Journal of Intellectual Disabilities This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

The health role of local area coordinators in Scotland: A mixed methods study
The study set out to explore whether local area coordinators (LACs) and their managers view the health role of LACs as an essential component of their work and identify the health-related activities undertaken by LACs in Scotland. A mixed methods cross-sectional phenomenological study involving local authority service managers (n = 25) and LACs (n = 40) was adopted. Quantitative data from LACs were obtained using online and postal questionnaires. Qualitative data from local authority service managers and LACs were collected using one-to-one interviews and focus groups. Thematic analysis was undertaken of the qualitative da...
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: Brown, M., Karatzias, T., O'Leary, L. Tags: Articles Source Type: research

Raising a child with disability and dealing with life events: A mother's journey
This article outlines a mother’s reflections on her experience of raising a child with autism spectrum disorder and its impact on her life. The article focuses on one mother’s feelings, coping or lack of coping and growth during a time of sadness. This article written by a mother, nurse and academic through their shared interest in supporting families of children with a disability all came together to tell this story. It is hoped that this article will assist professionals understand a mother’s perspective when raising a child with intellectual disability and support professionals to recognise the importa...
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: O'Connell, T., O'Halloran, M., Doody, O. Tags: Articles Source Type: research

How do people with intellectual disabilities view abuse and abusers?
This article reports the findings relating to one question within a participatory research study concerning the abuse of people with intellectual disabilities. This question asked what people with intellectual disabilities’ views are concerning abuse. Data were gathered via individual interviews (n = 14) and focus groups (7 groups involving 47 people in total), which were then analysed via a process of sorting statements into themes followed by group discussion and analysis of these themes. Participants expressed a range of views regarding abuse, some of which revealed strong emotions: a number of participants indica...
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: Northway, R., Melsome, M., Flood, S., Bennett, D., Howarth, J., Thomas, B. Tags: Articles Source Type: research

Learn and apply: Using multi-sensory storytelling to gather knowledge about preferences and abilities of children with profound intellectual and multiple disabilities - three case studies
Knowledge about the preferences and abilities of children with profound intellectual and multiple disabilities (PIMDs) is crucial for providing appropriate activities. Multi-sensory storytelling (MSST) can be an ideal activity for gathering such knowledge about children with PIMDs. The aim of this study was to analyse whether using MSST did lead to changes in teachers’ knowledge about preferences and abilities and whether this knowledge was then applied in practice. Three dyads of children with PIMDs and their teachers read an MSST book 20 times during a 10-week period. A questionnaire designed to identify the teache...
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: Brug, A. T., Van der Putten, A. A. J., Vlaskamp, C. Tags: Articles Source Type: research

An interview study of young adults born to mothers with mild intellectual disability
In conclusion, this study adds to other reports that children of mothers with ID constitute an extremely vulnerable group. Therefore, these families need full and continuous attention from the supportive systems in society. (Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: Lindblad, I., Billstedt, E., Gillberg, C., Fernell, E. Tags: Articles Source Type: research

Implementation of the care programme approach across health and social services for dual diagnosis clients
Conclusion: None of the contextual challenges identified in this study were specifically related to CPA as a policy or to the needs and circumstances of dual diagnosis clients. Nevertheless, they inhibited the types of organizational change and partnership working that implementing CPA for a client group of this kind required. Unless these more generic factors are acknowledged and addressed when introducing policies such as CPA, the chances of effective implementation will inevitably be compromised. (Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: Kelly, M., Humphrey, C. Tags: Articles Source Type: research

Using goal analysis to drive improvements in performance and outcomes
Economic pressures for public health and human services systems to control budgets are increasing the need for demonstrating value of support services provided to persons with intellectual disabilities. In this article, we build from earlier work that presented a method for assessing goal attainment to expand the study of goal characteristics as a means to gain an improved understanding of individual outcomes and service performance. The study results suggest a positive relationship between targeting intentional skill teaching in person-centered planning and service delivery and increasing the ability of individuals to liv...
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: Lawlor, D., Spitz, R., York, M., Harvey, B. Tags: Articles Source Type: research

An ecological approach to seeking and utilising the views of young people with intellectual disabilities in transition planning
Transition planning using a person-centred approach has, in the main, failed to shape service provision. We offer an alternative based on an ecological understanding of human development linked to public health approaches that prioritise whole system planning. A total of 43 young people with intellectual disabilities, in Bradford, England, who were approaching transition from school or college were recruited to a qualitative study. Their ethnic breakdown was as follows: 16 white British, 24 Pakistani, 2 Bangladeshi and 1 Black African. Each young person was interviewed twice, at recruitment and a year later, to observe any...
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: Small, N., Raghavan, R., Pawson, N. Tags: Articles Source Type: research

Editorial
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - November 28, 2013 Category: Disability Authors: Northway, R. Tags: Editorial Source Type: research

Forthcoming events
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Tags: Forthcoming events Source Type: research

Book Review: Supporting People With Learning Disabilities in Health and Social Care
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: Tendayi, G. Tags: Book Review Source Type: research

Telephone administration of the aberrant behavior checklist: A pilot study of feasibility in children with intellectual disability and autism
The objective of this study was to assess the feasibility of telephone administration of the Aberrant Behavior Checklist–Irritability Subscale (ABC-I). The ABC-I was administered by telephone to the primary caregivers of 39 subjects with intellectual disability and/or autism. The same primary caregiver of each subject was also mailed a written copy of the ABC-I with a self-addressed, stamped envelope. Scores obtained by telephone and written administration were highly correlated (r = 0.827, p < 0.001). Telephone administration of the ABC-I may be a feasible and efficient means of determining response to treatment ...
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: Siegel, M., Milligan, B., Stein, H., Teer, O., Smith, K. A. Tags: Articles Source Type: research

Resettlement of individuals with learning disabilities into community care: A risk audit
This article describes a risk audit carried out on the support provided for 36 people with profound learning disabilities who had been resettled from hospital care to supported housing. The risks were those factors identified in the literature as associated with deleterious effects on quality of life. The audit was carried out with a specially designed tool that covered 24 possible risks and involved a support worker familiar with the service user choosing the most appropriate statement regarding each risk. Their judgements were verified by care managers and social needs assessors. Whilst one or more risks were identified ...
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: Ellis, R., Hogard, E., Sines, D. Tags: Articles Source Type: research

Supported employment for young people with intellectual disabilities facilitated through peer support: A pilot study
The article reports the evaluation of a small-scale–supported employment project in a local authority in England. The study examined whether or not the peer support model could be used to deliver supported employment to a group of young people with intellectual disabilities. We utilised a mixed-method approach involving activity data, family interviews and a postal survey with participating employers. Five families took part in the study. Our findings show that families viewed the project positively, although it was insufficiently embedded in the wider transition planning. The study indicates that the peer support mo...
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: Kaehne, A., Beyer, S. Tags: Articles Source Type: research

Monitoring metabolic side effects of atypical antipsychotics in people with an intellectual disability
This audit was undertaken prospectively to examine the compliance of a group of psychiatrists against guidelines they developed for monitoring the onset of metabolic syndrome, a potential side effect of antipsychotic medication, especially second generation or atypical ones. Phase 1 of the audit was to set standards by a questionnaire survey of participating psychiatrists against Consensus Guidelines on monitoring (American Diabetic Association, 2004), which they favoured. The results led to modifying these guidelines to develop minimum acceptable standards against which their practice was audited in Phase 2. Although in P...
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: Teeluckdharry, S., Sharma, S., O'Rourke, E., Tharian, P., Gondalekar, A., Nainar, F., Roy, M. Tags: Articles Source Type: research