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Supporting Pediatric Cancer Survivors With Neurocognitive Late Effects: A Model of Care
This article provides an overview of the SLP model of care and discusses parent-perceived quality and program effectiveness. In general, parents attributed SLP involvement to improved academic performance, home-school communication, and school-level understanding of unique student cognitive profiles and learning needs. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - May 18, 2015 Category: Nursing Authors: Northman, L., Ross, S., Morris, M., Tarquini, S. Tags: Original Manuscripts Source Type: research

Remembering Nancy Kline
(Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - May 18, 2015 Category: Nursing Authors: Stegenga, K. A., Stutzer, C. Tags: Guest Editorial Source Type: research

Best Practice for Fever Management With Intravenous Acetaminophen in Pediatric Oncology
This article aims to review and apply current data in evaluating whether or not children with cancer can safely benefit from its use. This article provides clinical indications, safety and efficacy profiles, and nursing implications along with recommendations for future study regarding the use of IV acetaminophen in this population. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - April 13, 2015 Category: Nursing Authors: Dokko, D. Tags: Review Article Source Type: research

Attitudes and Perceptions of Parents and Staff Toward the Rapid Hydration Protocol Prior to Chemotherapy in Children
This study aims to assess parent satisfaction and the attitudes and perceptions of oncology staff with regard to the rapid hydration protocol. Patients who received both standard and rapid hydration were identified, and their parents were asked to rate the child’s experiences on a 5-point Likert-type scale. Oncology staff were interviewed and common themes were identified. Parents perceived their child’s experience with rapid hydration to be the same or better than with the standard hydration. Themes uncovered through staff interviews indicate an overall positive perception of rapid hydration, but there are som...
Source: Journal of Pediatric Oncology Nursing - April 13, 2015 Category: Nursing Authors: Samonis, R., Hilliard, J., Bains, T., Hollis, K., O'Shaughnessy, E., Vaillancourt, R., Johnston, D. Tags: Research Articles Source Type: research

Medical and Psychosocial Associates of Nonadherence in Adolescents With Cancer
The current study examined adherence to medication regimens among adolescents with cancer by applying the Pediatric Self-Management Model. Adolescents and their parents reported on adherence to medication, reasons for nonadherence, and patient-, family-, and community-level psychosocial variables. Adolescent- and parent-reported adherence were significantly correlated, with about half of the sample reporting perfect adherence. The majority reported "just forgot" as the most common reason for missed medication. Patient-, family-, and community-level variables were examined as predictors of adherence. With regard to individu...
Source: Journal of Pediatric Oncology Nursing - April 13, 2015 Category: Nursing Authors: Hullmann, S. E., Brumley, L. D., Schwartz, L. A. Tags: Research Articles Source Type: research

Harnessing Technology to Enhance Delivery of Clinical Trials Education for Nurses: A Report From the Children's Oncology Group
The challenge of providing high-quality, relevant, time-sensitive continuing nursing education is particularly salient in pediatric oncology, where nurses commonly deliver complex protocol-based care to children enrolled on clinical trials. The Children’s Oncology Group Nursing Discipline developed Portable Document Format multimedia modules to make a broad range of educational content regarding pediatric oncology clinical trials available to its membership. This time-sensitive educational content is accessible to nurses via asynchronous online education. To assess awareness of and user experience with the multimedia...
Source: Journal of Pediatric Oncology Nursing - April 13, 2015 Category: Nursing Authors: Haugen, M., Gasber, E., Leonard, M., Landier, W. Tags: Original Manuscripts Source Type: research

Psychometric Properties of the Oncology Module of the KINDL Scale: First Results
Conclusion. The Turkish version of the KINDL Oncology module showed good reliability and questionable validity in this study. However, further research on other language versions of the module is needed for its global use. (Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - April 13, 2015 Category: Nursing Authors: Ergin, D., Eser, E., Kantar, M., Ekti Genc, R. Tags: Original Manuscripts Source Type: research

Usability Testing of an Online Self-Management Program for Adolescents With Cancer
The objective of this study was to explore the usability of a bilingual (English and French) Internet-based self-management program for adolescents with cancer and their parents and refine the Internet program. A qualitative study design with semistructured, audio-taped interviews and observation was undertaken with 4 iterative cycles. A purposive sample of English-speaking and French-speaking adolescents with cancer and one of their parents/caregivers was recruited. Adolescents and parents provided similar feedback on how to improve the usability of the Internet program. Most changes to the website were completed after th...
Source: Journal of Pediatric Oncology Nursing - April 13, 2015 Category: Nursing Authors: Stinson, J., Gupta, A., Dupuis, F., Dick, B., Laverdiere, C., LeMay, S., Sung, L., Dettmer, E., Gomer, S., Lober, J., Chan, C. Y. Tags: Original Manuscripts Source Type: research

Enough Is Enough
(Source: Journal of Pediatric Oncology Nursing)
Source: Journal of Pediatric Oncology Nursing - April 13, 2015 Category: Nursing Authors: Lulloff, A. J., Vessey, J. A. Tags: Guest Editorial Source Type: research

High Validity and Reliability of the PedsQL™ Multidimensional Fatigue Scale for Brazilian Children With Cancer
Among the main factors that affect patients’ quality of life, fatigue is a significant symptom experienced by children during treatment. Despite the high incidence, there has been no validated scale to evaluate fatigue in children with cancer in Brazil. The purpose of this study was to examine the psychometric properties of the PedsQL™ Multidimensional Fatigue Scale, using self-reports of Brazilian children, 8 to 18 years of age, and proxy reports. A cross-sectional method was used to collect data from 216 subjects over an 18-month period. Reliability ranged from .70 to .90 except for sleep/rest fatigue, self-r...
Source: Journal of Pediatric Oncology Nursing - December 5, 2014 Category: Nursing Authors: Nascimento, L. C., Nunes, M. D. R., Rocha, E. L., Bomfim, E. O., Floria-Santos, M., dos Santos, C. B., dos Santos, D. M. d. S. S., de Lima, R. A. G. Tags: Articles Source Type: research

Investigation of the Effects of Planned Mouth Care Education on the Degree of Oral Mucositis in Pediatric Oncology Patients
This study was designed as a longitudinal study with the purpose of investigating the effects of providing mouth care education to pediatric oncology patients on the degree of oral mucositis. The study sample included 16 children aged 8 to 18 years who were hospitalized in the pediatric oncology and hematology clinics at a university hospital. The results revealed a statistically significant difference between the degree of mucositis before and after the education given to children undergoing chemotherapy (P < .05). The median pain values were significantly different before and after the education (P < .05) as well. ...
Source: Journal of Pediatric Oncology Nursing - December 5, 2014 Category: Nursing Authors: Yavuz, B., Bal Yılmaz, H. Tags: Articles Source Type: research

Using Colors to Assess Pain in Toddlers: Validation of "The Rainbow Pain Scale"--A Proof-of-Principle Study
Self-report, when available, is considered the ideal way to assess the intensity and other aspects of pain in children. However, self-report scales are often too complex cognitively for preschool-aged children (2-4 years). The Rainbow Pain Scale (RPS) was developed to provide individualized self-reported pain ratings for preschool-aged children. The psychometric properties of this scale have yet to be evaluated. To ensure validity, our first step was to compare RPS scores to a well-validated scale in older children who were able to self-report their pain. The purpose of this study was to assess the concurrent validity of t...
Source: Journal of Pediatric Oncology Nursing - December 5, 2014 Category: Nursing Authors: Mahon, P., Holsti, L., Siden, H., Strahlendorf, C., Turnham, L., Giaschi, D. Tags: Articles Source Type: research

Contributions of Advanced Practice Nurses With a DNP Degree During Palliative and End-of-Life Care of Children With Cancer
The doctorate in nursing practice (DNP) degree is recommended as the terminal degree for advanced practice nurses by 2015. Improvement in the quality of palliative and end-of-life care for children with cancer is recognized as a health care priority. The purpose of this article is to describe: (a) how the American Association of Colleges of Nursing’s 8 core elements and competencies can be used by DNP-advanced practice nurses in pediatric oncology settings and (b) the DNP-advanced practice nurses’ leadership role to advocate translation of evidence in the care of pediatric oncology patients and to promote inter...
Source: Journal of Pediatric Oncology Nursing - December 5, 2014 Category: Nursing Authors: Hendricks-Ferguson, V. L., Akard, T. F., Madden, J. R., Peters-Herron, A., Levy, R. Tags: Articles Source Type: research

Creating a Tenuous Balance: Siblings' Experience of a Brother's or Sister's Childhood Cancer Diagnosis
More than 14,000 children are diagnosed with cancer in the United States each year. Prolonged, intensive treatment protocols disrupt the entire family, including siblings. Here, we employed grounded theory methodology to examine the experiences of 30 nonbereaved adolescent siblings of children receiving cancer treatment. The central organizing theme of the emergent data is "creating a tenuous balance." Contributing themes include (a) knowing something is seriously wrong, (b) figuring out the meaning of cancer, (c) adapting to changes in personal and family life, and (d) handling emotional reactions to cancer. Overall, find...
Source: Journal of Pediatric Oncology Nursing - December 5, 2014 Category: Nursing Authors: Long, K. A., Marsland, A. L., Wright, A., Hinds, P. Tags: Articles Source Type: research

Perception of Pain Among Pediatric Patients With Sickle Cell Pain Crisis
Pain related to vasoocclusion is the most common reason for emergency department visits and hospital stays among pediatric patients with sickle cell disease. Using a prospective descriptive design, patients hospitalized with sickle cell pain were asked to complete the Adolescent Pediatric Pain Tool on each day of their hospital stay, providing data on the location, intensity, and quality of their pain. Data for 82 hospital stays were collected from 40 African American study participants. Mean age was 14.8 years, and mean length of stay (LOS) was 5.1 days. Mean LOS for 8 to 12 year olds (3.23 days; n = 22) was shorter than ...
Source: Journal of Pediatric Oncology Nursing - December 5, 2014 Category: Nursing Authors: Fosdal, M. B. Tags: Articles Source Type: research