Telemedicine for Facio-Scapulo-Humeral Muscular Dystrophy: A multidisciplinary approach to improve quality of life and reduce hospitalization rate?
Facio-Scapulo-Humeral Muscular Dystrophy (FSHD) is an autosomal dominant inherited disorder characterized by a variable and asymmetric involvement of facial, trunk, upper and lower extremity muscles. Although respiratory weakness is a relatively unknown feature of FSHD, it is not rare. Telemedicine has been used in a variety of health care fields, but only recently, with the advent of sophisticated technology, its interest among health professionals became evident, even in such diseases. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 21, 2017 Category: Disability Authors: Simona Portaro, Rocco Salvatore Calabr ò, Placido Bramanti, Giuseppe Silvestri, Michele Torrisi, Valeria Conti-Nibali, Santina Caliri, Christian Lunetta, Bernardo Alagna, Antonino Naro, Alessia Bramanti Tags: Brief Report Source Type: research
Reflections on the contributions of self-advocates to an interdisciplinary leadership development program for graduate students in health affairs
To advance equity and to enhance leadership skills, self-advocates with intellectual/developmental disabilities are now part of the cohort of trainees in the University of North Carolina LEND, which means that they fully participate in the Interdisciplinary Leadership Development Program, a collaboration among programs in public health, social work, and LEND, which meets monthly. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 15, 2017 Category: Disability Authors: Angela Rosenberg, Deborah Zuver, McCafferty Kermon, Claudia Fernandez, Lewis H. Margolis Tags: Original Article Source Type: research
Reflections on the contributions of self-advocates to an interdisciplinary leadership development program for graduate students in health affairs
To advance equity and to enhance leadership skills, self-advocates with intellectual/developmental disabilities are now part of the cohort of trainees in the XXXX (LEND), which means that they fully participate in the Interdisciplinary Leadership Development Program, a collaboration among programs in public health, social work, and LEND, which meets monthly. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 15, 2017 Category: Disability Authors: Angela Rosenberg, Deborah Zuver, McCafferty Kermon, Claudia Fernandez, Lewis Margolis Source Type: research
Meaningful components of a community-based exercise program for individuals with disabilities: A qualitative study
Enhanced methods of evaluation are necessary to identify community-based exercise interventions that promote physical activity and improve health and participation for individuals with disabilities. The heterogeneity of the populations served, interventions implemented, and outcome measures used remains a barrier to effectively evaluate programs and generate evidence to inform best practice. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 12, 2017 Category: Disability Authors: Sarah L. Adam, Kerri A. Morgan Tags: Brief Report Source Type: research
Accessibility and usability of parks and playgrounds
Public parks and playgrounds are an environment for leisure activity, which all generations can enjoy at low or no financial cost. Evaluating the accessibility and usability of parks and playgrounds is crucial because their design, environment (natural and built) and safety could restrict participation of persons with disabilities. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 8, 2017 Category: Disability Authors: Meredith A. Perry, Hemakumar Devan, Harry Fitzgerald, Karen Han, Li-Ting Liu, Jack Rouse Tags: Original Article Source Type: research
Post-acute care for children with special health care needs
Almost all studies of post-acute care (PAC) focus on older persons, frequently those suffering from chronic health problems. Some research is available on PAC for the pediatric population in general. However, very few studies focus on PAC services for children with special health care needs (SHCN). (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 8, 2017 Category: Disability Authors: Charles D. Phillips, Chau Truong, Hye Chung Kum, Obioma Nwaiwu, Robert Ohsfeldt Source Type: research
Accessibility and usability of parks and playgrounds
Public parks and playgrounds are an environment for leisure activity, which all generations can enjoy at low or no financial cost. Evaluating the accessibility and usability of parks and playgrounds is crucial because their design, environment (natural and built) and safety could restrict participation of persons with disabilities. (Source: Disability and Health Journal)
Source: Disability and Health Journal - September 8, 2017 Category: Disability Authors: Meredith A. Perry, Hemakumar Devan, Harry Fitzgerald, Karen Han, Li-Ting Liu, Jack Rouse Source Type: research
Accelerometer-assessed light-intensity physical activity and mortality among those with mobility limitations
Emerging research demonstrates that light-intensity physical activity is favorably associated with numerous health outcomes among the general population, even independent of high-intensity physical activity. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 29, 2017 Category: Disability Authors: Emily Frith, Paul D. Loprinzi Tags: Brief Report Source Type: research
Inclusive design in architectural practice: Experiential learning of disability in architectural education
The built environment can facilitate or impede an individual's ability to participate in society. This is particularly so for people with disability. Architects are well placed to be advocates for design that enhances societal equality. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 29, 2017 Category: Disability Authors: Kerry Mulligan, Allyson Calder, Hilda Mulligan Tags: Original Article Source Type: research
Accelerometer-assessed light-intensity physical activity and mortality among those with mobility limitations
Emerging research demonstrates that light-intensity physical activity is favorably associated with numerous health outcomes among the general population, even independent of high-intensity physical activity. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 29, 2017 Category: Disability Authors: Emily Frith, Paul D. Loprinzi Source Type: research
Cognitive and affective empathy among adolescent siblings of children with a physical disability
This study is a continuation of research on possible psychosocial benefits resulting from exposure to sibling with disability present in the family system. The issue seems to be especially important in Poland because of growing number of children with a disability and inconsistent results of previously performed studies. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 29, 2017 Category: Disability Authors: Lidia Perenc, Ryszard P ęczkowski Source Type: research
Inclusive design in architectural practice: Experiential learning of disability in architectural education
The built environment can facilitate or impede an individual's ability to participate in society. This is particularly so for people with disability. Architects are well placed to be advocates for design that enhances societal equality. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 29, 2017 Category: Disability Authors: Kerry Mulligan, Allyson Calder, Hilda Mulligan Source Type: research
Long-term housing subsidies and SSI/SSDI income: Creating health-promoting contexts for families experiencing housing instability with disabilities
Though disability and housing instability are discussed separately in public health literature, few studies address families at their intersection. As a result, little is known about families who experience both homelessness and disability, how many receive disability benefits like SSI and SSDI, or the influence of those benefits on health-promoting outcomes like housing stability and self-sufficiency. Moreover, no previous research compares the ability of different housing and service interventions to increase disability benefit access. (Source: Disability and Health Journal)
Source: Disability and Health Journal - August 22, 2017 Category: Disability Authors: Zachary S. Glendening, Erin McCauley, Marybeth Shinn, Scott R. Brown Tags: Original Article Source Type: research
