The PU ‐PROM: A patient‐reported outcome measure for peptic ulcer disease
ConclusionsThe peptic ulcer PRO measure had good reliability, validity, DIF and feasibility, and can be used as a clinical research evaluation instrument with patients with peptic ulcers to assess their condition focus on treatment. This measure may also be applied in other health areas, especially in clinical trials of new drugs, and may be helpful in clinical decision making. (Source: Health Expectations)
Source: Health Expectations - June 21, 2017 Category: Health Management Authors: Na Liu, Jing Lv, Jinchun Liu, Yanbo Zhang Tags: ORIGINAL RESEARCH PAPER Source Type: research
Understanding the influences and impact of patient ‐clinician communication in cancer care
ConclusionsTransparent linkages between key conceptual domains and the influence of methodological approaches on observed patient outcomes are needed to advance our understanding of how and when patient‐clinician communication influences patient outcomes. The proposed conceptual model and classification framework can be used to facilitate the translation of empirical evidence into practice and to identify critical gaps in knowledge regarding how and when patient‐clinician communication impacts care outcomes in the context of cancer and health care more broadly. (Source: Health Expectations)
Source: Health Expectations - June 21, 2017 Category: Health Management Authors: Jennifer Elston Lafata, Laura A. Shay, Jodi M. Winship Tags: ORIGINAL RESEARCH PAPER Source Type: research
Views of general practice staff about the use of a patient ‐oriented treatment decision aid in shared decision making for patients with type 2 diabetes: A mixed‐methods study
ConclusionsThe DA was considered useful by practice staff to support SDM. A positive view towards SDM was a facilitator, whereas experiencing a conflict with the content of the DA was a barrier for making use of the DA. (Source: Health Expectations)
Source: Health Expectations - June 21, 2017 Category: Health Management Authors: Anita Wildeboer, Esther du Pon, Jan Schuling, Flora M. Haaijer ‐Ruskamp, Petra Denig Tags: ORIGINAL RESEARCH PAPER Source Type: research
How does the side ‐effect information in patient information leaflets influence peoples’ side‐effect expectations? A cross‐sectional national survey of 18‐ to 65‐year‐olds in England
DiscussionThe current use of verbal descriptors to communicate side‐effect risk in PILs leads to high side‐effect expectations. These expectations could contribute to nocebo‐induced medication side‐effects experienced by patients. Additional work is required to identify ways to improve the way risk information is conveyed in PILs. (Source: Health Expectations)
Source: Health Expectations - June 15, 2017 Category: Health Management Authors: Rebecca K. Webster, John Weinman, G. James Rubin Tags: ORIGINAL RESEARCH PAPER Source Type: research
Priorities for methodological research on patient and public involvement in clinical trials: A modified Delphi process
ConclusionsThe prioritized methodological research topics indicate important areas of uncertainty about PPI in trials. Addressing these uncertainties will be critical to enhancing PPI. Our findings should be used in the planning and funding of PPI in clinical trials to help focus research efforts and minimize waste. (Source: Health Expectations)
Source: Health Expectations - June 15, 2017 Category: Health Management Authors: Anna Kearney, Paula Williamson, Bridget Young, Heather Bagley, Carrol Gamble, Simon Denegri, Delia Muir, Natalie A. Simon, Stephen Thomas, Jim T. Elliot, Helen Bulbeck, Joanna C. Crocker, Claire Planner, Claire Vale, Mike Clarke, Tim Sprosen, Kerry Woolfa Tags: ORIGINAL RESEARCH PAPER Source Type: research
Feedback preferences of patients, professionals and health insurers in integrated head and neck cancer care
ConclusionsThis exploratory study shows how feedback preferences differ between stakeholders. Therefore, tailored reports are recommended. Using this information, effects of audit and feedback can be improved by adapting the feedback format and contents to the preferences of stakeholders. (Source: Health Expectations)
Source: Health Expectations - June 15, 2017 Category: Health Management Authors: Lydia F. J. Overveld, Robert P. Takes, Thomas W. Vijn, Joz é C. C. Braspenning, Jan P. Boer, John J. A. Brouns, Rolf J. Bun, Boukje A. C. Dijk, Judith A. W. F. Dortmans, Emilie A. C. Dronkers, Robert J. J. Es, Frank J. P. Hoebers, Arvid Kropveld, Johanne Tags: ORIGINAL RESEARCH PAPER Source Type: research
The role of experiential knowledge within attitudes towards genetic carrier screening: A comparison of people with and without experience of spinal muscular atrophy
ConclusionThis study underscores the significance of prior experience with the condition to screening attitudes. It highlights the need for accurate and high‐quality educational resources to support any future carrier screening programmes, that particularly in relation to rare genetic disorders like SMA that will fall outside the remit of everyday experience for the majority of the population. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Felicity K. Boardman, Philip J. Young, Oliver Warren, Frances E. Griffiths Tags: ORIGINAL RESEARCH PAPER Source Type: research
Service user involvement in the coproduction of a mental health nursing metric: The Therapeutic Engagement Questionnaire
This article describes the involvement and views of service users in the development of a nursing metric—the Therapeutic Engagement Questionnaire. It presents their role in the three stages of development: generation, statement reduction and authentication. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Mary Chambers, Susan McAndrew, Fiona Nolan, Ben Thomas, Paul Watts, Xenya Kantaris Tags: ORIGINAL RESEARCH PAPER Source Type: research
Decision making in NICE single technological appraisals: How does NICE incorporate patient perspectives?
ConclusionsAlthough NICE has attempted to adopt an approach flexible to patients and carers through formal decision‐making arrangements that incorporate patient views, nonetheless, the processes of the STAs can in fact undermine the very evidence collected from patient representatives. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Ferhana Hashem, Michael W. Calnan, Patrick R. Brown Tags: ORIGINAL RESEARCH PAPER Source Type: research
Qualitative insights into the experience of teaching shared decision making within adult education health literacy programmes for lower ‐literacy learners
Discussion and conclusionsSDM programmes can be designed in a way that both supports teachers to deliver novel health literacy content and empowers learners. Collaboration between adult education and healthcare sectors can build health literacy capacity of those most in need. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Danielle M. Muscat, Suzanne Morony, Sian K. Smith, Heather L. Shepherd, Haryana M. Dhillon, Andrew Hayen, Lyndal Trevena, Karen Luxford, Don Nutbeam, Kirsten J. McCaffery Tags: ORIGINAL RESEARCH PAPER Source Type: research
Research priorities about stoma ‐related quality of life from the perspective of people with a stoma: A pilot survey
ConclusionPeople with a stoma are willing to engage in and set research priorities. The results should contribute towards future research about setting the research agenda for the study of stoma‐related concerns that impact quality of life. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Gill Hubbard, Claire Taylor, Becca Beeken, Anna Campbell, Jackie Gracey, Chloe Grimmett, Abi Fisher, Gozde Ozakinci, Sarah Slater, Trish Gorely Tags: ORIGINAL RESEARCH PAPER Source Type: research
Assessing the public acceptability of proposed policy interventions to reduce the misuse of antibiotics in Australia: A report on two community juries
ConclusionThese informed citizens acknowledged the importance of raising public awareness of the risks, impacts and costs of antibiotic resistance and placed a high priority on increasing social and professional accountability through restrictive measures. Their overarching aim was that policy interventions should be directed towards creating collective actions and broad social support for changing antibiotic use through establishing and explaining the need for mechanisms to control and support better prescribing by practitioners, while not transferring the burdens, costs and risks of interventions to consumers. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Chris Degeling, Jane Johnson, Jon Iredell, Ky ‐Anh Nguyen, Jacqueline M. Norris, John D. Turnidge, Angus Dawson, Stacy M. Carter, Gwendolyn L. Gilbert Tags: ORIGINAL RESEARCH PAPER Source Type: research
Evaluating patient and public involvement in health research: from theoretical model to practical workshop
DiscussionThe framework has practical utility for mapping and evaluating PPI interactions and is sensitive to differences in PPI experiences within and between different organizations. The workshops enabled participants to reflect collaboratively on their experiences with a view to improving PPI experiences and planning for the future. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Andy Gibson, Jo Welsman, Nicky Britten Tags: ORIGINAL RESEARCH PAPER Source Type: research
“Part of the Team”: Mapping the outcomes of training patients for new roles in health research and planning
ConclusionsPatient researchers become “part of the team” through cultural and relationship changes that occur in two convergent directions: (i) building the capacity of patients to engage confidently in a dialogue with clinicians and decision makers, and (ii) increasing the readiness for patient engagement uptake within targeted organizations. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Svetlana Shklarov, Deborah A. Marshall, Tracy Wasylak, Nancy J. Marlett Tags: ORIGINAL RESEARCH PAPER Source Type: research
Improving the quality of prison research: A qualitative study of ex ‐offender service user involvement in prison suicide prevention research
ConclusionsInvolving forensic service users in research is feasible and should be encouraged, as despite certain challenges, it is highly rewarding both for the research and the ex‐offender service users. (Source: Health Expectations)
Source: Health Expectations - June 1, 2017 Category: Health Management Authors: Yvonne F. Awenat, Currie Moore, Patricia A. Gooding, Fiona Ulph, Aisha Mirza, Daniel Pratt Tags: ORIGINAL RESEARCH PAPER Source Type: research
