Report: IMF Patient & Family Seminar in Slovakia
The IMF's Director of Europe and the Middle East, Nadia Elkebir, reports on a successful Patient & Family Seminar held this month in Slovakia in conjunction with Slovak Myeloma Society (SMS) & Patient Club. The seminar welcomed 130 patients and family members, and featured presentations from physicians and representatives of myeloma associations throughout Central Europe. In her blog post, Nadia thanks SMS representative Mr. Hrianka Miroslav (at right with his wife, Milada) for his key role in organizing the meeting (Source: International Myeloma Foundation)
Source: International Myeloma Foundation - October 20, 2014 Category: Hematology Source Type: news
Report: IMF Patient & Family Seminar in Slovakia
The IMF's Director of Europe and the Middle East, Nadia Elkebir, reports on a successful Patient & Family Seminar held this month in Slovakia in conjunction with Slovak Myeloma Society (SMS) & Patient Club. The seminar welcomed 130 patients and family members, and featured presentations from physicians and representatives of myeloma associations throughout Central Europe. In her blog post, Nadia thanks SMS representative Mr. Hrianka Miroslav (at right with his wife, Milada) for his key role in organizing the meeting (Source: International Myeloma Foundation)
Source: International Myeloma Foundation - October 20, 2014 Category: Hematology Source Type: news
Patient Blog: Serving on an Institutional Review Board
Patient blogger Cindy Chmielewski shares a blog post detailing her involvement as a patient representative on an institutional review board (IRB). In this role, Cindy is responsible for reviewing clinical research proposals and, with the rest of the board, making sure the rights of the people participating in the clinical research are protected. Although Cindy was nervous before her first IRB meeting, she writes, “Sitting at the table I felt prepared. I knew the language they were speaking thanks to all the education the IMF has given me.” (Source: International Myeloma Foundation)
Source: International Myeloma Foundation - October 20, 2014 Category: Hematology Source Type: news
New IMF Videos: The Role of Freelite and Hevylite Assays
In two new videos, International Myeloma Working Group (IMWG) member Saad Z. Usmani, MD, of Levine Cancer Institute/Carolinas Healthcare System, describes the role of Freelite and Hevylite assays in monitoring multiple myeloma. These tests that quantify free light chains and heavy chain and light chain pairs provide important measurements that track myeloma response and progression. (Source: International Myeloma Foundation)
Source: International Myeloma Foundation - October 17, 2014 Category: Hematology Source Type: news
Are We Starting to Cure Myeloma?
A paper recently published in the medical journal Blood claims its authors are “Curing myeloma at last: defining criteria and providing the evidence,” as the paper's title states. In his blog this week, IMF Chairman Dr. Brian Durie cautions that this is a bold statement. The paper provides a statistical model to predict myeloma patients' outcomes. Dr. Durie writes, “Achieving and documenting true cure still demands follow-up of individual patients and cannot be predicted by a computer model.” (Source: International Myeloma Foundation)
Source: International Myeloma Foundation - October 17, 2014 Category: Hematology Source Type: news
