Nursing Home Stakeholder Views of Resident Involvement in Medical Care Decisions
Demand by nursing home residents for involvement in their medical care, or, patient-centered care, is expected to increase as baby boomers begin seeking long-term care for their chronic illnesses. To explore the needs in meeting this proposed demand, we used a qualitative descriptive method with content analysis to obtain the joint perspective of key stakeholders on the current state of person-centered medical care in the nursing home. We interviewed 31 nursing home stakeholders: 5 residents, 7 family members, 8 advanced practice registered nurses, 5 physicians, and 6 administrators. Our findings revealed constraints place...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Garcia, T. J., Harrison, T. C., Goodwin, J. S. Tags: General Articles Source Type: research
Subjective Experience and Resources for Coping With Stigma in People With a Diagnosis of Schizophrenia: An Intersectional Approach
In this study, we investigate the subjective experience of a group of individuals, diagnosed with schizophrenia, undergoing outpatient treatment in four psychiatric clinics in Mexico City. Our objective is to use the paradigm of intersectionality to explore the most common forms of stigma and discrimination faced by people with this illness, as well as the coping resources they employ. The major contribution of this study is its use of in-depth interviews and thematic analysis of the information obtained to identify the importance of sociocultural aspects of participants’ experience of their illness. Schizophrenia, f...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Mora-Rios, J., Ortega-Ortega, M., Natera, G. Tags: General Articles Source Type: research
Severe Obesity and the Ambivalence of Attending Physical Activity: Exploring Lived Experiences
Physical activity is considered fundamental in lifestyle interventions. We explore experiences of physical activity prior to, during, and following a 10- to 14-week inpatient lifestyle modification program, including high volume of physical activity, for the treatment of severe obesity. Eight participants from a prospective clinical trial were selected to participate in a complementary qualitative study. The participants’ experiences with physical activity during and following the treatment program represented different opposites: "pain and pleasure," "desire and duty," and "bubble and battle." We summarized the find...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Danielsen, K. K., Sundgot-Borgen, J., Rugseth, G. Tags: General Articles Source Type: research
Developing a Personal and Social Identity With Type 1 Diabetes During Adolescence: A Hypothesis Generative Study
This study explored the incorporation of type 1 diabetes mellitus (T1DM) into self-identity among adolescents. Guided interviews explored 40 adolescents’ views of T1DM in relation to their sense of self and relationships with others. Responses were analyzed using thematic analysis. Results revealed that the entire sample described T1DM as a significant burden; many described how T1DM made them feel less "normal." Adolescents described both positive and negative aspects of self-management in social relationships, though most reported benefits in sharing T1DM with friends. Females were more likely to share information ...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Commissariat, P. V., Kenowitz, J. R., Trast, J., Heptulla, R. A., Gonzalez, J. S. Tags: Mixed-Method Articles Source Type: research
Huwa Rog, Parhej, and Desi Dawai: Womens Perceptions of Postpartum Maternal Morbidity and Care in Rajasthan, India
Although more maternal deaths occur in the postpartum period, this period receives far less attention from the program managers. To understand how the women and their families perceive postpartum health problems, the culturally derived restrictions, and precautions controlling diets and behavior patterns, we conducted a mixed-method study in Rajasthan, India. The study methods included free listing of maternal morbidity conditions, interviews with 81 recently delivered women, case interviews with eight cases of huwa rog (postpartum illness), and interviews with nine key informants. The study showed that huwa rog refers to ...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Iyengar, K., Pelto, P., Iyengar, S. D. Tags: Mixed-Method Articles Source Type: research
Doing Interdisciplinary Mixed Methods Health Care Research: Working the Boundaries, Tensions, and Synergistic Potential of Team-Based Research
Current trends in health care research point to a shift from disciplinary models to interdisciplinary team-based mixed methods inquiry designs. This keynote address discusses the problems and prospects of creating vibrant mixed methods health care interdisciplinary research teams that can harness their potential synergy that holds the promise of addressing complex health care issues. We examine the range of factors and issues these types of research teams need to consider to facilitate efficient interdisciplinary mixed methods team-based research. It is argued that concepts such as disciplinary comfort zones, a lack of att...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Hesse-Biber, S. Tags: Keynote Source Type: research
Essential Qualitative Inquiry in the Development of a Cancer Literacy Measure for Immigrant Women
In this article, we describe the development of a comprehensive measure of breast and cervical cancer literacy for immigrant populations. To our knowledge, this is the first attempt to use a health literacy framework in this endeavor. Using qualitative strategies, we (a) developed an understanding of the experiences of Mexican and Filipina immigrant women with low health literacy through individual interviews, (b) conducted focus groups to obtain feedback from experts and participants to determine the adequacy of items included in the measure, and (c) refined the set of items to create an empirically based measure. The fin...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Buki, L. P., Yee, B. W. K., Weiterschan, K. A., Lehardy, E. N. Tags: Mixed-Method Articles Source Type: research
Developing the DESCARTE Model: The Design of Case Study Research in Health Care
Case study is a long-established research tradition which predates the recent surge in mixed-methods research. Although a myriad of nuanced definitions of case study exist, seminal case study authors agree that the use of multiple data sources typify this research approach. The expansive case study literature demonstrates a lack of clarity and guidance in designing and reporting this approach to research. Informed by two reviews of the current health care literature, we posit that methodological description in case studies principally focuses on description of case study typology, which impedes the construction of methodol...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Carolan, C. M., Forbat, L., Smith, A. Tags: Mixed-Method Articles Source Type: research
Adaptation of the Ages and Stages Questionnaire for Remote Aboriginal Australia
This study focused on the cross-cultural adaptation of the Ages and Stages Questionnaires, 3rd edition (ASQ-3), with careful attention to language and culture. We aimed to adapt the ASQ-3 for use with remote dwelling Australian Aboriginal children, and to investigate the cultural appropriateness and feasibility of the adapted ASQ-3 for use in this context. We undertook a qualitative study in two remote Australian Aboriginal communities, using a six-step collaborative adaptation process. Aboriginal Health Workers (AHWs) were trained to use the adapted ASQ-3, and follow-up interviews examined participants’ views of the...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: DAprano, A., Silburn, S., Johnston, V., Robinson, G., Oberklaid, F., Squires, J. Tags: Mixed-Method Articles Source Type: research
An Effective Model for Prevention and Management of Type 2 Diabetes
We developed and tested a cost-effective model for health promotion capacity building among community health volunteers (CHVs) within culturally and linguistically diverse (CALD) communities. Twenty multilingual CHVs, from CALD communities in Melbourne, underwent 3 days of education and training to deliver face-to-face education programs in their own language. Participants were instructed how to collect anthropometric data, make qualitative observations, and conduct diabetes knowledge questionnaires, before conducting mini education sessions with three members of their own community. Knowledge about diabetes among CHVs inc...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Kousar, R., Apostolopoulos, V., Stojanovska, L., Mayhew, M., Totikidis, V., Skaria, A., Lewandowaski, P. Tags: Mixed-Method Articles Source Type: research
Adding Qualitative and Mixed Methods Research to Health Intervention Studies: Interacting With Differences
The purpose of this article is to explain how to improve intervention designs, such as randomized controlled trials (RCTs), in health science research using a process philosophy and theory known as dialectical pluralism (DP). DP views reality as plural and uses dialectical, dialogical, and hermeneutical approaches to knowledge construction. Using DP and its "both/and" logic, and its attempt to produce new creative syntheses, researchers on heterogeneous teams can better dialogue with qualitative and mixed methods approaches, concepts, paradigms, methodologies, and methods to improve their intervention research studies. The...
Source: Qualitative Health Research - March 15, 2016 Category: Global & Universal Authors: Johnson, R. B., Schoonenboom, J. Tags: Commentary Source Type: research
Reflexivity: The Creation of Liminal Spaces--Researchers, Participants, and Research Encounters
Reflexivity is defined as the constant movement between being in the phenomenon and stepping outside of it. In this article, we specify three foci of reflexivity—the researcher, the participant, and the encounter—for exploring the interview process as a dialogic liminal space of mutual reflection between researcher and participant. Whereas researchers’ reflexivity has been discussed extensively in the professional discourse, participants’ reflexivity has not received adequate scholarly attention, nor has the promise inherent in reflective processes occurring within the encounter. (Source: Qualitative Health Research)
Source: Qualitative Health Research - February 15, 2016 Category: Global & Universal Authors: Enosh, G., Ben-Ari, A. Tags: Pearls, Pith, & amp;amp; Provocation Source Type: research
Chronic Obstructive Pulmonary Disease Patients Experiences of an Enhanced Self-Management Model of Care
Chronic obstructive pulmonary disease (COPD) is debilitating and costly. Self-management is championed to empower individuals to better manage their condition and also to efficiently utilize health resources. As a multi-disciplinary team, we conducted focus group research with individuals living with COPD who were participating in a longitudinal study to use an electronic "diary" to monitor, record, and transmit their own health status, plus receiving regular nurse visits. The main aims of the focus groups were to investigate how far individuals embraced the electronic diary and experienced it as an aid to the self-managem...
Source: Qualitative Health Research - February 15, 2016 Category: Global & Universal Authors: Patel, N., Jones, P., Adamson, V., Spiteri, M., Kinmond, K. Tags: General Articles Source Type: research
The "Conflicted Dying": The Active Search for Life Extension in Advanced Cancer Through Biomedical Treatment
Using a poststructural perspective, we examine the subjectivities that are produced when advanced cancer patients seek life extension through biomedical treatments. Seven case studies were developed that included 20 interviews with patients, family, nurses, and physicians recruited from a tertiary hospital in Canada, 30 documents, and 5 hours of participant observation. We identify seven types of subjectivity: (a) the Desperate Subject, (b) the Cancer Expert Subject, (c) the Proactive Subject, (d) the Productive Subject, (e) the Mistrusting Subject, (f) the Model Patient Subject, and (g) the Suffering Subject. We character...
Source: Qualitative Health Research - February 15, 2016 Category: Global & Universal Authors: Mohammed, S., Peter, E., Gastaldo, D., Howell, D. Tags: General Articles Source Type: research
The Chronic Responsibility: A Critical Discourse Analysis of Danish Chronic Care Policies
This article reports on the results of a Fairclough-inspired critical discourse analysis aiming to clarify how chronically ill patients are presented in contemporary Danish chronic care policies. Drawing on Fairclough’s three-dimensional framework for analyzing discourse, and using Dean’s concepts of governmentality as an interpretative lens, we analyzed and explained six policies published by the Danish Health and Medicines Authority between 2005 and 2013. The analysis revealed that discourses within the policy vision of chronic care consider chronically ill patients’ active role, lifestyle, and health b...
Source: Qualitative Health Research - February 15, 2016 Category: Global & Universal Authors: Ravn, I. M., Frederiksen, K., Beedholm, K. Tags: Policy & amp;amp; Politics Source Type: research
