Community sensitization and decision ‐making for trial participation: a mixed‐methods study from The Gambia
Developing World Bioethics, EarlyView. (Source: Developing World Bioethics)
Source: Developing World Bioethics - August 16, 2017 Category: Medical Ethics Source Type: research
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Developing World Bioethics, Ahead of Print. (Source: Developing World Bioethics)
Source: Developing World Bioethics - August 16, 2017 Category: Medical Ethics Source Type: research
How to deal with neglected tropical diseases in the light of an African ethic
ABSTRACT
Many countries in Africa, and more generally those in the Global South with tropical areas, are plagued by illnesses that the wealthier parts of the world (mainly ‘the West’) neither suffer from nor put systematic effort into preventing, treating or curing. What does an ethic with a recognizably African pedigree entail for the ways various agents ought to respond to such neglected diseases? As many readers will know, a characteristically African ethic prescribes weighty duties to aid on the part of those in a position to do so, and it therefore entails that there should have been much more contribution from th...
Source: Developing World Bioethics - August 1, 2017 Category: Medical Ethics Authors: Thaddeus Metz Tags: SPECIAL ISSUE Source Type: research
‘It is an entrustment’: Broad consent for genomic research and biobanks in Sub‐Saharan Africa
ABSTRACT
In recent years, there has been an increase in the establishment of biobanks for genetic and genomic studies around the globe. One example of this is the Human Heredity and Health in Africa Initiative (H3Africa), which has established biobanks in the sub‐region to facilitate future indigenous genomic studies. The concept of ‘broad consent’ has been proposed as a mechanism to enable potential research participants in biobanks to give permission for their samples to be used in future research studies. However, questions remain about the acceptability of this model of consent. Drawing on findings from empirical...
Source: Developing World Bioethics - August 1, 2017 Category: Medical Ethics Authors: Paulina Tindana, Sassy Molyneux, Susan Bull, Michael Parker Tags: ORIGINAL ARTICLE Source Type: research
Models for truth ‐telling in physician‐patient encounters: what can we learn from Yoruba concept of Ooto?
ABSTRACT
Empirical studies have now established that many patients make clinical decisions based on models other than Anglo American model of truth‐telling and patient autonomy. Some scholars also add that current medical ethics frameworks and recent proposals for enhancing communication in health professional‐patient relationship have not adequately accommodated these models. In certain clinical contexts where health professional and patients are motivated by significant cultural and religious values, these current frameworks cannot prevent communication breakdown, which can, in turn, jeopardize patient care, cause un...
Source: Developing World Bioethics - August 1, 2017 Category: Medical Ethics Authors: Cornelius Ewuoso Tags: ORIGINAL ARTICLE Source Type: research
The social practice of medical guanxi (personal connections) and patient –physician trust in China: an anthropological and ethical tsudy
Abstract
In China's healthcare sector, a popular and socio‐culturally distinctive phenomenon known as guanxi jiuyi (medical guanxi), whereby patients draw on their guanxi (personal connections) with physicians when seeking healthcare, is thriving. Integrating anthropological investigation with normative inquiry, this paper examines medical guanxi through the lens of patient–physician trust and mistrust. The first‐hand empirical data acquired – on the lived experiences and perspectives of both patients and physicians – is based on six months' fieldwork carried out in a county hospital in Guangdong, southern China,...
Source: Developing World Bioethics - August 1, 2017 Category: Medical Ethics Authors: Xiang Zou, Yu Cheng, Jing ‐Bao Nie Tags: SPECIAL ISSUE Source Type: research
Reconciling female genital circumcision with universal human rights
This article, however, suggests a mediating approach according to which one form of FGC, the removal of the clitoris foreskin, can be made compatible with the high demands of universal human rights. The argument presupposes the idea that human rights are not absolutist by nature but can be framed in a meaningful, culturally sensitive way. It proposes important limiting conditions that must be met for the practice of FGC to be considered in accordance with the human rights agenda. (Source: Developing World Bioethics)
Source: Developing World Bioethics - August 1, 2017 Category: Medical Ethics Authors: John ‐Stewart Gordon Tags: ORIGINAL ARTICLE Source Type: research
Mistrust of physicians in China: society, institution, and interaction as root causes
In conclusion, I discuss the ethical implications of the mistrust problem, and suggest changes at the institutional and interpersonal levels to mitigate the problem. (Source: Developing World Bioethics)
Source: Developing World Bioethics - August 1, 2017 Category: Medical Ethics Authors: Cheris Shun ‐ching Chan Tags: SPECIAL ISSUE Source Type: research
African communal basis for autonomy and life choices
Abstract
I argue that the metaphysical capacity of autonomy is not intrinsically valuable; it is valuable only when used in relation to a community's values and instrumentally for making the proper choices that will promote one's own and the community's well‐being. I use the example of the choice to take one's life by suicide to illuminate this view. I articulate a plausible African conception of personhood as a basis for the idea of relational autonomy. I argue that this conception is better understood as a social‐moral thesis, and not a metaphysical thesis. A metaphysical thesis gives an account of the abstract natur...
Source: Developing World Bioethics - August 1, 2017 Category: Medical Ethics Authors: Polycarp Ikuenobe Tags: ORIGINAL ARTICLE Source Type: research
Community sensitization and decision ‐making for trial participation: a mixed‐methods study from The Gambia
ConclusionCommunity sensitization is effective in providing first‐hand, reliable information to communities as the information is cascaded to those who could not attend the sessions. However, further research is needed to assess how the informal spread of information further shapes people's expectations, how the process engages with existing social relations and hierarchies (e.g. local political power structures; permissions of heads of households) and how this influences or changes individual consent. (Source: Developing World Bioethics)
Source: Developing World Bioethics - August 1, 2017 Category: Medical Ethics Authors: Susan Dierickx, Sarah O'Neill, Charlotte Gryseels, Edna Immaculate Anyango, Melanie Bannister ‐Tyrrell, Joseph Okebe, Julia Mwesigwa, Fatou Jaiteh, René Gerrets, Raffaella Ravinetto, Umberto D'Alessandro, Koen Peeters Grietens Tags: ORIGINAL ARTICLE Source Type: research
Haitian people's expectations regarding post ‐disaster humanitarian aid teams’ actions
Abstract
The way people at the receiving end of humanitarian assistance perceive this intervention may provide invaluable bottom‐up feedback to improve the quality of the intervention.
We analyzed and mapped Haitians’ views regarding international humanitarian aid in cases of natural disaster. Two hundred fifty participants–137 women and 113 men aged 18‐67–who had suffered from the consequences of the earthquake in 2010 were presented with a series of vignettes depicting a humanitarian team's action and were asked to what extent these actions corresponded to what ought to be expected from an international aid mis...
Source: Developing World Bioethics - July 28, 2017 Category: Medical Ethics Authors: Lonzozou Kpanake, Ronald Jean ‐Jacques, Paul Clay Sorum, Etienne Mullet Tags: ORIGINAL ARTICLE Source Type: research
Haitian people's expectations regarding post ‐disaster humanitarian aid teams’ actions
Developing World Bioethics, EarlyView. (Source: Developing World Bioethics)
Source: Developing World Bioethics - July 28, 2017 Category: Medical Ethics Source Type: research
Research in epidemic and emergency situations: A model for collaboration and expediting ethics review in two Caribbean countries
Developing World Bioethics, EarlyView. (Source: Developing World Bioethics)
Source: Developing World Bioethics - July 28, 2017 Category: Medical Ethics Source Type: research
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Developing World Bioethics, Ahead of Print. (Source: Developing World Bioethics)
Source: Developing World Bioethics - July 28, 2017 Category: Medical Ethics Source Type: research
