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Childhood Cancer Camps: Their Role in Adults Surviving Childhood Cancers Lives
This study investigates the role that childhood cancer camps continue to play in the lives of adults surviving childhood cancers (ASCCs). Specifically, the purpose of this study is to understand the roles these camps play in enhancing ASCCs’ psychosocial and emotional well-being and access to information. Twenty-three ASCCs participated in this study. Illness narratives were used to understand ASCCs’ camp experiences. Three themes emerged from the data analysis to reflect ASCCs’ experiences: (1) normalcy, (2) meaningful camp experiences, and (3) access to information. Results show that in the years follow...
Source: Journal of Pediatric Oncology Nursing - February 3, 2014 Category: Nursing Authors: Beckwitt, A. E. Tags: Articles Source Type: research

Management of Febrile Neutropenia in Pediatric Oncology Across Queensland, Australia: A Retrospective Review on Variations Between Locations
This study aimed to compare the management of FN in children in different locations across Queensland, Australia. FN episodes were identified from 4 settings: tertiary oncology outpatient department (OD), tertiary emergency department (ED), regional ward (RW), and regional emergency department (RED) between July 2009 and June 2011. Retrospective data were extracted from medical records, collated, and then analyzed to identify differences in outcomes attributable to location. Sixty-one episodes of FN were reviewed: 5 cases from OD, 28 from ED, 19 from RW, and 5 from RED. Statistically significant differences occurred in the...
Source: Journal of Pediatric Oncology Nursing - February 3, 2014 Category: Nursing Authors: Cox, A., Bradford, N. Tags: Articles Source Type: research

Parent Caregiver Self-Efficacy and Child Reactions to Pediatric Cancer Treatment Procedures
This study examined how parents’ sense of self-efficacy specific to caregiving for their child during cancer treatment procedures affected children’s distress and cooperation during procedures. Potential correlates of caregiver self-efficacy (ie, demographics, child clinical characteristics, parent dispositional attributes, and social support) were also examined. Participants were 119 children undergoing cancer treatment procedures and their parents. Parents’ self-efficacy about 6 procedure-specific caregiver tasks was measured. Parents, children, nurses, and observers rated child distress and parents, nu...
Source: Journal of Pediatric Oncology Nursing - February 3, 2014 Category: Nursing Authors: Peterson, A. M., Harper, F. W. K., Albrecht, T. L., Taub, J. W., Orom, H., Phipps, S., Penner, L. A. Tags: Articles Source Type: research

Fatigue in Adolescents and Young Adults With Sickle Cell Disease: Biological and Behavioral Correlates and Health-Related Quality of Life
This descriptive, correlational study examined fatigue and potential biological and behavioral correlates in adolescents and young adults with sickle cell disease. Sixty adolescents and young adults with sickle cell disease completed the Brief Fatigue Inventory, Multidimensional Fatigue Symptom Inventory–Short Form, Patient Reported Outcomes Measurement Information System (PROMIS) fatigue short form and measures of pain, sleep quality, anxiety, depressive mood, stress, disease severity, and quality of life. Blood samples were obtained for hemoglobin and cytokines. Fatigue scores were mostly moderate in severity. Fati...
Source: Journal of Pediatric Oncology Nursing - February 3, 2014 Category: Nursing Authors: Ameringer, S., Elswick, R. K., Smith, W. Tags: Articles Source Type: research

Results of a Nurse-Led Intervention: Connecting Pediatric Cancer Patients From the Hospital to the School Using Videoconferencing Technologies
The objectives of this study were to assess the feasibility and perceived academic/psychosocial outcomes of a pilot program using videoconferencing facilities to connect children with cancer to their home school. Eight parents, three patients, and five teachers (n = 16) participated in semistructured interviews evaluating the efficacy/feasibility of this program. Results were analyzed using the qualitative framework of Miles and Huberman. Parents reported that videoconferencing provided the family with a sense of normalcy and connection to the outside world (4/8), often boosting patients’ mood (6/8). Further benefits...
Source: Journal of Pediatric Oncology Nursing - December 26, 2013 Category: Nursing Authors: Ellis, S. J., Drew, D., Wakefield, C. E., Saikal, S. L., Punch, D., Cohn, R. J. Tags: Articles Source Type: research

Effectiveness of Integrative Modalities for Pain and Anxiety in Children and Adolescents With Cancer: A Systematic Review
Throughout the trajectory of the cancer experience, children and adolescents will likely face pain and anxiety in a variety of circumstances. Integrative therapies may be used either alone or as an adjunct to standard analgesics. Children are often very receptive to integrative therapies such as music, art, guided imagery, massage, therapeutic play, distraction, and other modalities. The effect of integrative modalities on pain and anxiety in children with cancer has not been systematically examined across the entire cancer experience. An in-depth search of PubMed, CINAHL, MedLine, PsychInfo, and Web of Science, integrativ...
Source: Journal of Pediatric Oncology Nursing - December 26, 2013 Category: Nursing Authors: Thrane, S. Tags: Articles Source Type: research

Growing Up With Cancer: Accommodating the Effects of Cancer Into Young People's Social Lives
Adolescence and young adulthood are transitional periods of rapid and dramatic personal change. Few events can cause as unpredictable and challenging alterations to this process as the onset of a serious illness, such as cancer. Although we know much about the physical and psychological consequences of having cancer at this time, we know little about the effect of cancer on young people’s relationships. We conducted interviews with 15 women and 12 men aged between 16 and 29 years, who had survived cancer. Our findings demonstrate that the experience of cancer and how it affects relationships is complex. It arrests yo...
Source: Journal of Pediatric Oncology Nursing - December 26, 2013 Category: Nursing Authors: Lewis, P., Jordens, C. F. C., Mooney-Somers, J., Smith, K., Kerridge, I. Tags: Articles Source Type: research

Impact of Social Support on Bereaved Siblings' Anxiety: A Nationwide Follow-Up
Conclusion: Bereaved siblings had a greater probability to report self-assessed anxiety if they perceived that their need for social support was not satisfied prior to and following death. Information from both nurses and other health care professionals to families about the impact of social support may contribute to lessen the siblings’ risk of anxiety. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - December 26, 2013 Category: Nursing Authors: Eilertsen, M.-E. B., Eilegard, A., Steineck, G., Nyberg, T., Kreicbergs, U. Tags: Articles Source Type: research

Living an Everyday Life Through a Child's Cancer Trajectory: Families' Lived Experiences 7 Years After Diagnosis
This article describes one part of an inductive and longitudinal research project that included 17 families. Four families whose child was diagnosed with cancer 7 years previously were interviewed using a hermeneutical phenomenological approach. The families lived experience was described in one essential theme, "Living an everyday life through the child’s cancer trajectory," further illuminated in 3 related themes: "Leaving the disease behind yet feeling its presence," "Being the same yet always different," and "Feeling stronger yet vulnerable." The results suggest that family members feel vulnerable even if a long ...
Source: Journal of Pediatric Oncology Nursing - December 26, 2013 Category: Nursing Authors: Sundler, A. J., Hallstrom, I., Hammarlund, K., Bjork, M. Tags: Articles Source Type: research

Helping the Helpers: Mindfulness Training for Burnout in Pediatric Oncology--A Pilot Program
Conclusions. Burnout is a major problem in pediatric oncology staff. Mindfulness practices can be taught in the workplace and may be a useful component of a multidimensional strategy to reduce burnout in this population. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - October 7, 2013 Category: Nursing Authors: Moody, K., Kramer, D., Santizo, R. O., Magro, L., Wyshogrod, D., Ambrosio, J., Castillo, C., Lieberman, R., Stein, J. Tags: Articles Source Type: research

Using Photovoice to Explore the Unique Life Perspectives of Youth With Sickle Cell Disease: A Pilot Study
Conclusion: This study demonstrated that (a) a camp can provide a beneficial social outlet with peers with SCD, (b) children/adolescents with SCD are able to manage their complex symptoms at a young age, and (c) photovoice is a useful methodology for children/adolescents with SCD and potentially other chronic illnesses. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - October 7, 2013 Category: Nursing Authors: Stegenga, K., Burks, L. M. Tags: Articles Source Type: research

The Frontline Clinical Manager Identifying Direct Reports' Level of Practice
Patricia Benner applied the Dreyfus Model of Skill Acquisition to describe and interpret skill acquisition and clinical judgment in nursing practice. Operational definitions for the 5 levels of her original Novice to Expert Theory were used by the study participants in a large Midwestern pediatric hospital to self-identify their level of practice. The frontline clinical managers of these direct care registered nurses (RNs) used the same tool to rate their direct reports. The aim of this portion of a larger study was to determine if the clinical manager’s perception of their direct reports was the same as that of the ...
Source: Journal of Pediatric Oncology Nursing - October 7, 2013 Category: Nursing Authors: Longo, M. A., Roussel, L., Pennington, S. L., Hoying, C. Tags: Articles Source Type: research

Screening for Pain in Pediatric Brain Tumor Survivors Using the Pain Thermometer
This study compared a single-item screening measure, the Pain Thermometer (PT), with a more in-depth measure, the Brief Pain Survey (BPS), in a cohort of childhood brain tumor survivors. Ninety-nine survivors (aged 13-32 years) with a median time from diagnosis of 9.9 years (range = 2-18 years) completed the 2 instruments. Thirty-seven survivors (37.4%) were identified on the BPS as having clinically significant pain, but the PT was not found to be an accurate tool for identifying these pain cases. Application of receiver operating characteristic curve analysis of PT ratings against BPS criterion indicated overall concorda...
Source: Journal of Pediatric Oncology Nursing - October 7, 2013 Category: Nursing Authors: Chordas, C., Manley, P., Merport Modest, A., Chen, B., Liptak, C., Recklitis, C. J. Tags: Articles Source Type: research

Pain Assessment During a Vaso-Occlusive Crisis in the Pediatric and Adolescent Patient: Rethinking Practice
We present a paradigm of pain assessment during a vaso-occlusive crisis in children and adolescents based on the Pain Assessment as a Social Transaction model. Using this model, the assessment of pain severity in sickle cell disease is uniquely highlighted as comprising at least 4 key factors: the limitations of current pain assessment tools, the existence of acute pain of various origins and the emergence and coexistence of chronic pain, the prevalence of cognitive deficits, and the sociocultural dynamics in America. Improved tools for pain assessment and targeted practitioner education are warranted. (Source: Journal of ...
Source: Journal of Pediatric Oncology Nursing - October 7, 2013 Category: Nursing Authors: Schiavenato, M., Alvarez, O. Tags: Articles Source Type: research

Ages and Stages Questionnaires-3 Developmental Screening of Infants and Young Children With Cancer
The Ages and Stages Questionnaires–3® (ASQ-3) for developmental screening in our young oncology patients was pilot tested in children 4 to 48 months of age with newly diagnosed cancer. Subjects were screened within 28 days of diagnosis (baseline), at 6 and 12 months. Twenty-six of 30 enrolled parents (87%) completed all 3 screens. Screens were completed by parents within 15 minutes. ASQ-3 screening identified unsuspected developmental delays as follows: 7 at baseline, 4 at 6 months, and 3 at 12 months. ASQ-3 developmental screening is feasible, identifies early developmental delays in young children with cancer, ...
Source: Journal of Pediatric Oncology Nursing - October 7, 2013 Category: Nursing Authors: Quigg, T. C., Mahajerin, A., Sullivan, P. D., Pradhan, K., Bauer, N. S. Tags: Articles Source Type: research