An initial evaluation of direct care staff resilience workshops in intellectual disabilities services
The emotional responses to challenging behaviour of direct care staff who support people with intellectual disabilities is thought to be an important mediating factor within the stress experienced by staff and a potential maintaining factor in challenging behaviour. A brief workshop to improve direct care staff resilience was developed and initially evaluated using a measure of emotional reaction to challenging behaviour and a measure of burnout. It was found that negative emotional reactions to challenging behaviour significantly reduced following the workshop, but a measure of burnout did not. This may indicate the usefu...
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: Ingham, B., Riley, J., Nevin, H., Evans, G., Gair, E. Tags: Articles Source Type: research

Exploring fathers' perceptions of parenting a child with Asperger syndrome
This study explores Irish fathers’ perceptions of parenting a child with Asperger syndrome (AS). Ethical approval was granted by the service provider, and Husserlian phenomenological approach facilitated the exploration. Data were collected through semi-structured interviews of nine fathers in the West region of Ireland. Data were transcribed and analysed using Colaizzi’s (1978) method. The study highlighted that parenting a child with AS is an arduous task, but while there are difficulties, many positive aspects to their parenting experience were reported. Overall, the study highlights the importance of listen...
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: O' Halloran, M., Sweeney, J., Doody, O. Tags: Articles Source Type: research

Mixed method approaches in open-ended, qualitative, exploratory research involving people with intellectual disabilities: A comparative methods study
This study compared the results of a suite of qualitative methods (questionnaire, focus group, semi-structured interview, "case in point" ethnographic observation, photographic images, and carer proxy response) by identifying the advantages and disadvantages of each method employed. It also foregrounds an effective mix of methods that is likely to produce an adequate representation of the views of people with disabilities within the context of open-ended exploratory questions. (Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: Ottmann, G., Crosbie, J. Tags: Articles Source Type: research

A model for care provision and a model of care provision?
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - September 3, 2013 Category: Disability Authors: Northway, R. Tags: Editorial Source Type: research

Forthcoming events
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Tags: Forthcoming events Source Type: research

Book review: Asperger Syndrome in Adulthood: A Comprehensive Guide For Clinicians
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Authors: Fearns, D. Tags: Book review Source Type: research

A pilot survey of physical activity in men with an intellectual disability
This article reports a pilot study undertaken to validate the use of a physical activity monitor (Sensewear Armband) and the International Physical Activity Questionnaire (IPAQ) as instruments for measuring and exploring physical activity of men with ID. The design was a one-group descriptive study and the data were collected over a 7-day period from 17 men. The Sensewear Armband enabled continuous and long-term measurement of 14 objective physical activity metrics. The IPAQ examined details of physical activity reported over 7 days. Equivalent results were obtained from both the instruments, indicating a positive cor...
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Authors: McKeon, M., Slevin, E., Taggart, L. Tags: Articles Source Type: research

Parenting with disabilities: Experiences from implementing a parenting support programme in Sweden
This article reports on the initial stages of implementing an Australian-based education programme for parents with intellectual disabilities (IDs) in Sweden. The clinical utility of the programme, Parenting Young Children (PYC), in the new country context is explored through Swedish professionals’ experiences in learning and using it. Study participants found PYC well suited for use in their working environment. Most of them reported the programme to have strengthened their work with parents. The programme was seen as benefiting both the study participants in their work with parents with IDs and these parents themse...
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Authors: Starke, M., Wade, C., Feldman, M. A., Mildon, R. Tags: Articles Source Type: research

Parents' experience of support in Sweden: Its availability, accessibility, and quality
Semi-structured interviews were conducted with six parents of children with intellectual disabilities, in the Western region of Sweden. The aim of the study was to explore and to gain a deeper understanding of parents’ experiences of received support for them and their children with intellectual disabilities. We focused particularly on their experiences of the availability, accessibility, and the quality of services. Parents in this study were unsure about what the diagnosis meant specifically for their child as well as for their whole family. Moreover, the parents experienced great difficulty in obtaining informatio...
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Authors: Nowak, H. I., Broberg, M., Starke, M. Tags: Articles Source Type: research

Is test anxiety a peril for students with intellectual disabilities?
Test anxiety is one of the most confronting issues in modern times with the increase in the number of standardised and high-stakes testing. Research has established that there is a direct link between test anxiety and cognitive deficits. The aim of this study is to determine the test anxiety scores of the students with intellectual disabilities in South Australia. It also provided insights into the reasons for high-test anxiety in the participants under study. The Spielberger’s Test Anxiety Questionnaire was administered on students with intellectual disabilities in stage 1. Interviews were conducted with participant...
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Authors: Datta, P. Tags: Articles Source Type: research

The Domesday dataset: Linked open data in disability studies
Augmentative and alternative communication (AAC) devices provide the ability for many people with disabilities to make themselves understood. For the large proportion of users with an intellectual disability, these devices may be their only means of communication. Estimates of the number of AAC devices in use are vague and lack transparency. This prevents researchers from answering key questions like ‘How many people per 1000 are using electronic AAC?’ and ‘On average, how much money would fund a person’s AAC use for 12 months?’. This work presents the ‘Domesday dataset’, whic...
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Authors: Reddington, J. Tags: Articles Source Type: research

Neuropsychological and behavioural phenotype of Dandy-Walker variant presenting in chromosome 22 trisomy: A case study
In this study, a case of Dandy–Walker variant syndrome associated with trisomy 22 in a 17-year-old man is described. This is the first account of this combination in a person surviving into adulthood, and the neuropsychological and behavioural presentation is described in detail and a clinical formulation is presented for the benefit of researchers and clinicians. (Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Authors: Searson, R., Hare, D. J., Sridharan, S. Tags: Articles Source Type: research

Where's the evidence?
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - May 3, 2013 Category: Disability Authors: Northway, R. Tags: Editorial Source Type: research

Forthcoming events
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - January 29, 2013 Category: Disability Tags: Articles Source Type: research

Book Review: Shared Lives: Building Relationships and Community With People Who Have Intellectual Disabilities
(Source: Journal of Intellectual Disabilities)
Source: Journal of Intellectual Disabilities - January 29, 2013 Category: Disability Authors: Welch, J. Tags: Book Review Source Type: research