Preparing researchers for patient and public involvement in scientific research: Development of a hands ‐on learning approach through action research
ConclusionBuilding a community of PPI practice through action research facilitates the development of a coaching programme that fosters social learning, empowerment and the development of a shared identity concerning PPI. The role and responsibilities of senior researchers should be distinguished from those of junior researchers. (Source: Health Expectations)
Source: Health Expectations - February 1, 2018 Category: Health Management Authors: Maarten Wit, Anna Beurskens, Barbara Pi škur, Esther Stoffers, Albine Moser Tags: ORIGINAL RESEARCH PAPER Source Type: research
Diagnosis of a severe congenital anomaly: A qualitative analysis of parental decision making and the implications for healthcare encounters
ConclusionsThis study provides important insights into how parents‐to‐be make decisions following diagnosis or suspicion of a severe congenital anomaly. The impact of these on healthcare encounters is discussed, alongside recommendations for clinical practice. (Source: Health Expectations)
Source: Health Expectations - February 1, 2018 Category: Health Management Authors: Robyn Lotto, Lucy K. Smith, Natalie Armstrong Tags: ORIGINAL RESEARCH PAPER Source Type: research
Online information for parents caring for their premature baby at home: A focus group study and systematic web search
ConclusionParents reported the need for information and support post‐discharge from hospital. This was not always available to them, and relevant online resources were of varying quality. Listening to parents needs and preferences can facilitate the development of high‐quality, evidence‐based, parent‐centred resources. (Source: Health Expectations)
Source: Health Expectations - January 30, 2018 Category: Health Management Authors: Fiona Alderdice, Phyl Gargan, Emma McCall, Linda Franck Tags: ORIGINAL RESEARCH PAPER Source Type: research
Online information for parents caring for their premature baby at home: A focus group study and systematic web search
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - January 30, 2018 Category: Health Management Source Type: research
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Health Expectations, Ahead of Print. (Source: Health Expectations)
Source: Health Expectations - January 30, 2018 Category: Health Management Source Type: research
Self ‐responsibility, rationing and treatment decision making – managing moral narratives alongside fiscal reality in the obesity surgery clinic
In this study, we used in‐depth interviews and clinic observations to investigate clinicians’ (n = 11) and patients’ (n = 22) experiences of the rationing of obesity surgery and to examine how broader cultural assumptions around personal responsibility for health emerged in the context of clinical interactions.
ResultsPatients and clinicians worked within similar frameworks when it came to self‐responsibility for health and the appropriateness of providing publicly‐funded weight loss surgery. Issues around personal accountability dominated consultations, and patients were expected to provide narratives of the...
Source: Health Expectations - January 19, 2018 Category: Health Management Authors: Amanda Owen ‐Smith, Joanna Coast, Jenny L. Donovan Tags: ORIGINAL RESEARCH PAPER Source Type: research
Self ‐responsibility, rationing and treatment decision making – managing moral narratives alongside fiscal reality in the obesity surgery clinic
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - January 19, 2018 Category: Health Management Source Type: research
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Health Expectations, Ahead of Print. (Source: Health Expectations)
Source: Health Expectations - January 19, 2018 Category: Health Management Source Type: research
Patient, carer and public involvement in major system change in acute stroke services: The construction of value
DiscussionInvolvement was seen to have strategic and intrinsic value. Its strategic value lay in facilitating the implementation of a model of care that aimed to deliver evidence‐based care to all; its intrinsic value was in the idea of citizen participation in change processes as an end in its own right. The concept of value, rather than impact, may provide greater traction in analyses of contemporary involvement practices. (Source: Health Expectations)
Source: Health Expectations - January 18, 2018 Category: Health Management Authors: Christopher McKevitt, Angus I.G. Ramsay, Catherine Perry, Simon J. Turner, Ruth Boaden, Charles D.A. Wolfe, Naomi J. Fulop Tags: ORIGINAL RESEARCH PAPER Source Type: research
Patient, carer and public involvement in major system change in acute stroke services: The construction of value
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - January 18, 2018 Category: Health Management Source Type: research
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Health Expectations, Ahead of Print. (Source: Health Expectations)
Source: Health Expectations - January 18, 2018 Category: Health Management Source Type: research
Employing the arts for knowledge production and translation: Visualizing new possibilities for women speaking up about safety concerns in maternity
ConclusionThis project has demonstrated the benefits of arts‐science collaborations for meaningful co‐production and effective translation of research evidence. (Source: Health Expectations)
Source: Health Expectations - January 17, 2018 Category: Health Management Authors: Nicola Mackintosh, Jane Sandall, Claire Collison, Wendy Carter, James Harris Tags: ORIGINAL RESEARCH PAPER Source Type: research
Employing the arts for knowledge production and translation: Visualizing new possibilities for women speaking up about safety concerns in maternity
Health Expectations, EarlyView. (Source: Health Expectations)
Source: Health Expectations - January 17, 2018 Category: Health Management Source Type: research
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Health Expectations, Ahead of Print. (Source: Health Expectations)
Source: Health Expectations - January 17, 2018 Category: Health Management Source Type: research
Attitudes towards mental health, mental health research and digital interventions by young adults with type 1 diabetes: A qualitative analysis
Discussion and conclusionFindings provide valuable insights into the complex dynamics of engaging young adults with type 1 diabetes in mental health studies. Interviewees provided practical suggestions to assist investigation and delivery of psychosocial interventions for this vulnerable group. (Source: Health Expectations)
Source: Health Expectations - January 10, 2018 Category: Health Management Authors: Janine Clarke, Judy Proudfoot, Veronica Vatiliotis, Charles Verge, Deborah J. Holmes ‐Walker, Lesley Campbell, Kay Wilhelm, Catherine Moravac, Pillaveetil S. Indu, Madeleine Bridgett Tags: ORIGINAL RESEARCH PAPER Source Type: research
