: Margaret A. Turk, Suzanne McDermott Source Type: research
Disparities in physical access and healthcare utilization among adults with and without disabilities in south africa
In South Africa barriers to accessing health services by persons with a disability would appear to be exacerbated by the overburdened state of public healthcare. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 1, 2018 Category: Disability Authors: Reem Mutwali, Eleanor Ross Source Type: research
State of Research and Program Development for Adults with Hearing Loss
Hearing loss is common with a growing body of evidence of its global impact on our patient population. There remains much to learn about the mechanisms and epidemiologic, genetic, and other biobehavioral risk factors associated with hearing loss and its chronic disease sequelae, as well as how hearing healthcare, surveillance, and clinician-based training programs can best reduce the overall health burden among older individuals with hearing loss. This paper provides an update on the state of research for adults with hearing loss. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 1, 2018 Category: Disability Authors: Michael M. McKee, Frank Lin, Philip Zazove Source Type: research
