Do adolescents with cerebral palsy agree with their caregivers on their participation and quality of life?
It is important to determine the quality of life (QoL) and level of participation in children with Cerebral Palsy (CP). Previous research has used reports from adolescents or caregivers, but there is no evidence that caregivers' reports accurately reflect the experiences of the adolescents they are interested in. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 23, 2017 Category: Disability Authors: Sema B üğüşan, Aysu Kahraman, Bülent Elbasan, Akmer Mutlu Tags: Original Article Source Type: research
Examining the roles of self-compassion and resilience on health-related quality of life for individuals with Multiple Sclerosis
There are over 400,000 individuals living with Multiple Sclerosis (MS) in the U.S. These individuals experience unpredictable relapses of disabling conditions and poorer quality of life than the general population. Recent literature suggests self-compassion and resilience may improve wellness in this population. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 23, 2017 Category: Disability Authors: Mara Nery-Hurwit, Joonkoo Yun, Vicki Ebbeck Tags: Original Article Source Type: research
Experiences of persons with spinal cord injury undertaking a physical activity programme as part of the SCIPA ‘Full-On’ randomised controlled trial
For individuals with spinal cord injury the long term benefits of physical activity are well documented, however the majority of this population report inactivity secondary to participatory barriers. Research investigating physically intensive exercise programs for people with spinal cord injury is limited, with even less attention paid to the experience of the participants. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 23, 2017 Category: Disability Authors: Allyson Calder, Jo Nunnerley, Hilda Mulligan, Nordawama Ahmad Ali, Gemma Kensington, Tim McVicar, Olivia van Schaik Source Type: research
How do patients describe their disabilities? A coding system for categorizing patients' descriptions
To provide care that meets the values and preferences of patients with disabilities, health care providers need to understand patients' perceptions and understanding of their disability. No studies have explored patients' definitions of disability within the healthcare setting. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 23, 2017 Category: Disability Authors: Megan A. Morris, Jonathan Inselman, Julie M.G. Rogers, Colin Halverson, Megan Branda, Joan M. Griffin Source Type: research
Changing identity through sport: The Paralympic sport club experience among adolescents with mobility impairments
Adolescents with mobility impairments have fewer opportunities to challenge identity as an athlete through sport participation. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 23, 2017 Category: Disability Authors: Jennifer Piatt, Sangguk Kang, Mary Sara Wells, Shinichi Nagata, Jamie Hoffman, Jennifer Taylor Source Type: research
Do adolescents with cerebral palsy agree with their caregivers on their participation and quality of life?
It is important to determine the quality of life (QoL) and level of participation in children with Cerebral Palsy (CP). Previous research has used reports from adolescents or caregivers, but there is no evidence that caregivers' reports accurately reflect the experiences of the adolescents they are interested in. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 23, 2017 Category: Disability Authors: Sema B üğüşan, Aysu Kahraman, Bülent Elbasan, Akmer Mutlu Source Type: research
Examining the roles of self-compassion and resilience on health-related quality of life for individuals with Multiple Sclerosis
There are over 400,000 individuals living with Multiple Sclerosis (MS) in the U.S. These individuals experience unpredictable relapses of disabling conditions and poorer quality of life than the general population. Recent literature suggests self-compassion and resilience may improve wellness in this population. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 23, 2017 Category: Disability Authors: Mara Nery-Hurwit, Joonkoo Yun, Vicki Ebbeck Source Type: research
Body composition differences between adults with multiple sclerosis and BMI-matched controls without MS
Persons with multiple sclerosis (MS) have many health conditions related to overweight and obesity, but little is known about how body composition among those with MS compares to those without MS at the same weight. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 16, 2017 Category: Disability Authors: Brooks C. Wingo, Hui-Ju Young, Robert W. Motl Tags: Original Article Source Type: research
A quantitative assessment of the effectiveness of USDA's AgrAbility project
There is evidence that the combination of assistive technology and education increases ability to live and work independently, which in turn increases the quality of life (QOL) levels of adults with disabilities. No previously published treatment-comparison group intervention studies were found with adult farmers and ranchers with disabilities. Knowing how effective USDA's AgrAbility Project is at increasing this population's QOL and independent living and working (ILW) levels will reinforce and inform change in AgrAbility and will provide outcomes for stakeholders and public decision makers to better address agricultural ...
Source: Disability and Health Journal - October 16, 2017 Category: Disability Authors: Robert J. Fetsch, Philip Turk Tags: Original Article Source Type: research
Body composition differences between adults with multiple sclerosis and BMI-matched controls without MS
Persons with multiple sclerosis (MS) have many health conditions related to overweight and obesity, but little is known about how body composition among those with MS compares to those without MS at the same weight. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 16, 2017 Category: Disability Authors: Brooks C. Wingo, Hui-Ju Young, Robert W. Motl Source Type: research
A quantitative assessment of the effectiveness of USDA's AgrAbility project
There is evidence that the combination of assistive technology and education increases ability to live and work independently, which in turn increases the quality of life (QOL) levels of adults with disabilities. No previously published treatment-comparison group intervention studies were found with adult farmers and ranchers with disabilities. Knowing how effective USDA's AgrAbility Project is at increasing this population's QOL and independent living and working (ILW) levels will reinforce and inform change in AgrAbility and will provide outcomes for stakeholders and public decision makers to better address agricultural ...
Source: Disability and Health Journal - October 16, 2017 Category: Disability Authors: Robert J. Fetsch, Philip Turk Source Type: research
Sources of data about disability
Asking a good question is the foundation of all research. Obtaining sufficient data to answer the question in an accurate and unbiased way is essential to the field of disability and health. Finding good sources of data is especially relevant in our field, which has limited external funding and a small but growing cadre of investigators. Every once in a while, it is important to pause and ask ourselves if we are exploiting the resources that already exist, so that we can ask and answer as many questions as possible. (Source: Disability and Health Journal)
Source: Disability and Health Journal - October 1, 2017 Category: Disability Authors: Suzanne McDermott, Margaret A. Turk Tags: Editorial Source Type: research
Table of Contents
(Source: Disability and Health Journal)
Source: Disability and Health Journal - October 1, 2017 Category: Disability Source Type: research
Editorial Board
(Source: Disability and Health Journal)
Source: Disability and Health Journal - October 1, 2017 Category: Disability Source Type: research
Author Information
(Source: Disability and Health Journal)
Source: Disability and Health Journal - October 1, 2017 Category: Disability Source Type: research
