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Editorial
Publication date: June 2018Source: Alter, Volume 12, Issue 2Author(s): Anne Marcellini, Laurent Paccaud (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Disability–Culture–Society: Strengths and weaknesses of a cultural model of dis/ability
Publication date: June 2018Source: Alter, Volume 12, Issue 2Author(s): Anne WaldschmidtAbstractDrawing on the approach of disability studies this article claims the relevance of culture as an analytical category for the study of disability. It starts with differentiating several fields of research that focus on disability; then it explores the notion of culture. Next, it appreciates the social model of disability, sketches its history and resulting debates. It also provides an overview on earlier attempts of conceptualizing a cultural studies approach to disability. Further, it offers an analytical perspective that uses th...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Trading autonomy for services: Perceptions of users and providers of services for disabled people in Iceland
Publication date: Available online 7 June 2018Source: AlterAuthor(s): Laufey Löve, Rannveig Traustadóttir, James Gordon RiceAbstractThis paper adopts a critical theory perspective, aligning itself with a growing body of critical disability research in Iceland. It draws attention to the importance of ensuring that the rights of disabled people to autonomy and independence enshrined in the CRPD are respected and upheld in the implementation of all service models, including “traditional” services. The paper draws on 22 interviews with disabled people and service providers in Iceland. Both groups reveal that they perceiv...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

La prévention du VIH chez les personnes sourdes au Burundi : état des lieux et perspectives
This article presents the various aspects of HIV/AIDS care for deaf people in Burundi to assess social inequalities in health especially the access to preventive care. Our work is particularly focused on identifying the factors that hinder the access of deaf people to HIV/AIDS care in developing countries such as Burundi. The study is based on a literature review and a qualitative study with stakeholders and beneficiaries. The literature review was conducted on reports or other official documents that were made by various stakeholders involved in the fight against HIV/AIDS. A qualitative approach was made of interviews wit...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Culture-theory-disability: encounters between disability studies and cultural studies. Disability studies: body – power – difference series, A. Waldschmidt, H. Berressem, M. Ingwersen (Eds.). Transcript Verlag, Bielefeld (2017), 280 pp., ISBN: 9783837625332
Publication date: Available online 18 June 2018Source: AlterAuthor(s): Angela Wegscheider (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Culture-theory-disability: encounters between disability studies and cultural studies. Disability studies: body  – power – difference series, A. Waldschmidt, H. Berressem, M. Ingwersen (Eds.). Transcript Verlag, Bielefeld (2017), ISBN: 9783837625332
Publication date: Available online 18 June 2018 Source:Alter Author(s): Angela Wegscheider (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - June 19, 2018 Category: Disability Source Type: research

La pr évention du VIH chez les personnes sourdes au Burundi : état des lieux et perspectives
This article presents the various aspects of HIV/AIDS care for deaf people in Burundi to assess social inequalities in health especially the access to preventive care. Our work is particularly focused on identifying the factors that hinder the access of deaf people to HIV/AIDS care in developing countries such as Burundi. The study is based on a literature review and a qualitative study with stakeholders and beneficiaries. The literature review was conducted on reports or other official documents that were made by various stakeholders involved in the fight against HIV/AIDS. A qualitative approach was made of interviews wit...
Source: ALTER - European Journal of Disability Research - June 13, 2018 Category: Disability Source Type: research

Trading autonomy for services: Perceptions of users and providers of services for disabled people in Iceland
Publication date: Available online 7 June 2018 Source:Alter Author(s): Laufey Löve, Rannveig Traustadóttir, James Gordon Rice This paper adopts a critical theory perspective, aligning itself with a growing body of critical disability research in Iceland. It draws attention to the importance of ensuring that the rights of disabled people to autonomy and independence enshrined in the CRPD are respected and upheld in the implementation of all service models, including “traditional” services. The paper draws on 22 interviews with disabled people and service providers in Iceland. Both groups reveal that they perceive...
Source: ALTER - European Journal of Disability Research - June 8, 2018 Category: Disability Source Type: research

Le concept de responsivit é : l’accessibilité comme moyen, la participation comme fin
Publication date: Available online 27 April 2018 Source:Alter Author(s): Charlotte Lemoine En dépit de l’obligation légale, nombreux sont les bâtiments et les services non adaptés aux besoins des personnes en situation de handicap. Cette publication présente l’analyse des difficultés rencontrées lors de l’adaptation d’un bâtiment neuf et d’un bâtiment ancien aux besoins des personnes en situation de handicap. En impliquant une association de personnes en situation de handicap, l’étude révèle que la notion d’accessibilité, qui se résume souvent à l’application de normes, ne permet pas, à e...
Source: ALTER - European Journal of Disability Research - June 7, 2018 Category: Disability Source Type: research

Removing obstacles to equal recognition for persons with intellectual disability: Taking exception to the way things are
Publication date: Available online 1 May 2018 Source:Alter Author(s): Anne-Marie Callus Article 12 of the Convention on the Rights of Persons with Disabilities challenges the misconception that persons with intellectual disability, among others, are not capable to take decisions for themselves. This paper first considers the right to equal recognition before the law within the light of the General Comment on Article 12 issued by the Committee on the Rights of Persons with Disabilities which emphasises the need to move away completely from substitute decision-making and to promote supported decision-making. The importanc...
Source: ALTER - European Journal of Disability Research - June 7, 2018 Category: Disability Source Type: research

Considering the concepts of the lived body and the lifeworld as tools for better understanding the meaning of assistive technology in everyday life
Publication date: Available online 1 June 2018 Source:Alter Author(s): Inger C. Berndtsson The lives of individuals with physical or perceptual impairments are often filled with various objects that support daily activities and are generally referred to as assistive technologies. These are usually understood as objects relating to individuals’ functional capabilities. In this article, assistive technology is instead interpreted and explored in its subjective and social meaning by drawing on continental philosophy within a framework of lifeworld phenomenology and hermeneutics, putting forward existence, embodiment and ...
Source: ALTER - European Journal of Disability Research - June 7, 2018 Category: Disability Source Type: research

Étapes et enjeux de la construction du handicap au sein des politiques sociales françaises : 1939–2005
Publication date: June 2018 Source:Alter, Volume 12, Issue 2 Author(s): Michel Chauvière En choisissant quelques outils de la sociologie cognitive de l’action publique, tels que les référentiels, l’auteur analyse quatre binômes paraissant avoir plus ou moins opéré dans le domaine du handicap depuis la dernière guerre mondiale : rééducation/inadaptation ; intégration/handicap ; insertion/exclusion ; inclusion/situation (de handicap). Pour chacun, et à partir de l’exemple de l’enfance, il cherche à préciser les origines et les médiateurs, les enjeux et les objectifs, les critères et modalités c...
Source: ALTER - European Journal of Disability Research - June 7, 2018 Category: Disability Source Type: research

The extraordinary development of sport for people with dis/abilities. What does it all mean?
Publication date: June 2018 Source:Alter, Volume 12, Issue 2 Author(s): Anne Marcellini Physical and sports practices represent a dimension of the social history of people with impairments that has become progressively visible, yet still little studied. Through the reading of socio-historical and sociological research on these practices, the author defends her contention that the development, recognition and social visibility of these individuals having been obtained by the sphere of “disability sport” are based on the convergence of two “tool boxes” for innovation: the organization of athlete classification and...
Source: ALTER - European Journal of Disability Research - June 7, 2018 Category: Disability Source Type: research

Disability art and culture: A model for imaginative ways to integrate the community
This article suggests a turn to disabled people's formations of disability culture, as expressed in the arts, for new ways to imagine community integration. As I look to the arts, I examine not only the representations disabled artists create, but the art-making and arts-presenting processes themselves. I illustrate this argument by analyzing innovations in the integration of people with disabilities in professional concert dance in two American companies: AXIS Dance Company and Kinetic Light. (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - June 7, 2018 Category: Disability Source Type: research

Disability –Culture–Society: Strengths and weaknesses of a cultural model of dis/ability
Publication date: June 2018 Source:Alter, Volume 12, Issue 2 Author(s): Anne Waldschmidt Drawing on the approach of disability studies this article claims the relevance of culture as an analytical category for the study of disability. It starts with differentiating several fields of research that focus on disability; then it explores the notion of culture. Next, it appreciates the social model of disability, sketches its history and resulting debates. It also provides an overview on earlier attempts of conceptualizing a cultural studies approach to disability. Further, it offers an analytical perspective that uses the c...
Source: ALTER - European Journal of Disability Research - June 7, 2018 Category: Disability Source Type: research