Extra costs of living with a disability: A systematized review and agenda for research
There has been a growing interest in disability and poverty on the international research and policy stages. Poverty assessments for persons with disabilities may be affected by the experience of extra costs associated with a disability. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 24, 2017 Category: Disability Authors: Sophie Mitra, Michael Palmer, Hoolda Kim, Daniel Mont, Nora Groce Source Type: research
Prevalence and causes of work disability among working-age U.S. adults, 2011 –2013, NHIS
Chronic conditions are among the major causes of work disability (WD), which is associated with lower employment, less economic activity, and greater dependence on social programs, while limiting access to the benefits of employment participation. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 24, 2017 Category: Disability Authors: K.A. Theis, D. Roblin, C.G. Helmick, R. Luo Source Type: research
People with multiple sclerosis report significantly worse symptoms and health related quality of life than the US general population as measured by PROMIS and NeuroQoL outcome measures
Individuals with multiple sclerosis (MS) report fatigue, pain, depression, cognitive difficulties, and other symptoms. It is often difficult to compare symptoms across studies and populations because scales used to measure individual symptoms or quality of life indicators (QOLI) use different metrics and often do not provide norms. PROMIS and Neuro-QOL measures, developed with modern psychometric methods, use a common metric and provide population norms. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 20, 2017 Category: Disability Authors: Dagmar Amtmann, Alyssa M. Bamer, Jiseon Kim, Hyewon Chung, Rana Salem Source Type: research
A Pilot Study of Trabajadora de Salud, a Lay Health Worker Intervention for Latinas/os with Traumatic Brain Injuries and their Caregivers
Latinas/os with traumatic brain injuries (TBIs) and their caregivers experience worse outcomes than others. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 20, 2017 Category: Disability Authors: Kristen F. Linton, Bum Jung Kim Source Type: research
Association between perceived discrimination and healthcare –seeking behavior in people with a disability
Experiences of discrimination lead people from vulnerable groups to avoid medical healthcare. It is yet to be known if such experiences affect people with disabilities (PWD) in the same manner. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 13, 2017 Category: Disability Authors: Miguel G. Moscoso-Porras, German F. Alvarado Source Type: research
“Canaries in the mine...” The Impact of Affordable Care Act Implementation on People with Disabilities: Evidence from Interviews with Disability Advocates
The Affordable Care Act (ACA) has many provisions that could improve health care for people with disabilities, including Medicaid expansion and the ability to purchase qualified health plans (QHPs). (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 13, 2017 Category: Disability Authors: Stephan Lindner, Ruth Rowland, Margaret Spurlock, Stan Dorn, Melinda Davis Source Type: research
Impact of enjoyment on physical activity and health among children with disabilities in schools
Enjoyment in school-based physical activity (PA) programs, such as recess or physical education (PE) may be important for promoting children ’s health, but there is a lack of evidence explaining how enjoyment affects health in children with disabilities. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 13, 2017 Category: Disability Authors: Jooyeon Jin, Joonkoo Yun, Stamatis Agiovlasitis Source Type: research
Healthcare provider perceptions of accessible exam tables in primary care: Implementation and benefits to patients with and without disabilities
Recent healthcare mandates require availability of accessible medical exam equipment, which may reduce barriers to care for patients with disabilities (PWD). However, more research is needed to explore healthcare provider views on implementation and routine use of accessible equipment. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 13, 2017 Category: Disability Authors: Allysha C. Maragh-Bass, Joan M. Griffin, Sean Phelan, Lila J. Finney Rutten, Megan A. Morris Source Type: research
Framing childhood mental disorders within the context of disability
The prevalence and severity of mental health conditions in childhood is on the rise. Despite the high rates of disability associated with pediatric mental health disorders, there is limited understanding of their disabling impacts in childhood. Using the international classification of functioning, health and disability (ICF) to provide the conceptual framework for disability related to mental health problems in childhood, the authors sought to provide a review of the changing nature of children's health and disability with a focus on mental health conditions. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 13, 2017 Category: Disability Authors: Amy J. Houtrow, Bonnie T. Zima Source Type: research
“They must understand we are people”: Pregnancy and maternity service use among signing Deaf women in Cape Town
Women with disabilities are at disproportionate risk for adverse pregnancy outcomes, however, there is limited information on their pregnancy histories. This mixed-methods study focuses on signing Deaf women whose access to health care may be compromised by language barriers related to their disability. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 6, 2017 Category: Disability Authors: Margaret W. Gichane, Marion Heap, Mayara Fontes, Leslie London Source Type: research
“We don't know. We've never had anybody like you before”: Barriers to perinatal care for women with physical disabilities
While more women with physical disabilities are becoming mothers, many encounter barriers to perinatal care and experience poor outcomes. Little is known about the perinatal care experiences and outcomes of women with physical disabilities in Canada. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 5, 2017 Category: Disability Authors: Lesley A. Tarasoff Source Type: research
The Sexuality of Young Women with Intellectual and Developmental Disabilities: A Neglected Focus in the American Foster Care System
This article explores sexuality education and sexual healthcare for female adolescents in foster care with ID/DD and recommends practice guidelines to support and prepare their emergent sexual development. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 5, 2017 Category: Disability Authors: Michelle S. Ballan, Molly Burke Freyer Source Type: research
Live birth, miscarriage, and abortion among U.S. women with and without disabilities
Prior studies have found that women with disabilities who give birth are more likely to have preterm deliveries and low birthweight infants. However, it is not known what proportion of pregnant women with disabilities experience live birth, versus miscarriage or abortion. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 5, 2017 Category: Disability Authors: Willi Horner-Johnson, Sheetal Kulkarni-Rajasekhara, Blair G. Darney, Mekhala Dissanayake, Aaron B. Caughey Source Type: research
Experiences and Unmet Needs of Women with Physical Disabilities For Pain Relief During Labor And Delivery
Childbirth is widely acknowledged as one of the most painful experiences most women will undergo in their lifetimes. Alleviating labor and delivery pain for women with physical disabilities can involve an additional level of complexity beyond that experienced by most women, but little research has explored their experiences. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 5, 2017 Category: Disability Authors: Linda Long-Bellil, Monika Mitra, Lisa I. Iezzoni, Suzanne C. Smeltzer, Lauren D. Smith Source Type: research
Sexual health in the community: Services for people with intellectual and developmental disabilities
Sexuality is a central dimension of overall health and well-being. People with intellectual and developmental disabilities (IDD) continue to experience disparities in healthcare, particularly regarding access to sexual health related services. Medicaid Home and Community-Based Services (HCBS) waivers are ideally situated to provide sexual and reproductive healthcare in accessible settings. (Source: Disability and Health Journal)
Source: Disability and Health Journal - April 5, 2017 Category: Disability Authors: Carli Friedman, Aleksa L. Owen Source Type: research
