The determinants of time spent on self-care
Purpose
More input from the individual into the management of their health has the potential to reduce demand on the formal care system and improve health outcomes. A variety of interventions have been developed to encourage such ‘self-care', particularly for populations with long-term conditions. However the equity consequences of such initiatives are relatively unknown as there is little evidence on the social and economic determinants of time spent on self-care.
Key methods
We estimate the social and economic determinants of time spent on self-care. We also examine whether patients spend time on self-care because...
Source: Chronic lllness - May 12, 2016 Category: Journals (General) Authors: Forbes, H., Sutton, M., Richardson, G., Rogers, A. Tags: Articles Source Type: research
Multimorbidity and the process of living with ongoing illness
Discussion
Participants with different health conditions shared similar illness experiences. Yet, the process of living with ongoing illness was unique and differed according to participants’ health conditions and life context. By understanding the experiences, needs, and priorities of people with multimorbidity, health professionals can provide timely and relevant health care. (Source: Chronic lllness)
Source: Chronic lllness - May 12, 2016 Category: Journals (General) Authors: White, C., Lentin, P., Farnworth, L. Tags: Articles Source Type: research
Adverse events experienced by participants in a back pain walking intervention: A descriptive study
Conclusions
Individuals with chronic back pain can safely engage in a pedometer-based, unsupervised walking program. However, patients may benefit from focused counseling about musculoskeletal risks with specific attention to injury prevention measures such as gradually incrementing activity levels. (Source: Chronic lllness)
Source: Chronic lllness - February 29, 2016 Category: Journals (General) Authors: Krein, S. L., Abdul-Wahab, Y., Kadri, R., Richardson, C. R. Tags: Articles Source Type: research
If three of my brothers have ankylosing spondylitis, why does the doctor say it is not necessarily hereditary? The meaning of risk in multiplex case families with ankylosing spondylitis
Conclusions
Patient's and their relatives interpretation of familial aggregation, HLAB27, heredity, and risk perception in relation with ankylosing spondylitis involves four broad interpretive units spanning from clinical symptoms to heredity and decisions made accordingly. Their thoughts and consequent decisions are often in contradiction with the medical knowledge on the role of genetic factors in ankylosing spondylitis. (Source: Chronic lllness)
Source: Chronic lllness - February 29, 2016 Category: Journals (General) Authors: Pelaez-Ballestas, I., Romero-Mendoza, M., Burgos-Vargas, R. Tags: Articles Source Type: research
The impact of culturally responsive self-management interventions on health outcomes for minority populations: A systematic review
Discussion
We argue that rather than focusing on individual skills, knowledge, self-efficacy, and attitudes toward self-management, it may be more important to explore the structures and processes that underpin the sharing of information and skills within clinical or education encounters. Given that self-management is a Western cultural construct, creating empathic and responsive systems might be more effective for improving health of Indigenous and ethnic minority groups rather than relying predominantly on individual skill development. (Source: Chronic lllness)
Source: Chronic lllness - February 29, 2016 Category: Journals (General) Authors: Ehrlich, C., Kendall, E., Parekh, S., Walters, C. Tags: Articles Source Type: research
Informational needs of liver transplant recipients during a two-year posttransplant period
Conclusion
Healthcare providers should tailor information given to LTx recipients based on informational needs. Longitudinal studies are needed to confirm changing patterns of informational needs. (Source: Chronic lllness)
Source: Chronic lllness - February 29, 2016 Category: Journals (General) Authors: Ko, D., Lee, I., Muehrer, R. J. Tags: Articles Source Type: research
The self-management experience of patients with type 2 diabetes and chronic kidney disease: A qualitative study
Conclusions
This exploratory study of patients with type 2 diabetes and chronic kidney disease describes barriers and supports to self-management and emotional reactions to chronic kidney disease status. Future research should confirm these findings in a larger population and should include family members and/or health care providers to help further define problems with self-management in patients with type 2 diabetes and chronic kidney disease. (Source: Chronic lllness)
Source: Chronic lllness - February 29, 2016 Category: Journals (General) Authors: Shirazian, S., Crnosija, N., Weinger, K., Jacobson, A. M., Park, J., Tanenbaum, M. L., Gonzalez, J. S., Mattana, J., Hammock, A. C. Tags: Articles Source Type: research
"And now for the good news..." the impact of negative and positive messages in self-management education for people with Type 2 diabetes: A qualitative study in an ethnically diverse population
Discussion
Our findings have highlighted the importance of providing and combining both negative and positive messages within education designed to promote self-management behaviour change. (Source: Chronic lllness)
Source: Chronic lllness - February 29, 2016 Category: Journals (General) Authors: Eborall, H. C., Virdee, S. K., Patel, N., Redwood, S., Greenfield, S. M., Stone, M. A. Tags: Articles Source Type: research
Needs of caregivers in heart failure management: A qualitative study
Discussion
The identification of the needs of caregiver has been used to inform the development of a home-based heart failure intervention facilitated by a trained health care practitioner. (Source: Chronic lllness)
Source: Chronic lllness - November 3, 2015 Category: Journals (General) Authors: Wingham, J., Frost, J., Britten, N., Jolly, K., Greaves, C., Abraham, C., Dalal, H., on behalf of the REACH-HF research investigators Tags: Articles Source Type: research
Lived experiences of multimorbidity: An interpretative meta-synthesis of patients', general practitioners' and trainees' perceptions
Discussion
There was little evidence of shared discussion of these challenges. Addressing these issues and more explicit exploration of the experiences of each group during interactions may improve delivery and satisfaction in care and education. (Source: Chronic lllness)
Source: Chronic lllness - November 3, 2015 Category: Journals (General) Authors: Cottrell, E., Yardley, S. Tags: Articles Source Type: research
"Because everything changes that day; you don't do the routine": Alterations and activities chronically ill women undertake on days with health care provider appointments
Discussion
Findings demonstrate that the health care provider–patient interaction does not start or end in the space of the provider's office but is, rather, an event that is part of a larger process primarily focused on its successful negotiation. This suggests that the boundaries of the appointment need to be reconsidered, which holds implications for appointment-focused interventions aimed at chronically ill patients. (Source: Chronic lllness)
Source: Chronic lllness - November 3, 2015 Category: Journals (General) Authors: Crooks, V. A. Tags: Articles Source Type: research
Symptom severity, social supports, coping styles, and quality of life among individuals' diagnosed with Meniere's disease
Discussion
The findings suggest that the factors associated with the quality of life of patients with Ménierè’s disease are similar to those reported in the literature among patients with other chronic illnesses. The results also suggested that emphasis on psychosocial factors may be an important aspect of a comprehensive treatment intervention for individuals with Ménierè’s disease. (Source: Chronic lllness)
Source: Chronic lllness - November 3, 2015 Category: Journals (General) Authors: Porter, M., Boothroyd, R. A. Tags: Articles Source Type: research
African American patient knowledge of kidney disease: A qualitative study of those with advanced chronic kidney disease
Kidney disease is a costly and prevalent condition that affects African Americans more than any other group. The purpose of this study was to determine the knowledge of kidney disease African American patients have about their disease. Four qualitative focus groups were conducted with kidney disease patients in which the patients gave thoughts and opinions on kidney disease and various components and factors of the condition. The data were independently reviewed and analyzed using Qualrus coding software. Dominant themes discussed in the focus groups included: causes of kidney disease, patient thoughts on dialysis as a tre...
Source: Chronic lllness - November 3, 2015 Category: Journals (General) Authors: Kazley, A. S., Johnson, E., Simpson, K., Chavin, K., Baliga, P. Tags: Articles Source Type: research
'If you're gonna die, you're gonna die': Young adults' perceptions of sudden unexpected death in epilepsy
Discussion
Our findings suggest that SUDEP was bracketed off from other aspects of participants’ epilepsy, in terms of the meanings attributed to it, perceptions of risk status and ways of coping. SUDEP is a case through which to consider how people give meaning to information about risk of sudden death related to chronic conditions. (Source: Chronic lllness)
Source: Chronic lllness - August 18, 2015 Category: Journals (General) Authors: Harden, J., Tonberg, A., Chin, R. F., McLellan, A., Duncan, S. Tags: Articles Source Type: research
The ghost of Nora Batty: A qualitative exploration of the impact of footwear, bandaging and hosiery interventions in chronic wound care
This study draws on data generated in semi-structured interviews with patients exploring outcomes and impacts of undergoing treatment for leg and foot ulcers undertaken as part of a UK National Institute for Health Research funded study. Footwear, bandaging and hosiery are explored here as aspects of material culture, not only in functional terms as a treatment supporting or hindering healing but also as part of the means by which people receiving treatment for two of the most common complex, chronic wounds, leg ulcers and foot ulcers, negotiate and understand their embodied selves in everyday life.
Findings
Physical and ...
Source: Chronic lllness - August 18, 2015 Category: Journals (General) Authors: Madden, M. Tags: Articles Source Type: research
