How do people with long ‐term mental health problems negotiate relationships with network members at times of crisis?
ConclusionsSocial networks membership, and type and depth of involvement, is subject to change between times of crisis and everyday support. This has implications for managing mental health in terms of engaging with network support differently in times of crises versus recovery and everyday living. (Source: Health Expectations)
Source: Health Expectations - October 1, 2017 Category: Health Management Authors: Sandra Walker, Anne Kennedy, Ivaylo Vassilev, Anne Rogers Tags: ORIGINAL RESEARCH PAPER Source Type: research
An empirically based conceptual framework for fostering meaningful patient engagement in research
ConclusionsThe PEIR Framework provides guidance on aspects of PEIR to address for meaningful PEIR. It could be particularly useful when patient‐researcher partnerships are led by researchers with little experience of engaging patients in research. (Source: Health Expectations)
Source: Health Expectations - October 1, 2017 Category: Health Management Authors: Clayon B. Hamilton, Alison M. Hoens, Catherine L. Backman, Annette M. McKinnon, Shanon McQuitty, Kelly English, Linda C. Li Tags: ORIGINAL RESEARCH PAPER Source Type: research
The midwife –woman relationship in a South Wales community: Experiences of midwives and migrant Pakistani women in early pregnancy
ConclusionsFindings provide new theoretical insights into the complex factors contributing to the health‐care expectations of pregnant migrant Pakistani women in the UK. These findings may be used to create meaningful dialogue between women and midwives, encourage women's involvement in decisions about their health care and facilitate future midwifery education and research. Conclusions are relevant to a broad international audience, as achieving better outcomes for migrant and ethnic minority communities is of global concern. (Source: Health Expectations)
Source: Health Expectations - September 29, 2017 Category: Health Management Authors: Laura Goodwin, Billie Hunter, Aled Jones Tags: ORIGINAL RESEARCH PAPER Source Type: research
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Health Expectations,Volume 21, Issue 1, Page 347-357, February 2018. (Source: Health Expectations)
Source: Health Expectations - September 29, 2017 Category: Health Management Source Type: research
Patient family advisors ’ perspectives on engagement in health‐care quality improvement initiatives: Power and partnership
Abstract
BackgroundEngagement of the public in defining and shaping the organization and delivery of health care is increasingly viewed as integral to improving quality and promoting transparent decision making. Meaningful engagement of the public in health‐care reform is predicated on shifting entrenched power imbalances between health‐care systems and those it claims to serve.
ObjectivesTo describe the expressions, forms and spaces of power from the perspectives of persons who participated as Patient/Family Advisors (PFAs) in Rapid Process Improvement Workshops (RPIWs) within Saskatchewan, Canada.
MethodsUsing a qual...
Source: Health Expectations - September 28, 2017 Category: Health Management Authors: Donna Goodridge, Tanner Isinger, Thomas Rotter Tags: ORIGINAL RESEARCH PAPER Source Type: research
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Health Expectations,Volume 21, Issue 1, Page 379-386, February 2018. (Source: Health Expectations)
Source: Health Expectations - September 28, 2017 Category: Health Management Source Type: research
Talking to the people that really matter about their participation in pandemic clinical research: A qualitative study in four European countries
ConclusionsThis bottom‐up approach to ascertaining public views on pandemic clinical research has identified support for more proportionate research protection procedures for publically funded, low‐risk studies. (Source: Health Expectations)
Source: Health Expectations - September 27, 2017 Category: Health Management Authors: Nina H. Gobat, Micaela Gal, Christopher C. Butler, Steve A.R. Webb, Nicholas A. Francis, Helen Stanton, Sibyl Anthierens, Hilde Bastiaens, Maciek Godycki ‐ćwirko, Anna Kowalczyk, Mariona Pons‐Vigués, Enriqueta Pujol‐Ribera, Anna Berenguera, Angela Tags: ORIGINAL RESEARCH PAPER Source Type: research
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Health Expectations,Volume 21, Issue 1, Page 387-395, February 2018. (Source: Health Expectations)
Source: Health Expectations - September 27, 2017 Category: Health Management Source Type: research
Measuring recall of medical information in non ‐English‐speaking people with cancer: A methodology
This study aimed to develop a method for eliciting and coding recall of medical information in non‐English‐speaking patients.
DesignThis method, called Patient‐Interpreter‐Clinician coding (PICcode), was developed in the context of a phase II trial conducted in two outpatient oncology clinics in Melbourne, Australia, and was refined iteratively through consultation with an expert panel and piloting. Between‐coder differences in early versions of the coding system were resolved through discussion and consensus resulting in refinements to PICcode.
ResultsThe final version of PICcode involved transcribing, translati...
Source: Health Expectations - September 23, 2017 Category: Health Management Authors: Ruby Lipson ‐Smith, Amelia Hyatt, Alexandra Murray, Phyllis Butow, Thomas F. Hack, Michael Jefford, Uldis Ozolins, Sandra Hale, Penelope Schofield Tags: ORIGINAL RESEARCH PAPER Source Type: research
“Telling” and assent: Parents’ attitudes towards children's participation in a birth cohort study
This study examines parents’ attitudes towards telling their children about their participation in a specific birth cohort study.
MethodsWe conducted surveys and in‐depth interviews with the parents of children who participated in the “Japan Environment and Children's Study” (JECS), which follows children from the foetal stage to age 13.
ResultsForty‐four mothers and 23 fathers answered the survey, and 11 mothers and 3 fathers participated in in‐depth interviews. Parents’ attitudes towards “telling” were categorized into 3 communication styles depending on their perception of the risk/benefits for their c...
Source: Health Expectations - September 22, 2017 Category: Health Management Authors: Izen Ri, Eiko Suda, Zentaro Yamagata, Hiroshi Nitta, Kaori Muto Tags: ORIGINAL RESEARCH PAPER Source Type: research
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Health Expectations,Volume 21, Issue 1, Page 358-366, February 2018. (Source: Health Expectations)
Source: Health Expectations - September 22, 2017 Category: Health Management Source Type: research
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Health Expectations,Volume 21, Issue 1, Page 288-299, February 2018. (Source: Health Expectations)
Source: Health Expectations - September 22, 2017 Category: Health Management Source Type: research
Patient value: Perspectives from the advocacy community
Abstract
All health‐care systems are under financial pressure and many have therefore developed value frameworks to assist decision making regarding access to treatment. Unfortunately, many frameworks simply reflect the clinically focused values held by health‐care professionals rather than outcomes that also matter to patients. It is difficult to define one single homogeneous set of patient values as these are shaped by social, religious and cultural factors, and health‐care environment, as well as many factors such as age, gender, education, family and friends and personal finances. Instead of focusing on an aggreg...
Source: Health Expectations - September 20, 2017 Category: Health Management Authors: Bonnie J Addario, Ana Fadich, Jesme Fox, Linda Krebs, Deborah Maskens, Kathy Oliver, Erin Schwartz, Gilliosa Spurrier ‐Bernard, Timothy Turnham Tags: REVIEW ARTICLE Source Type: research
Optimizing patient and public involvement (PPI): Identifying its “essential” and “desirable” principles using a systematic review and modified Delphi methodology
ConclusionsThis study's innovative approach advances existing knowledge by providing previously unavailable consensus about PPI best practice. Research findings hold important theoretical and practical implications for educators, regulators, researchers and practitioners looking to effectively work together. (Source: Health Expectations)
Source: Health Expectations - September 20, 2017 Category: Health Management Authors: Rebecca L. Baines, Sam Regan de Bere Tags: ORIGINAL RESEARCH PAPER Source Type: research
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Health Expectations,Volume 21, Issue 1, Page 57-63, February 2018. (Source: Health Expectations)
Source: Health Expectations - September 20, 2017 Category: Health Management Source Type: research
