Do those with CF have difficulty digesting protein?
I have cf and wondered this, do i have a hard time digesting protein AND fat or just fat? f (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - March 10, 2015 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums
Alcohol and cf?
Anyone with cf still occasionally indulge in a few drinks?
Was wondering if being pancreas insufficient was the same as having pancreatis? I know cf effects your pancreas because of the mucous clogging it up, but is this same same as having pancreatis? If so, I know ithat you can't have any alcohol. I haven't had a drink since being diagnosed a month ago and will continue not to if that's the best course of action, but was unsure if occasionally having a drink or two is a big issue or not.
Can anyone with experience chime in that would be much appreciated. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - February 28, 2015 Category: Nutrition Authors: Mike Brown Tags: Nutrition Source Type: forums
Any ideas?
My son has struggled so hard with weight. He is 5'5, and weighs 76 pounds. He is pancreatic insufficent, enzymes are not the issue. He is allergic to gluten, milk, dairy, soy, and rice. Plus he has autism and because of textures and tastes he will only willingly eat 7 foods. He does have a g tube receiving 10-12 hrs feeds a day. Still everytime we gain a few, he ends up loosing them. He tends to hover between 75-77 pounds.
gi doc is amazing and has tried just about everything. He and the dietician are speaking with specialists outside the hospital to try to find a new formula with higher calories for him. He even h...
Source: Cystic Fibrosis Nutrition Forum - February 13, 2015 Category: Nutrition Authors: jshet Tags: Nutrition Source Type: forums
Weight and BMI before feeding tube?
Okay, so I am trying to find out from CF folks what was your BMI and weight prior to getting a feeding tube and did you gain weight after placement and if so how much? I've lost quite a bit of weight since my Celiacs diagnosis and I was concerned cause my BMI is 19.32 right now and I weight 110lbs. I also can't have dairy products or anything with soy protein cause I have cross-reactivity issues due to the Celiac so this makes gaining weight difficult. I know, eat avocados, peanut butter (which I hate), nuts, olive oil, ect. but there's only so much of that stuff you can eat and I'm starting to feel completely uninterested...
Source: Cystic Fibrosis Nutrition Forum - December 27, 2014 Category: Nutrition Authors: RobinB29 Tags: Nutrition Source Type: forums
Memo box - an aide memoire for pills : is it sufficient?
Dear community,
My son was born 8 weeks ago with CF (meconeum ileus). I don't know that much about the practical treatment yet but I have belief in digitalisation.
On that account, I saw this project on Kickstarter: https://www.kickstarter.com/projects...lls-and-vitami
It's a pill box that connects with a mobile device and keeps you up to date concerning the intake of medicine.
In their revised idea, they do have 7 day boxes divided in even smaller compartiments.
I've contacted the creators and they're willing to adapt their design to your needs.
But, in order to pass on demands, I need to know what you need.
How woul...
Source: Cystic Fibrosis Nutrition Forum - November 11, 2014 Category: Nutrition Authors: Arphy Tags: Nutrition Source Type: forums
Take a break from enzymes?
Will I notice any immediate changes or would they be more gradual if I don't take as many enzymes as I should or stop taking them for awhile? I'm only mildly PI, take 8-10 5,000 lipase unites/pill for each meal and 3-4 pills for each snack that has protein or fat. Any thoughts? I know it depends on a lot of stuff...so it might not be that fair of a question... (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - September 28, 2014 Category: Nutrition Authors: Michael Klein Tags: Nutrition Source Type: forums
I probably need enzymes for medical brownies?
So I feel like an alien sometimes. Because there are times I eat a ton of dairy or meat without enzymes, and I feel perfect. I do eat a lot of yogurt during those times, which makes me even more confused cause isn't there a nice amount of fat in yogurt??
I am a medical patient for my state. So this is something I've wondered about. Like whenever I eat normal brownies i never take enzymes, but I'm wondering since this is medical grade brownies with thc would i need enzymes to feel the benefits ???
This is a touchy subject ik. Some of you may be for it, especially since you have cf. while others may not be for it. my pol...
Source: Cystic Fibrosis Nutrition Forum - September 14, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums
Mum needs help on getting toddle to use a sippy cup to drink is milk
Hi I was hoping for some advice on my 2 year old. He won't drink his milk/pediasure through anything other than a baby bottle we have been trying to switch him for ages, his twin sister is already on to using a grown up cup, And while there are a million forums on the net saying don't give in and only offer a sippy cup my little one is not a great eater either so this is his main source of calories and with our clinic breathing down our necks on weight gain I don't think I can do the wait it out thing with him. He will happily use a sippy cup of any variety for water.
also any advice on getting a toddler with cf to eat - ...
Source: Cystic Fibrosis Nutrition Forum - September 12, 2014 Category: Nutrition Authors: lovemyboy507 Tags: Nutrition Source Type: forums
Dr Adrienne Sprouse
https://m.youtube.com/watch?v=iMkQT18RVqc
My good friend Adrienne always can say something important in a minute! (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - August 27, 2014 Category: Nutrition Authors: Imogene Tags: Nutrition Source Type: forums
How to know Creon is helping
Hi,
I'm new to the board. My doctor suspects pancreatic insufficiency and I'm trying samples of Creon 36,000. So far I've been trying them two weeks and having mixed results.
Some days it feels like my energy is better and I'm making myself eat more fat and calories. However, somedays the constipation and energy is bad. I used to have frequent loose stools, but they stopped being bad after taking antibiotics earlier this year. Now I'm more constipated. But if I eat a lot of fat, the stools will be loose. I have a few questions that I would love to hear thoughts on:
How will I know if Creon is working?
Does the gas/bloat...
Source: Cystic Fibrosis Nutrition Forum - August 10, 2014 Category: Nutrition Authors: Chrono34 Tags: Nutrition Source Type: forums
Check out my blog!
Hi everyone! I've launched a new blog, Sardines on the Subway, about my experience using a Paleo diet to treat my CF symptoms. I'm only a few posts in but I'd love for more people from this community to take a look: www.sardinesonthesubway.com. And leave a comment to let me know what you think. Thanks so much! (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - August 5, 2014 Category: Nutrition Authors: AH11201 Tags: Nutrition Source Type: forums
Is it illegal to reuse an "outdated" prescription?
So for the past year I've gone through trial and errors with my doctors trying out different prescription (ie. Paxi, Prozac, Klonopin, Xanax, etc.). About 8 months ago I asked my doctor to switch me from Klonopin back to Xanax (something I had taken previously) because I figured that worked better. I still have my Klonopin prescription bottle with some pills in it, if I were to finish off that bottle, would that be illegal? It still has about 10 pills in it, so it'd take me about 5 months to use it all up. (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - July 29, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums
High Fiber Diet??
I've been trying to figure out how my own GI system works for years and have never quite been able to determine what works best in terms of absorption. I had a large portion of my colon removed when i was about 4 or 5 due to an obstruction caused by my doctor at the time prescribing massive amounts of enzymes. I always have issues with very loose and frequent stools. I eat something and 30 minutes later out it comes. Particularly in the morning, which is why i try to stick to smoothies in the morning instead of whole foods, seems to put much less stress on my insides. Anyways, recently i've been experimenting with a consum...
Source: Cystic Fibrosis Nutrition Forum - June 24, 2014 Category: Nutrition Authors: uklejasm Tags: Nutrition Source Type: forums
If i dont take my enzymes with a meal high in fats and proteins and what not will I..
Will I not digest the calories? Or will I only get calories from the foods I can digest, like veggies and fruit.
I'm watching what I eat while working out and I sometimes cheat and eat high calorie foods, so what I do is I don't take my enzymes, cause my reasoning is if I can't digest it I don't get any of the calories. Is this true? If not, how's it work? (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - June 6, 2014 Category: Nutrition Authors: Enzo2311 Tags: Nutrition Source Type: forums
Vit E in olive & sunflower oil may help lungs
while vit E in corn, canola, soybean oil may harm lungs.
http://well.blogs.nytimes.com/2014/0...ef=health&_r=0 (Source: Cystic Fibrosis Nutrition Forum)
Source: Cystic Fibrosis Nutrition Forum - June 4, 2014 Category: Nutrition Authors: Melissa75 Tags: Nutrition Source Type: forums
