Using “citizen scientists” and crowdsourcing to spur medical progress
Preparing for this TEDMED talk gave me a wonderful occasion to pause and reflect.  With the release of the talk I have the space to give more color to experiences and ideas I shared there. When my husband Pat and I were faced with the pseudoxanthoma elasticum (PXE) diagnosis of our children, we were shocked. The linear, idyllic, progression of life that we expected was derailed. Instead, a surreal unfolding ensued. Day by day we realized that we couldn’t go backwards to BEFORE. We also realized that we would have to go ahead into a space we never knew existed. This foray into biomedical research was beyond groping i...
Source: Disruptive Women in Health Care - November 30, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

It Takes a Village, and a Tribe: Women Help Women Locally, Globally
The idea that “it takes a village” to raise children and maintain a healthy community has resonated for women all over the world ever since the 1975-85 UN Decade for Women brought women together from every corner of the world. “Women hold up half the sky,” became another mantra heard often at the 1995 review of the Decade known as the Fourth World Conference on Women. I thought about both expressions, reminders of women’s solidarity, strength, survival skills and commitment to social change and human rights, when I worked with pregnant refugee women in Greece recently. The experience grew out of my communication ...
Source: Disruptive Women in Health Care - November 30, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Disruptive Women Celebrates Independence Day
As we get ready to celebrate July 4th I wanted to share some thoughtful words, difficult questions, and wonder how it is that in 2017, there are many in the US who do not know what it means to be free, to be independent. We have made such encouraging progress but before too many hotdogs and apple pie are consumed, join me in watching this video. You might want to go easy on the fireworks, until we can answer Frederick Douglass’ question: “What to the American slave, is your Fourth of July?” Here: https://www.youtube.com/watch?v=L60475SRXkk&sns=em The post Disruptive Women Celebrates Independence Day appeared fi...
Source: Disruptive Women in Health Care - November 30, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Tech Tonics Podcast: Margaret Laws – Where Non-Profit & For-Profit Healthcare Innovation Collide
Margaret Laws has been working at the intersection of the for-profit and not-for-profit healthcare world for many years. This world has had an explosion of activity to find solutions to major public health and personal health challenges; according to Margaret, these worlds are beginning to blur and the newest foundations and non-profits are actively trying to bring the resources and discipline of private business sector to the big problems we are facing in the social sector. Her life’s work has been to straddle both of these worlds and try to bring them together. Today Margaret is CEO of HopeLab, an Omidyar Group ent...
Source: Disruptive Women in Health Care - November 30, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

How to sleep during pregnancy ? must read
Sleeping in pregnancy! Is it comfortable for you? If you are a stomach sleeper then you have to switch sleep positions to put up your growing girth. Once you are pregnant, getting comfortable at night is no easy achievement. Finally your back is painful; your belly is threatening to take over the bed and your legs are cramping. Overall, you have to understand that which position is the safest as well as best for sleeping during pregnancy. Sleep During Pregnancy There are numerous reasons why pregnant ladies might have trouble receiving sufficient sleep, for example getting up regularly to urinate, stomach problems such as ...
Source: Disruptive Women in Health Care - November 30, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Hello world!
Welcome to WordPress. This is your first post. Edit or delete it, then start writing! The post Hello world! appeared first on Disruptive Women in Health Care. (Source: Disruptive Women in Health Care)
Source: Disruptive Women in Health Care - November 29, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Hello world!
Welcome to WordPress. This is your first post. Edit or delete it, then start writing! (Source: Disruptive Women in Health Care)
Source: Disruptive Women in Health Care - November 29, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Learning to Love Yourself by Becoming Someone Else
“We’re all born naked, the rest is drag.” – Rupaul I am a drag king, meaning I was assigned female at birth and take on a male persona in my performance. In addition to being fun and making me money, becoming another character for a night helps me to better appreciate being myself. I first started performing as a drag king while I was a student at Oberlin College. Each year, the campus hosted a legendary drag ball (so massive it was once covered by MTV-!) where you could compete for cash prizes, so as a lifelong lover of attention and player of dress-up, I was in! At the time, I identified as a femme and presented ...
Source: Disruptive Women in Health Care - October 1, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

How to Train Your Thanksgiving Guests to Compost
Oh no, you don’t,” my mom says as Uncle Jimmy attempts to scrap leftover green beans into the garbage.“That goes in my compost!” Acting as the compost police at holidays is perfectly acceptable with close family members but you may not want your in-laws to think you’re cuckoo for compost. Here are some tips to offer more gentle suggestions to your Thanksgiving guests about how to separate food scraps for composting. 1. Place containers near trash Everyone seems to congregate in the kitchen at gatherings, so make your compost container easy to access in a crowded kitchen 2. Upgrade and label container Especially d...
Source: Disruptive Women in Health Care - October 1, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Diabetes – Who’s in Control?
What if you had no control over what you ate, when you ate, how much energy you had, or what you weigh? What if, on top of this, you had to test your blood 6 times a day and give yourself injections, carrying around your supplies constantly so you would be ready no matter what else was going on in your life? Now, throw in that you are 15 and just want to be normal, like everyone else, eating pizza when you feel like it and going wherever you wanted? Kimberly Young was that teenager. She, likes hundreds of thousands of other American teenagers, has type 1 diabetes. Diagnosed at the age of 4, she was never like other kids. S...
Source: Disruptive Women in Health Care - October 1, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Jeanne Pinder: Woman to Watch 2014
Pursuing the deeper narratives behind health care stories throughout her professional career, Jeanne started as a journalist at the age of 13. Celebrated by Todd Park, Chief Technology Officer of the United States, as well as the New York Times, the Tow-Knight Foundation, and the McCormick Foundation’s New Media Women Entrepreneur’s Program, Jeanne launched ClearHealthCosts to bring transparency to health care by sharing cost information in a searchable, online platform through crowdsourcing out-of-pocket expenses from patients. WZ: When you first launched into the professional world, what career paths were you conside...
Source: Disruptive Women in Health Care - October 1, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Apne Aap: Stopping Intergenerational Prostitution in India
As I hold the fragile baby named Khushi in my arms, I smile. She looks healthier than she has in the past few weeks. Her life was almost over before it began. She is four months old but the size of a newborn. Born at home to a family of six siblings, her mother was struggling to keep her fed. She almost died of disease until Priyanka and Monika, two staff members of Apne Aap Women Worldwide, came and convinced the mother to take her to a hospital. Last fall, there was another baby boy the same age as Khushi. He too was born at home to a family of nine siblings. When he got very sick with a high temperature, we pleaded with...
Source: Disruptive Women in Health Care - October 1, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

What ’s the Best Way to Retain a Health Worker? Just Ask Her!
By Kate Tulenko. The world currently has a shortage of some 4 million health workers. This shortage is amplified by a complete mismatch between where health workers are stationed and where they are most needed. The healthier and wealthier a community is, the more health workers it has. The poorer and sicker a community, the fewer health workers it has. The situation is worsening as every year hundreds of thousands of health workers move from poor, rural, and underserved communities to wealthier, metropolitan communities with a surfeit of health workers. This occurs both within countries (a nurse moving from a rural area to...
Source: Disruptive Women in Health Care - September 27, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

Sixth White House Conference on Aging: Now It ’s Time to Do More. A Lot More.
Around the country, people at more than 700 “watch parties” gathered to tune into a livestream of the White House Conference on Aging (WHCOA) on Monday, July 13. Hosted by the White House in the East Wing and the Eisenhower Executive Office Building with an invited audience of about 200 attendees, the sixth WHCOA featured more than two dozen speakers, most notably President Obama. They heard about many accomplishments, a few shortcomings, and a commitment to taking forward some solutions—but not enough. Striking a tone that was both optimistic and pragmatic, the President observed that even as challenges for health c...
Source: Disruptive Women in Health Care - September 27, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs

17 Disruptive Women to Watch in 2017
Today, we are proud to launch our 17 Disruptive Women to Watch in 2017. As is our custom and commitment to our thesis—Disruptive Women seeks to highlight women from a broad cross-section of disciplines, all of whom profoundly impact health and health care. This year we are doing something different. Given the enormity of the issues we are facing globally, when it comes to Alzheimer’s Disease and related dementias, we are focusing this year’s class of extraordinary women on those who are committed to ridding the world of this scourge. Lest you think this affects only the elderly (whatever that means), have a look at t...
Source: Disruptive Women in Health Care - September 27, 2018 Category: Consumer Health News Authors: dw at disruptivewomen.net Tags: Uncategorized Source Type: blogs