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Please help I have Pseudomonas Aeruginosa bug in my lungs
Hi you all, I am new to the forum.I am looking for help and suggestion or anybody with same condition who has this bug in their lungs Pseudomonas Aeruginosa.I have this bug in my lungs for past two years and throw up blood with mucus often,my doctor has put me on Tobi and other antibiotics but it helps for while and nothing.......! I am thinking of doing collidal silver through nebulizer any thoughts....! Please help! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - April 20, 2014 Category: Respiratory Medicine Authors: acdkm Tags: Alternative Medicine Source Type: forums

Surprising Results with Essential Oils! Give it a Go!
**This by no means is "official" help for CF. This is simply my experience and what I have discovered from personal use. Sorry for the lengthy post but it is worth reading. Also, I'm trying to help and post this to a lot of my CF forums so it might be filled with some obvious info. MY PROBLEMS: I have not had many issues until 5 years ago. For the first couple of those years I was required to have 2 week hospital admissions for IV antibiotics every few months, then as time progressed and my lungs continued to scar my admissions became more frequent causing more resistance to various antibiotics. A big problem w...
Source: Cystic Fibrosis Alternative Medicine Forum - March 22, 2014 Category: Respiratory Medicine Authors: TheSaltyOne Tags: Alternative Medicine Source Type: forums

Early Stage Treatment for Breast Cancer Patients
iCAD has announced that more than 1,000 early stage breast cancer patients have been treated with Intraoperative Radiation Therapy (IORT) . (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - March 14, 2014 Category: Respiratory Medicine Authors: emilymainzer Tags: Alternative Medicine Source Type: forums

A miraculous home remedy !!!!!
I have a miracuolous home remedy that almost completely solve my problems. It's drinking Sodium-Chloride solution !!! Just a little every day, I also inhale it (boil it then inhale) and it cured muy lungs, I tried it first a month ago and it was a miracle to me. I advice everyone to try it. It is probably so beneficial as the main problem with cf is actually not transporting water and electrolites through lungs, intestines etc. This was a true miracle for me I advice everyone to try it it can do no harm. drinking Sodiium-Chloride solution for intravenouous rehidratation!!!​ A miraculous home remedy!!! (Source: Cysti...
Source: Cystic Fibrosis Alternative Medicine Forum - February 4, 2014 Category: Respiratory Medicine Authors: purple88 Tags: Alternative Medicine Source Type: forums

Anyone who took respiratory scleratoma massages.
Hi, Am mother of 3yrs old boy with double copy of df508. I am actively pursuing alternative medicine for my son. A naturopath I consulted suggested me about dr Kauffman's scleratoma techniques to deal with my sons frequent lung infections. He has given me few internet links (below) to understand the scleratoma techniques. there are many scleratomas but my interest is on this respiratory scleratoma. http://bulk-mail.axint.net/pipermail...st/000059.html http://bulk-mail.axint.net/pipermail...er/000070.html terrywilliamsasthama in YouTube i understand these are some massages to turn on the reflexes. I have no clu...
Source: Cystic Fibrosis Alternative Medicine Forum - February 4, 2014 Category: Respiratory Medicine Authors: Mallika Tags: Alternative Medicine Source Type: forums

IT Works Greens
Hi, Has anyone tried the IT Works Greens??? Curious if you have had any benefit. I have been reading a lot about this and it seems to have many superfoods in it. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - January 15, 2014 Category: Respiratory Medicine Authors: awagner Tags: Alternative Medicine Source Type: forums

Himalayan Salt Inhaler
Hey fellow CFers, I was wondering if anyone has heard of the Himalayan Salt Inhaler? Dr. Oz had it marked as one of the best new products. I was curious to know if anyone with CF has used it and if so, how did you like it/did it help you? This inhaler seems like it would be beneficial, of course, I will continuing my current medications. The Himalayan Salt Inhaler would not replace other medications that the doctors prescribe. Below is a link for the inhaler http://www.himalayansaltinhaler.com/ Thank you for your help and feedback! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - September 14, 2013 Category: Respiratory Medicine Authors: AmberFerguson Tags: Alternative Medicine Source Type: forums

Success killing Stenotrophomonas Maltophilia with TOBI Pod Inhaler
We've had a rough year dealing with the colonization of a new bug, Stenotrophomonas Maltophilia which is quite med resistant. They did an experiment on my daughter's sputum in a petri dish with TIP(TOBI Pod Inhaler) which is normally used to eradicate Pseudomonas Aeruginosa. and it killed some Steno! We started using the TIP on June 28th and our sputum sample from July 26th shows that the bacteria count has gone from 10 to the power of 4 to 10 to the power of 3. It's working! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - August 2, 2013 Category: Respiratory Medicine Authors: myfanwy Tags: Alternative Medicine Source Type: forums

New website on CF nutrition and natural health care
Hey folks. I hope you're well. I just wanted to let you know I have created a new website focused on sharing the science and research behind CF, proper nutrition, and natural health care. I've collected a lot of information on what kinds of foods CFers need and what kinds of foods we must avoid, plus some more in-depth science on how CF works at the cellular level up. I also explain what kinds of nutritional experiments I've been doing and how this has improved my health and quality of life. My goal is to empower CFers to make informed decisions about what we should be allowing into our bodies and how this impacts our heal...
Source: Cystic Fibrosis Alternative Medicine Forum - July 26, 2013 Category: Respiratory Medicine Authors: Epona Tags: Alternative Medicine Source Type: forums

A 10m $ Paper Based Device to Detect Infectious Diseases
University of Washington got funds about 10m dollar to develop paper-based device which can test and detect infectious diseases. In the initial stage they started testing influenza virus & other sexual transferred diseases. Here are more details about this news. (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 28, 2013 Category: Respiratory Medicine Authors: emilymainzer Tags: Alternative Medicine Source Type: forums

Has anyone had any experience with using public Steam Rooms and Saunas
I joined a gym/health club that has a nice steam room that they infuse with essential oils, and they also have a big sauna. Basically I feel really tempted to try them out after a workout. Has anyone had any experience with public steam rooms and saunas? I'm 22 and have Cystic Fibrosis. Thanks, Genevieve (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - June 20, 2013 Category: Respiratory Medicine Authors: Genevieve11 Tags: Alternative Medicine Source Type: forums

Anyone had experience with essential oils?
Hi there, I was curious if anyone has had any experience with essential oils, particularly do Terra brand? I have read some really encouraging testimonials on these and I am continuously looking for ways to combine my conventional CF clinic medical model with alternative therapies to boost my overall health and wellness. I would love to hear any feedback! Thank you! (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 22, 2013 Category: Respiratory Medicine Authors: kristenj Tags: Alternative Medicine Source Type: forums

diffusing essential oils
I have several friends who claim great success keeping their families healthy by using essential oils in a diffuser. In doing some research on the web, I found that there are certain oils that can be greatly helpful for those with CF, but I also found that there can be some concern for CF kids about any diffuser that uses water along with the oil? Not sure why? Anyone here use a diffuser or know which ones do or do not use water? or if that's even being overly worried and I can really pick whatever diffuser I want? ;) TIA - Heidi mom of Dekorrah - 5mo son with Delta F-508 CF (Source: Cystic Fibrosis Alternative Medicine Forum)
Source: Cystic Fibrosis Alternative Medicine Forum - May 14, 2013 Category: Respiratory Medicine Authors: heidikk Tags: Alternative Medicine Source Type: forums

Smoking Pot/RSO Oil
I have been using Rick Simpson Oil now for 3 weeks and I have seen some amazing results.http://phoenixtears.ca/ I have also been smoking Marijuana for a year now. Ive found that it breaks and forces that mucus up. Sure the coughing hurts and is certainly not fun but if you can tough out the painful part smoking gets easier over time and the pain relief is almost instant! Anyone else experiencing great results with Marijuana use? I was not ever officially diagnosed with CF we started to suspect I had it a year ago. Over time I noticed my "asthma" attacks getting worse and worse and it feels like I have a lung infe...
Source: Cystic Fibrosis Alternative Medicine Forum - March 4, 2013 Category: Respiratory Medicine Authors: burnanator420 Tags: Alternative Medicine Source Type: forums

colloidal Silver?
Hello All! This is my first time posting, but I am desperately trying to find information about colloidal silver. There is some talk bubbling up among my Cf community about nebulizing colloidal silver, so I wanted to get a feel for it from y'all. I've been trying to find research on the issue but all I can come up with is claims by the actual companies selling the product. I will admit I am very skeptical, so this post will reflect my fear. Please know I am not trying to offend anyone or start an argument, but I would like to see some healthy debate on the issue. I think we can be adults and not get everyone's ire up...
Source: Cystic Fibrosis Alternative Medicine Forum - February 11, 2013 Category: Respiratory Medicine Authors: politicaljules Tags: Alternative Medicine Source Type: forums