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Alternative Pain Medicine
Hi all! I posted in the Adult Section just now - but wanted to post here as well. Looking for some alternatives to pain medicine - my BF is currently taking VICODIN (6-8 pills per day) to manage his chronic pain from CF and also to deal with the pain that comes with his recent lung surgery (left lung had collapsed recently) His current pain doctor feels that he is abusing the pain medicine, he is a 26 year old male (BF) Looking for some suggestions/help! We are in the process in looking for a new doctor for a second opinion but I would love to hear some alternative pain medicine that helps with the pain in the inner ...
Source: Cystic Fibrosis Alternative Medicine Forum - January 31, 2013 Category: Respiratory Medicine Authors: Nicole Emily Buckley Tags: Alternative Medicine Source Type: forums

More Active
I really wish this section of CF.com was more active. I believe we could really change the CF community with this info. Check out my blog www.insidecf.blogpsot.com and see how Im using alternative medicine and diet. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 29, 2013 Category: Respiratory Medicine Authors: jbrandonAW Tags: Alternative Medicine Source Type: forums

Alternatives to Aquadeks
I was very disappointed to read that my Aquadeks have food dyes and GMOs on the ingredient list- can any of you recommend an alternative with a comparable vitamin profile? Thanks! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 11, 2013 Category: Respiratory Medicine Authors: jmiller1 Tags: Alternative Medicine Source Type: forums

Halo?
Hi All! Has anyone seen this new Halo product or tried it? (http://halogermdefense.com/) Is it safe for CFers? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - November 29, 2012 Category: Respiratory Medicine Authors: smurn Tags: Alternative Medicine Source Type: forums

CF related bowel cancer and alternative therapies?
Hi I am 12 years post lung transplant for CF. Last year, I was diagnosed with small bowel adenocarcinoma at 39, did surgery and chemo ,and five months after stopping chemo , it came back and metastasized. I had more surgery and am doing chemo again. My oncologists have never seen a CF -post-lung transplant pt with cancer before so I feel like I am playing doctor in this role as an expert of my body and doing my own research on PubMed, ect. has any other cf adult out there had bowel cancer and how did you handle it with the docs? were you post-transplant ? if so, how did you handle the chemo and immunosuppressants? Did...
Source: Cystic Fibrosis Alternative Medicine Forum - November 18, 2012 Category: Respiratory Medicine Authors: amstenzel Tags: Alternative Medicine Source Type: forums

Wanted: Participants for test group homeopathic treatment of Cystic Fibrosis
. Hello, My name is Deny De Meyer, I am a Belgian classic homeopath. Currently, I’m in the process of starting up a test group of people with cystic fibrosis, for a homeopathic treatment of 3 months. It’s my intention to gather a lot of experience over a short period of time regarding the treatment of CF-patients by means of homeopathy: to see how deep homeopathy can affect them and what results are possible. You might be wondering, “A Belgian homeopath, what’s she doing here on this American forum?” In order to achieve as much information as possible over such a short time, it is necessar...
Source: Cystic Fibrosis Alternative Medicine Forum - October 30, 2012 Category: Respiratory Medicine Authors: Deniee55 Tags: Alternative Medicine Source Type: forums

Anyone have any experience with Quinton or Marine Plasma?
My wife is pregnant with a CF baby due in January. My aunt owns a health products company in Colorado and she's been doing some research and talking with doctors and she highly suggests that we start some treatments with a product called Quinton which i believe is also called marine plasma. It's supposed to be great for all around health and help fight diseases/sickness etc. She's sending 6 boxes for free to get started which is awesome, and so far I haven't seen anything negative about it. Does anyone have any experience with this stuff? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - October 10, 2012 Category: Respiratory Medicine Authors: dougs280z Tags: Alternative Medicine Source Type: forums

chiropractor
Just wondering what your thoughts are on chiropractic care for a cfer. Does it help? Does it improve lung function and overall well being. Considering it for my daughter. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - October 5, 2012 Category: Respiratory Medicine Authors: Bella's-mom Tags: Alternative Medicine Source Type: forums

Possible new way to fight lung infections
Check out this article. http://www.spiritindia.com/health-ca...cles-7534.html A study done in collaboration with the University of Washington found that using a metallic "Trojan Horse" - tricking the bacteria by replacing the iron they need from their environment with the metallic element gallium - can ki ll bacteria. The study will appear in the April 2 issue of the Journal of Clinical Investigation. The UC team headed by Bradley Britigan, MD, chairman of the internal medicine department at UC and staff physician at the Cincinnati Department of Veterans Affairs Medical Center, found substituting galliu...
Source: Cystic Fibrosis Alternative Medicine Forum - September 4, 2012 Category: Respiratory Medicine Authors: rmotion Tags: Alternative Medicine Source Type: forums

M. abscessus patient recovers using bioactive compounds and supplements
My husband is recovering very nicely from M. abscessus after using an intensive regimen of bioactive compounds and supplements. New website with all the information is ntmnews.com. http://www.prweb.com/releases/2012/7/prweb9701215.htm (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - July 16, 2012 Category: Respiratory Medicine Authors: sedonagate Tags: Alternative Medicine Source Type: forums

Anyone Heard of MSM / DMSO?
My Dad has found, through research, a naturally ocurring compound called MSM. Naturally ocurrs in the body and in many foods. Basically a sulphur that our body needs. Why does it POTENTIALLY relate to CF? Because MSM affects cell membranes, especially mucous membranes. It basically naturally coats cell membranes to help relieve them of excess pressure, fluid and toxins. It is believed to have amazing anti-inflammatory effects. I found a few articles referencing MSM use for the respiratory and digestive tracts. There aren't many studies done on this, and as usual, our ridiculous FDA does not want to approve this. Only side ...
Source: Cystic Fibrosis Alternative Medicine Forum - June 29, 2012 Category: Respiratory Medicine Authors: 3RingCircus Tags: Alternative Medicine Source Type: forums

Inhaled glutathione
.....how many times a day do you use it? When in the daily routines do you use it? During vest? Immediately after vest? Where in the list of other inhaled Meds does it find the greatest benefit in your experiences? (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 27, 2012 Category: Respiratory Medicine Authors: brianbrandi Tags: Alternative Medicine Source Type: forums

Vitamins...
The cf clinic called and said my oldest DD's vit D is low and she should now take two source CF's. She is already taking one source cf, 1 vit D3 2,000 IU's, faxseed, garlic, fish oil, and vit C. I told her she was supposed to take a second source CF and she groaned. So now I'm in search of better ways to get this under control. I guess part of me is just frusterated that instead of trying to help us find better food's the clinics are quick to push pills. Well there is no guarantee the pills are even worth the money that is spent on them. So we're just shoving random stuff in their bodies hoping it works? We have removed gl...
Source: Cystic Fibrosis Alternative Medicine Forum - June 27, 2012 Category: Respiratory Medicine Authors: mysticrose Tags: Alternative Medicine Source Type: forums

Cure diseases/infections/viruses with microcurrents
I originally posted this link int he Adults section but then noticed this section and thought it might be best suited here. Very interesting video I cam accross while searching stuff. draw from it what you will, some might totally not belive it and think it's crazy but who knows. I guess when you're deperate enough you'll try anything and it seems they've got quite a bit of evidence of it working - all be it suppressed or even dismissed to the public. Anyway here it is <a href="http://video.google.ca/videoplay?docid=2095786730805958061&q=bob+beck&tot al=241&start=0&num=10&so=0&type=search&a...
Source: Cystic Fibrosis Alternative Medicine Forum - June 26, 2012 Category: Respiratory Medicine Authors: lilmac7 Tags: Alternative Medicine Source Type: forums

AP for green smoothies
A while back Josh had candida overgrowth and began drinking green smoothies as a part of his treatment. We had a recipe book, but I just found this AP that gives good info about the health benefit if each ingredient too. Just thought I'd share. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 24, 2012 Category: Respiratory Medicine Authors: Jane Tags: Alternative Medicine Source Type: forums