Schuyler's New Tool
This afternoon, over at the 504:Most of all, accommodating the social integration challenges of assistive technology gives Schuyler and kids like her the possibility of a measure of independence and self-determination. Those are goals that are both persistent and tenuous. For Schuyler and her friends, self-advocacy is vital, but it flutters through their lives on gossamer wings. It's delicate, and it falls apart so easily. (Source: Schuyler's Monster: The Blog)
Source: Schuyler's Monster: The Blog - April 29, 2013 Category: Diabetes Authors: Rob Rummel-Hudson Source Type: blogs
"...and I just want to go with you..."
Mothers and fathers have very different relationships with their children. I would never try to describe Schuyler's relationship with her mother, mostly because it's not my story to tell, and I don't understand it all that well myself.As she grows older, I like to think that Schuyler's relationship with me becomes easier to comprehend, although that's not a given. It's certainly stronger now than it's ever been, which to the parent of a teenager is a very welcome surprise. And yet, it is still very much true that our best moments come in wordless appreciate of each other. We curl up together on the couch and watch terrible...
Source: Schuyler's Monster: The Blog - April 28, 2013 Category: Diabetes Authors: Rob Rummel-Hudson Source Type: blogs
A Question of Trust
I have trust issues. I know this. I'm working on that.Recently I posted a piece for Parenting.com ("The Negotiating Season") describing my perception of the IEP process. I didn't intend to present it as anything other than my own perspective, but looking back on it now, I guess I did kind of voice it in terms of a near-universal experience. I'm not terribly apologetic about that; my own conversations with countless parents has led me to the pretty solid conclusion that if anything, we've got it better than almost every other special needs family in the world. So, you know, yay for us, but boo to the bigger picture.It wasn'...
Source: Schuyler's Monster: The Blog - April 26, 2013 Category: Diabetes Authors: Rob Rummel-Hudson Source Type: blogs
GUEST POST: The Queen of Monsters
Note: Schuyler and I were talking the other day about how she's going to use her new iPad Mini to express herself. She said she wants to write ("Like you, Daddy-O!"), and I asked her if she wanted to put together a little something for my blog. She said yes.I helped her spell two words and I helped her clarify one concept that she was having trouble expressing, but otherwise it's exactly as she wrote it. (Before she changed it, she referred to her voice and her brain together as her "word box", which I thought was fascinating.) She even picked (and helped create) the picture.Now, I'm not sure how to say this next part with...
Source: Schuyler's Monster: The Blog - April 22, 2013 Category: Diabetes Authors: Rob Rummel-Hudson Source Type: blogs
