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Le droit à l’inclusion. Droits et identité dans les récits de vie des personnes handicapées aux États-Unis, D.M. Engel, F.W. Munger. éditions EHESS (2017), 288 pp
Publication date: January–March 2018Source: Alter, Volume 12, Issue 1Author(s): Louis Bertrand (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Autismes et socialisations alimentaires : particularités alimentaires des enfants avec un trouble du spectre de l’autisme et ajustements parentaux pour y faire face
Publication date: January–March 2018Source: Alter, Volume 12, Issue 1Author(s): Amandine RochedyRésuméCette thèse vise à apporter des éléments de compréhension sociologique des particularités alimentaires des enfants présentant des troubles autistiques. Ce sujet est encore peu étudié dans la littérature, alors même que les particularités alimentaires et les comportements problématiques à table associés aux troubles autistiques ont des conséquences sur la santé et la vie sociale de l’enfant ainsi que sur celles de l’entourage familial. À travers l’analyse d’entretiens avec des experts et des pa...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

La posture de l’entre-deux des professionnels des secteurs médico-social et sanitaire et la coordination des parcours des jeunes en situation de handicap
Publication date: January–March 2018Source: Alter, Volume 12, Issue 1Author(s): Nicolas Guirimand, Laurence Thouroude, Alain LeplègeRésuméLa loi de 2002 rénovant l’action sociale et médico-sociale oblige les acteurs du secteur médico-social à placer les parents au centre du projet éducatif et de toutes les décisions concernant l’enfant en situation de handicap. Cette recherche porte un nouvel éclairage sur les transformations des postures et des représentations des professionnels, qui coopèrent dans ce contexte de manière plus ou moins forte à la construction des parcours de vie des jeunes. Elle inaugu...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Quelle expérience pour les élèves présentant des troubles du comportement et orientés vers une scolarité spécialisée ? Une comparaison France–Wallonie
This article proposes a comparison between the mainstream and specialised social and educational experiences, based on having observed and shared the daily routine of the latter group for an extended period of time. Given that this particular group is cared for differently, its members do not have the same experience of their alienation. If the French and Walloons strive to reach a set of norms in order to shed any labels or stigmata and to delegitimize their specialised education, Belgian youth seems to at least partially accept and interact, socially with its deviant peers, while the French fail to bring them into their ...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Editorial Board
Publication date: January–March 2018Source: Alter, Volume 12, Issue 1Author(s): (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Special needs education and inclusion in Germany and Sweden
This article analyzes both the Swedish and the German school systems, focusing on the implementation of inclusive education. The structure of the two systems, the way the categorization processes work, the financing of inclusion as well as teaching models for the realization of inclusion within the classroom are explored. The analysis is built on steering documents and research articles. Although a systematic comparison is not possible, the analysis reveals a different understanding of how to support children with learning difficulties due to the traditions of the two school systems. The different ways of implementing incl...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Le concept de responsivité : l’accessibilité comme moyen, la participation comme fin
Publication date: Available online 27 April 2018Source: AlterAuthor(s): Charlotte LemoineRésuméEn dépit de l’obligation légale, nombreux sont les bâtiments et les services non adaptés aux besoins des personnes en situation de handicap. Cette publication présente l’analyse des difficultés rencontrées lors de l’adaptation d’un bâtiment neuf et d’un bâtiment ancien aux besoins des personnes en situation de handicap. En impliquant une association de personnes en situation de handicap, l’étude révèle que la notion d’accessibilité, qui se résume souvent à l’application de normes, ne permet pas, ...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Removing obstacles to equal recognition for persons with intellectual disability: Taking exception to the way things are
Publication date: Available online 1 May 2018Source: AlterAuthor(s): Anne-Marie CallusAbstractArticle 12 of the Convention on the Rights of Persons with Disabilities challenges the misconception that persons with intellectual disability, among others, are not capable to take decisions for themselves. This paper first considers the right to equal recognition before the law within the light of the General Comment on Article 12 issued by the Committee on the Rights of Persons with Disabilities which emphasises the need to move away completely from substitute decision-making and to promote supported decision-making. The import...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Disability art and culture: A model for imaginative ways to integrate the community
This article suggests a turn to disabled people's formations of disability culture, as expressed in the arts, for new ways to imagine community integration. As I look to the arts, I examine not only the representations disabled artists create, but the art-making and arts-presenting processes themselves. I illustrate this argument by analyzing innovations in the integration of people with disabilities in professional concert dance in two American companies: AXIS Dance Company and Kinetic Light.RésuméCet article rend compte d’un changement dans la formation des personnes handicapées à la « culture du handicap », te...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Étapes et enjeux de la construction du handicap au sein des politiques sociales françaises : 1939–2005
Publication date: June 2018Source: Alter, Volume 12, Issue 2Author(s): Michel ChauvièreRésuméEn choisissant quelques outils de la sociologie cognitive de l’action publique, tels que les référentiels, l’auteur analyse quatre binômes paraissant avoir plus ou moins opéré dans le domaine du handicap depuis la dernière guerre mondiale : rééducation/inadaptation ; intégration/handicap ; insertion/exclusion ; inclusion/situation (de handicap). Pour chacun, et à partir de l’exemple de l’enfance, il cherche à préciser les origines et les médiateurs, les enjeux et les objectifs, les critères et modalité...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Considering the concepts of the lived body and the lifeworld as tools for better understanding the meaning of assistive technology in everyday life
Publication date: Available online 1 June 2018Source: AlterAuthor(s): Inger C. BerndtssonAbstractThe lives of individuals with physical or perceptual impairments are often filled with various objects that support daily activities and are generally referred to as assistive technologies. These are usually understood as objects relating to individuals’ functional capabilities. In this article, assistive technology is instead interpreted and explored in its subjective and social meaning by drawing on continental philosophy within a framework of lifeworld phenomenology and hermeneutics, putting forward existence, embodiment a...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Retour sur texte
Publication date: June 2018Source: Alter, Volume 12, Issue 2Author(s): André Grossiord, Henri-Jacques Stiker (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

The extraordinary development of sport for people with dis/abilities. What does it all mean?
Publication date: June 2018Source: Alter, Volume 12, Issue 2Author(s): Anne MarcelliniAbstractPhysical and sports practices represent a dimension of the social history of people with impairments that has become progressively visible, yet still little studied. Through the reading of socio-historical and sociological research on these practices, the author defends her contention that the development, recognition and social visibility of these individuals having been obtained by the sphere of “disability sport” are based on the convergence of two “tool boxes” for innovation: the organization of athlete classification ...
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Editorial Board
Publication date: June 2018Source: Alter, Volume 12, Issue 2Author(s): (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research

Éditorial
Publication date: June 2018Source: Alter, Volume 12, Issue 2Author(s): Anne Marcellini, Laurent Paccaud (Source: ALTER - European Journal of Disability Research)
Source: ALTER - European Journal of Disability Research - July 5, 2018 Category: Disability Source Type: research