Examination of parent-child adjustment in juvenile rheumatic diseases using depression-specific indices of parent and youth functioning
Studies demonstrate a link between parental distress, youth illness appraisals, and depression symptoms in youth with juvenile rheumatic diseases. However, the exclusive use of broadband (i.e. general) measures of parental distress in these studies has resulted in conceptual and clinical imprecision regarding the parent–child adjustment process. Our aim was to reanalyze previously published data (i.e. Wagner et al., 2003) using a depression-specific scale derived from the general adult distress measure in the original study. Parents completed the Brief Symptom Inventory (BSI), youth completed the Child Depression Inv...
Source: Journal of Child Health Care - March 16, 2015 Category: Pediatrics Authors: Bonner, M. S., Ramsey, R. R., Ryan, J. L., Fedele, D. A., Mullins, L. L., Wagner, J. L., Jarvis, J. N., Chaney, J. M. Tags: Articles Source Type: research
Comparison of utility scores from the Visual Analog Scale and Health Utilities Index 3 in children following pediatric intensive care unit admission
Indirect and direct health-related quality of life (HRQoL) measures are intended to assess the same underlying constructs. There is evidence that the two types of assessments can show important differences. We assessed the agreement between the utilities of direct and indirect HRQoL measurements in children following pediatric intensive care unit (PICU) admission. We collected Health Utilities Index 3 (HUI-3) and Visual Analog Scale (VAS) ratings of children who were urgently admitted to the PICU of a university-affiliated pediatric hospital at ICU admission (baseline) and one month post-ICU admission. The mean (SD) VAS co...
Source: Journal of Child Health Care - March 16, 2015 Category: Pediatrics Authors: Ebrahim, S., Parshuram, C. Tags: Articles Source Type: research
Pain reports in children and adolescents with type 1 diabetes mellitus
The purpose of this study is to examine prevalence rates of pain reports in youth with type 1 diabetes mellitus (T1DM) and potential predictors of pain. Pain is a common and debilitating symptom of diabetic polyneuropathies. There is currently little research regarding pain in youth with T1DM. It was predicted that self-care and general health factors would predict pain as suggested by the general pain literature. Participants (N = 269) ranged in age from 13 to 17 years; youth had a mean time since diagnosis of 5.8 years. Data collected included diabetes self-management variables, ratings of the patient&rsqu...
Source: Journal of Child Health Care - March 16, 2015 Category: Pediatrics Authors: Tran, S. T., Salamon, K. S., Hainsworth, K. R., Kichler, J. C., Davies, W. H., Alemzadeh, R., Weisman, S. J. Tags: Articles Source Type: research
Use of the national quality registry to monitor health-related quality of life of children with type 1 diabetes: A pilot study
The management of diabetes is complicated, as treatment affects the everyday life of both children and their families. To enable optimal care for children with type 1 diabetes, it is important to highlight health-related quality of life (HrQoL) as well as medical outcomes to detect psychological problems that otherwise could be missed. The aim was to study HrQoL in children and adolescents with type 1 diabetes dependent on gender, age and co-morbidity and to study the consistency between children’s self-reporting and parents’ proxy reporting. The cross-sectional data were collected using the questionnaire DISAB...
Source: Journal of Child Health Care - March 16, 2015 Category: Pediatrics Authors: Petersson, C., Huus, K., Samuelsson, U., Hanberger, L., Akesson, K. Tags: Articles Source Type: research
Developing indicators of service integration for child health: Perceptions of service providers and families of young children in a region of high need in New Zealand
This study aimed to explore what local people consider would be useful indicators of better child health. Data for this qualitative study were collected via 24 individual interviews and two focus groups in a rural area of New Zealand. A total of 13 in-depth interviews were conducted with parents/families of small children. Participants were asked about wide-ranging aspects of child health. Also, 11 interviews and two focus groups were conducted with front line health professionals/stakeholders. Key themes from the content thematic analysis: include child health should be measured in multidimensional ways; essential interde...
Source: Journal of Child Health Care - March 16, 2015 Category: Pediatrics Authors: Pullon, S., McKinlay, B., Yager, J., Duncan, B., McHugh, P., Dowell, A. Tags: Articles Source Type: research
Parenting interventions for childhood chronic illness: A review and recommendations for intervention design and delivery
Every day, thousands of children suffer the effects of chronic health conditions and families struggle with illness management and children’s behavioural and emotional adjustment. Many parents experience difficulties with their caregiving role and lack confidence in their ability to manage their child’s illness and ensure the child’s well-being. While there is consistent evidence as to the extent and impact of childhood chronic illness, there is a paucity of evidence-based parenting approaches to help children with chronic health conditions and their families. This paper provides a narrative review of the...
Source: Journal of Child Health Care - March 16, 2015 Category: Pediatrics Authors: Morawska, A., Calam, R., Fraser, J. Tags: Articles Source Type: research
Parents' and children's beliefs and concerns about taking medicines
(Source: Journal of Child Health Care)
Source: Journal of Child Health Care - March 16, 2015 Category: Pediatrics Authors: Carter, B. Tags: Editorial Source Type: research
Family socioeconomic status, household tobacco smoke, and asthma attack among children below 12 years of age: Gender differences
Studies have demonstrated the negative impact of environmental tobacco smoke (ETS) or parental cigarette smoking on pediatric asthma. Little is known, however, regarding whether there is a gender difference in the effect of household ETS on pediatric asthma. Using a nationwide survey in Taiwan, we examined the relationship between asthma prevalence in the past year and household ETS among children below 12 years of age (N = 3761). We used multivariate regression models to assess odds ratios (ORs) and 95% confidence intervals (CIs) for the association of household ETS and asthma attacks by gender. In about 3%...
Source: Journal of Child Health Care - December 5, 2014 Category: Pediatrics Authors: Strong, C., Chang, L.-Y. Tags: Articles Source Type: research
Assessing pediatric patient's risk of distress during health-care encounters: The psychometric properties of the Psychosocial Risk Assessment in Pediatrics
The aim of this study was to examine the psychometric properties of the Psychosocial Risk Assessment in Pediatrics (PRAP). PRAP is a screening tool designed to assess pediatric patients who are at risk of experiencing elevated distress during health-care encounters. A cross-sectional observational study was conducted with 200 pediatric patients. Patient’s distress levels were observed during their health-care encounter using the Children’s Emotional Manifestation Scale (CEMS). Health-care staff and parents were asked to rate the patient’s level of cooperation and stress. Exploratory factor analysis suppor...
Source: Journal of Child Health Care - December 5, 2014 Category: Pediatrics Authors: Staab, J. H., Klayman, G. J., Lin, L. Tags: Articles Source Type: research
Development of personal identity among refugee adolescents: Facilitating elements and obstacles
This qualitative study examines what contributes to the development of personal identity among refugee adolescents of African origin who have immigrated to Québec. For this purpose, 12 adolescents participated in individual interviews and in self-recorded interviews. The research findings show that the development of young people’s personal identity is directly and indirectly influenced by personal characteristics, the environmental, and the interpersonal relationships. We identify both elements that facilitate the development of personal identity and obstacles to such development so as to provide better suppo...
Source: Journal of Child Health Care - December 5, 2014 Category: Pediatrics Authors: Ndengeyingoma, A., Montigny, F. d., Miron, J.-M. Tags: Articles Source Type: research
Implication of World Health Organization growth standards on estimation of malnutrition in young Chinese children: Two examples from rural western China and the Tibet region
The aim of this study was to determine how malnutrition rates change in young Chinese children when 2006 World Health Organization (WHO) growth standards are used instead of 1978 WHO/National Center for Health Statistics reference. Cross-sectional survey data were used from rural western China and the Tibet region. The heights and weights of children of <36 months of age were measured. The nutritional status of the children was assessed by two references. Using 2006 reference instead of 1978 reference, the prevalence of stunting increased significantly (17.9% vs. 12.3% in rural western China and 37.5% vs. 28.1% in ...
Source: Journal of Child Health Care - December 5, 2014 Category: Pediatrics Authors: Dang, S., Yan, H., Wang, D. Tags: Articles Source Type: research
Consequences of caring for a child with a chronic disease: Employment and leisure time of parents
In conclusion, parents of chronically ill children, mothers in particular, are disadvantaged in society probably due to the challenge of combining child care with work and leisure time. (Source: Journal of Child Health Care)
Source: Journal of Child Health Care - December 5, 2014 Category: Pediatrics Authors: Hatzmann, J., Peek, N., Heymans, H., Maurice-Stam, H., Grootenhuis, M. Tags: Articles Source Type: research
Meaning of caring in pediatric intensive care unit from the perspective of parents: A qualitative study
When children are critically ill, parents still strive to be present and participate in the care of their child. Pediatric intensive care differs from other realms of pediatric care as the nature of care is technically advanced and rather obstructing than encouraging parental involvement or closeness, either physically or emotionally, with the critically ill child. The aim of this study was to elucidate the meaning of caring in the pediatric intensive care unit from the perspective of parents. The design of this study followed Benner’s interpretive phenomenological method. Eleven parents of seven children participate...
Source: Journal of Child Health Care - December 5, 2014 Category: Pediatrics Authors: Mattsson, J. Y., Arman, M., Castren, M., Forsner, M. Tags: Articles Source Type: research
Posttraumatic growth and support among parents whose children have survived stem cell transplantation
In the current study, we investigated the occurrence of posttraumatic growth (PTG) among parents whose children had had stem cell transplantation (SCT) and survived. Although SCT is well established, it remains stressful and dangerous, and SCT is only performed if there is no other choice of treatment to be considered. A questionnaire batteries including the Post-Traumatic Stress Disorder (PTSD) Check List—Civilian version and the Post-Traumatic Growth Inventory were sent out to a cross-sectional national sample of parents of children who had had SCT six months or more before the study. The response rate was 66% (n =...
Source: Journal of Child Health Care - December 5, 2014 Category: Pediatrics Authors: Forinder, U., Norberg, A. L. Tags: Articles Source Type: research
The effect of positioning on preterm infants' sleep-wake states and stress behaviours during exposure to environmental stressors
Previous studies separately examined the effects of positioning or environmental stressors on preterm infants’ sleep and stress. Since positioning and environmental stressors occur simultaneously during infant hospitalization exploring these variables in the same study may offer new insights. A quasi-experimental study by one-group interrupted time-series design. In the current study, a total of 22 preterm infants were enrolled. Each infant was moved to either the supine or prone position for an hour at a time. Infants were videotaped and the sleep–wake states, stress behaviours and environmental conditions (li...
Source: Journal of Child Health Care - December 5, 2014 Category: Pediatrics Authors: Peng, N.-H., Chen, L.-L., Li, T.-C., Smith, M., Chang, Y.-S., Huang, L.-C. Tags: Articles Source Type: research
