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Evaluation of a Resource for Adolescents and Young Adults Diagnosed With Cancer
Conclusions: The usefulness and high levels of satisfaction with the book, including the qualitative feedback, demonstrate the potential benefit of the Now What . . . ? books for AYA patients diagnosed with cancer. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - August 10, 2015 Category: Nursing Authors: McDonald, F. E. J., Patterson, P. Tags: Original Manuscripts Source Type: research

Treatment of Anxiety and Depression in Adolescents and Young Adults With Cancer
This article seeks to provide recommendations for pediatric oncology clinicians on how to identify and address anxiety and depression in AYAs and how to partner with mental health professionals in their treatment, and it suggests directions for future research. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - August 10, 2015 Category: Nursing Authors: Lauer, A. L. Tags: Original Manuscripts Source Type: research

Establishing Feasibility of Early Palliative Care Consultation in Pediatric Hematopoietic Stem Cell Transplantation
Children and adolescents undergoing hematopoietic stem cell transplantation (HSCT) encounter a number of distressing physical symptoms and existential distress but may not be afforded timely access to palliative care services to help ameliorate the distress. This feasibility study investigated the acceptability and outcomes of early palliative care consultation to promote comfort in this population. A longitudinal, descriptive cohort design examined both provider willingness to refer and willingness of families to receive palliative care interventions as well as satisfaction. Feasibility was demonstrated by 100% referral o...
Source: Journal of Pediatric Oncology Nursing - August 10, 2015 Category: Nursing Authors: Lafond, D. A., Kelly, K. P., Hinds, P. S., Sill, A., Michael, M. Tags: Original Manuscripts Source Type: research

Parents' Experience With Their Child's Cancer Diagnosis: Do Hopefulness, Family Functioning, and Perceptions of Care Matter?
Conclusions: By recognizing families who continue to struggle with the diagnosis, nurses may be better equipped to approach families and evaluate their needs, including coping and adaptation. Asking parents about their experience can also lead to more appropriate and timely care and referral and allows nurses to provide care that engenders hopefulness. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - June 11, 2015 Category: Nursing Authors: Popp, J. M., Conway, M., Pantaleao, A. Tags: Reasearch Source Type: research

Novice Nurses' Experiences With Palliative and End-of-Life Communication
Health care providers recognize that delivery of effective communication with family members of children with life-threatening illnesses is essential to palliative and end-of-life care (PC/EOL). Parents value the presence of nurses during PC/EOL of their dying child. It is vital that nurses, regardless of their years of work experience, are competent and feel comfortable engaging family members of dying children in PC/EOL discussions. This qualitative-descriptive study used focus groups to explore the PC/EOL communication perspectives of 14 novice pediatric oncology nurses (eg, with less than 1 year of experience). Audio-t...
Source: Journal of Pediatric Oncology Nursing - June 11, 2015 Category: Nursing Authors: Hendricks-Ferguson, V. L., Sawin, K. J., Montgomery, K., Dupree, C., Phillips-Salimi, C. R., Carr, B., Haase, J. E. Tags: Reasearch Source Type: research

Rasch Analysis of the Arabic Language Version of the Functional Disability Inventory
It is important for the responsive and effective treatment of pediatric cancer patients that functional disability is successfully measured, but no measures of functional disability have been validated for use with Arabic-speaking children and adolescents. The purpose of this study was to examine the psychometric characteristics of the first Arabic translation of the Functional Disability Inventory (FDI). A methodological study limited to the secondary analysis of functional disability data on 62 pediatric patients in Lebanon using the rating scale model and WINSTEPS Rasch analysis software was used. Disordered responses t...
Source: Journal of Pediatric Oncology Nursing - June 11, 2015 Category: Nursing Authors: Madi, D., Clinton, M. Tags: Original Manuscripts Source Type: research

Meshing Gears: Mothers and Their Adolescents Returning to Their Social Life After Cancer Treatment in Taiwan
Adolescents with cancer and their parents have to deal with the challenge of returning to their pre-diagnosis social life. The purpose of this study was to describe the subjective lived experiences of Taiwanese mothers and their adolescents who had completed cancer treatment and were returning to school. Eight Taiwanese mother-adolescent dyads were recruited by purposive sampling. Core themes were extracted using phenomenological method and dyadic analysis. Findings were metaphorically captured by the theme "meshing gears." The mothers and their adolescents were initially like 2 gears spinning alone, side by side due to ex...
Source: Journal of Pediatric Oncology Nursing - June 11, 2015 Category: Nursing Authors: Chen, C.-M., Hsu, B.-H., Chen, Y.-C., Cheng, S.-N., Liaw, J.-J. Tags: Original Manuscripts Source Type: research

Effective Prevention and Management of Tumor Lysis Syndrome in Children With Cancer: The Important Contributions of Pediatric Oncology Nurses
The practice guidelines aimed to identify appropriate nursing management for the prevention and treatment of tumor lysis syndrome, in line with the current evidence-based medical guidelines. Using a systematic approach, 15 relevant articles were identified for the review. The evaluation of patient risk factors for tumor lysis syndrome and the appropriate medical and nursing assessment were identified. The treatment algorithms for the prevention of tumor lysis syndrome from both the medical and nursing perspectives have been established. In particular, the guidelines highlight the importance of pediatric oncology nurses in ...
Source: Journal of Pediatric Oncology Nursing - June 11, 2015 Category: Nursing Authors: Li, H. C. W., Chung, O. K. J., Tam, C. J., Chiu, S. Y. Tags: Original Manuscripts Source Type: research

Perceptions of School Among Childhood Cancer Survivors: A Comparison With Peers
The aim was to investigate how childhood cancer survivors perceive school and whether their perceptions differ from corresponding descriptions of peers. Survivors (n = 48) currently attending educational institutions (median 5 years post diagnosis; now aged 12-21 years) from a national cohort of school-age children were compared with matched peers (n = 47). Data were collected through interviews and analyzed qualitatively and quantitatively. The results indicate that survivors and peers perceive school similarly; almost 90% described high well-being in school and indicated that they were motivated and received no additiona...
Source: Journal of Pediatric Oncology Nursing - June 11, 2015 Category: Nursing Authors: Winterling, J., Jervaeus, A., af Sandeberg, M., Johansson, E., Wettergren, L. Tags: Original Manuscripts Source Type: research

Improving Adherence to Evidence-Based Guidelines for Chemotherapy-Induced Nausea and Vomiting
Chemotherapy-induced nausea and vomiting (CINV) is one of the most common side effects experienced by patients receiving chemotherapy. Antiemetic medications can be used to effectively prevent and treat CINV. Choice and dose of antiemetics are often based on provider preference rather than evidenced-based information. CINV antiemetic prescribing guidelines provide an evidence-based approach and standardization for the management of this common side effect. The purpose of this quality improvement project was to improve adherence to CINV antiemetic guidelines. Despite distribution of CINV guidelines, there was inconsistent c...
Source: Journal of Pediatric Oncology Nursing - June 11, 2015 Category: Nursing Authors: Wood, M., Hall, L., Hockenberry, M., Borinstein, S. Tags: Original Manuscripts Source Type: research

"Being Mindful": Does it Help Adolescents and Young Adults Who Have Completed Cancer Treatment?
Conclusions: The current findings suggest the potential for a broader application of mindfulness to more fully assist young people throughout the whole pathway of cancer care. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - June 11, 2015 Category: Nursing Authors: Patterson, P., McDonald, F. E. J. Tags: Original Manuscripts Source Type: research

Dexrazoxane: A Cardioprotectant for Pediatric Cancer Patients Receiving Anthracyclines
Anthracyclines are a fundamental part of many childhood cancer therapy regimens; however, the discovery of anthracycline-induced cardiotoxicity has raised concern and led to dose limitation. The cardiotoxicity of anthracyclines has resulted in an increased demand for cardioprotectants. Dexrazoxane is the only cardioprotectant that has proven efficacy in reducing cardiotoxic effects when given prior to the administration of anthracyclines. Currently, it is still considered an "off-label" use due to a paucity of data in the literature on dexrazoxane administration in children. Nevertheless, through evaluation of the availabl...
Source: Journal of Pediatric Oncology Nursing - May 18, 2015 Category: Nursing Authors: Wu, V. Tags: Review Article Source Type: research

The Experience of Japanese Adolescents and Young Adults After Losing Siblings to Childhood Cancer: Three Types of Narratives
The aim of this study was to describe Japanese adolescents’ and young adults’ experiences after losing siblings to childhood cancer. A conceptual framework of the transition and analysis based on narrative method were adopted from qualitative data from 6 Japanese adolescents and young adults who had lost their siblings to childhood cancer. It was revealed that the participants’ psychological experience after the sibling’s death was directed by their perceptions of their mothers’ responses to bereavement. We also found that the psychological distance between participants and their mothers could...
Source: Journal of Pediatric Oncology Nursing - May 18, 2015 Category: Nursing Authors: Kamibeppu, K., Sato, I., Hoshi, Y. Tags: Original Manuscripts Source Type: research

Friendship Relations From the Perspective of Children With Experience of Cancer Treatment: A Focus Group Study With a Salutogenic Approach
Friendships are significant to child development and health but diseases such as cancer can interrupt the contact with friends. The purpose of this study was to describe perceptions of friendship from the perspective of children undergoing cancer treatment, in order to build knowledge that can be used in a health promotion intervention for these children. Fifteen children between 8 and 12 years of age participated in focus groups, where a mixture of informative and creative techniques were used. The focus group discussions were analyzed using qualitative content analysis. The analysis resulted in three generic categories, ...
Source: Journal of Pediatric Oncology Nursing - May 18, 2015 Category: Nursing Authors: Einberg, E.-L., Svedberg, P., Enskar, K., Nygren, J. M. Tags: Original Manuscripts Source Type: research

Constructing the Meaning of Survivor With Former Pediatric Brain Tumor Patients
This study also used semistructured interviews with participants who also completed reflective journals, which were focused on the survivor concept. Data were analyzed through coding strategies and constant comparative methods. Findings present 4 major themes of process: (a) reviewing the illness experience, (b) qualifying as a survivor, (c) thinking positive, and (d) being changed. These themes are important to consider in the construction, interpretation, and understanding of how the majority of this population do not identify with the current social use of the term survivor. Clearly, there is a need for a clearer unders...
Source: Journal of Pediatric Oncology Nursing - May 18, 2015 Category: Nursing Authors: Zwiers, A., Campbell, C., Evans, M., Kirkwood, K. Tags: Original Manuscripts Source Type: research