Share Your ELSI Research Tools
by Deanne Dunbar Dolan, PhD
I write today to encourage ELSI scholars to deposit their published and unpublished research tools into the Research Tools repository on ELSIhub.
Since 1990, the ELSI Research Program at the National Human Genome Research Institute (NHGRI) has contributed meaningfully to the formation of a field of study focused on the ethical, legal, and social implications (ELSI) of genetics and genomics. Beyond investigator-initiated grants, NHGRI has supported training programs, Centers for Excellence in ELSI Research (CEERs), and most recently, the Center for ELSI Resources a...
Source: blog.bioethics.net - September 29, 2021 Category: Medical Ethics Authors: Blog Editor Tags: Clinical Trials & Studies Featured Posts Genetics Research Ethics Science ELSI genomic research legal research tools social Source Type: blogs
When Good Bioethicists Leave, What do we Lose?
by Keisha Ray, PhD
If you are a bioethicist who even casually engages with social media, specifically Twitter, you cannot miss the frequent posts and tweets where a bioethicist and/or academic physician announces that they are leaving academia. Their reasons for leaving academia typically range from salary complaints, dissatisfaction with their institution’s administration, being overworked, not having the resources needed to do their job well, a lack of job security, marginalization, and other complaints, often contributing to their experiences of burnout and mental distress.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - September 29, 2021 Category: Medical Ethics Authors: Keisha Ray Tags: Featured Posts Professionalism Source Type: blogs
Beyond the Belmont Report
by Wamia Siddiqui, BS and Richard R. Sharp, PhD
The following blog is an editorial found from the American Journal of Bioethics, Volume 1, Issue 10.
For decades, the Belmont Report—and the associated regulatory framework it inspired—has been a cornerstone in the ethical conduct of research involving human subjects. Despite its canonic status, there are many reasons to view the protections articulated in the Belmont Report as insufficient for managing the ethical challenges of biomedical research. For example, critics of the Belmont Report have suggested that its authors placed too much em...
Source: blog.bioethics.net - September 27, 2021 Category: Medical Ethics Authors: Blog Editor Tags: Clinical Trials & Studies Cultural Editorial-AJOB Featured Posts Health Disparities Human Subjects Research & IRBs Justice Research Ethics Social Justice American Indian and Alaska Natives Belmont Report Source Type: blogs
Why should we care about social and behavioral genomics?
By Daphne O. Martschenko, PhD, Lucas J. Matthews, PhD, Maya Sabatello, LLB, PhD
Only a couple of decades ago, extensive genetic testing seemed like science fiction – a distant future that might only be possible with complex and inconvenient medical procedures at a doctor’s office. But much has changed. From the comfort of one’s own home, direct to consumer (DTC) genetic testing companies now offer accessible and more affordable options for genetic testing. Consumers today can access reports on genetic ancestry from well-known companies like 23andMe or Ancestry.com.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - September 23, 2021 Category: Medical Ethics Authors: Blog Editor Tags: Children/Adolescents Diversity Education Featured Posts Genetics Health Disparities Social Justice behavioral genomics genetic testing social genomics Source Type: blogs
Hey Siri, How Do I Say Appendicitis in Hungarian?
by Vincent LaBarca, DNP, NP-C
Back in 2017, before Americans wereconsidered a biohazarddue to the country’s poor handling of COVID-19, I was bumming around Central Europe. Tracing the Danube, I was in Budapest, chowing down on bowls of goulash in between gulps of crisp pilsner.
The night before taking a train to Slovenia, my stomach started feeling some kind of way.
I evaluated my symptoms as I would any patient’s. Probably just indigestion or constipation from the goulash, I thought.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - September 20, 2021 Category: Medical Ethics Authors: Blog Editor Tags: COVID-19 pandemic Cultural Featured Posts Health Disparities Health Regulation & Law Justice Public Health Social Justice Vulnerable Populations interpretation language Source Type: blogs
Hey Siri, How Do I Say “ Appendicitis ” in Hungarian?
by Vincent LaBarca, DNP, NP-C
Back in 2017, before Americans were considered a biohazard due to the country’s poor handling of COVID-19, I was bumming around Central Europe. Tracing the Danube, I was in Budapest, chowing down on bowls of goulash in between gulps of crisp pilsner.
The night before taking a train to Slovenia, my stomach started feeling some kind of way.
I evaluated my symptoms as I would any patient’s. Probably just indigestion or constipation from the goulash, I thought.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - September 20, 2021 Category: Medical Ethics Authors: Blog Editor Tags: COVID-19 pandemic Cultural Featured Posts Health Disparities Health Regulation & Law Justice Public Health Social Justice Vulnerable Populations interpretation language Source Type: blogs
AJOB Webinar on VACCINE MANDATES
Please join us for our next AJOB webinar on VACCINE MANDATES, moderated by David Magnus, with panelists Arthur Caplan, Seema Mohapatra, Matthew Wynia, and Kevin Schulman.
September 17th, 8:30a – 9:30a PST // 11:30a – 12:30p EST
Register here: https://bit.ly/vaccinemandates
Can’t make it? No worries. We always record & post our webinars on YouTube.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - September 14, 2021 Category: Medical Ethics Authors: Bela Fishbeyn Tags: Featured Posts Webinar vaccine mandate Source Type: blogs
In Memoriam: Kenneth Kipnis, PhD
Haavi Morreim, JD, PhD
My remembrance of Ken begins by borrowing from his obituary (https://www.mykeeper.com/profile/KennethKipnis/):
Kenneth Kipnis, philosopher, medical ethicist, and Professor Emeritus at the University of Hawaii at Manoa, died peacefully on August 26th, 2021, in Portland, Oregon. …
Ken forged his career as a self-described “field ethicist” in the Socratic tradition. Working with professionals across a wide variety of disciplines — especially medicine, law, and public health — he sought to apply philosophical principles to complex moral dilemmas.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - September 8, 2021 Category: Medical Ethics Authors: Blog Editor Tags: Featured Posts In Memoriam Source Type: blogs
Bioethicists Respond: Now That The Pfizer Vaccine Has Full FDA Approval, What Does This Mean For The Covid-19 Pandemic?
In this series, we ask bioethicists to respond to a question that embodies current challenges for bioethics, medicine, or health care. In this blog, bioethicists were asked to share their thoughts on “Now That The Pfizer Vaccine Has Full FDA Approval, What Does This Mean For The Covid-19 Pandemic?” Here are their responses:
Vivian V. Altiery De Jesus, MD, MBE and Shika Kalevor MBE, BSN, RN
Vivian V. Altiery De Jesus
Approval of Pfizer’s COVID-19 vaccine by the Federal Food Administration (FDA) is without doubt a milestone.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - September 7, 2021 Category: Medical Ethics Authors: Blog Editor Tags: COVID-19 pandemic Featured Posts Public Health Uncategorized Vaccines Source Type: blogs
Bioethicists Respond: “ Now That The Pfizer Vaccine Has Full FDA Approval, What Does This Mean For The Covid-19 Pandemic? ”
In this series, we ask bioethicists to respond to a question that embodies current challenges for bioethics, medicine, or health care. In this blog, bioethicists were asked to share their thoughts on “Now That The Pfizer Vaccine Has Full FDA Approval, What Does This Mean For The Covid-19 Pandemic?” Here are their responses:
Vivian V. Altiery De Jesus, MD, MBE and Shika Kalevor MBE, BSN, RN
Vivian V. Altiery De Jesus
Approval of Pfizer’s COVID-19 vaccine by the Federal Food Administration (FDA) is without doubt a milestone.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - September 7, 2021 Category: Medical Ethics Authors: Blog Editor Tags: COVID-19 pandemic Featured Posts Public Health Uncategorized Vaccines Source Type: blogs
The Current State of Efforts to Address Disparities, Racism and Cultural Humility in Medical Education
by Ross E. McKinney, Norma Poll-Hunter and Lisa D. Howley
The following blog is an editorial found in the latest issue of American Journal of Bioethics. You can find it here: https://www.tandfonline.com/toc/uajb20/21/9?nav=tocList
Racism is a complex problem in the US that is institutionalized, personally mediated, and internalized (Jones 2000). Within medical education the recognition and response to structural racism is beginning to take shape in response to COVID-19 and recognition of the nature of anti-Black public acts. The verity of structural racism as a major cause of health-related disparities ...
Source: blog.bioethics.net - August 27, 2021 Category: Medical Ethics Authors: Blog Editor Tags: Cultural Editorial-AJOB Education Ethics Featured Posts Source Type: blogs
The Pandemic of the Unvaccinated: John Stuart Mill and Mandates
By Brian M. Cummings, MD and John J. Paris, SJ, PhD
John Stuart Mill proclaimed, “Over himself, over his own body and mind, the individual is sovereign.” Mill’s statement appears to come in conflict with public health expert mitigation recommendations. How can we mitigate a pandemic when individual sovereigns chose not to follow these recommendations. The United States is experiencing a fourth surge of Covid-19 infections and hospitalizations related to the delta variant. This is despite the profound effectiveness of available vaccines in preventing serious illness, hospi...
Source: blog.bioethics.net - August 11, 2021 Category: Medical Ethics Authors: Alyssa Burgart Tags: Conflict of Interest Featured Posts Health Policy & Insurance Health Regulation & Law Philosophy & Ethics Public Health Vaccines John Stuart Mill vaccine mandate Source Type: blogs
#FreeBritney: Autonomy, Conservatorships, and Mental Health in America
By Jennifer L Young, PhD, Julia E H Brown, PhD, Nicole Martinez-Martin, JD, PhD
In a small but significant change of the tide, Britney Spears has been granted permission to have her own lawyer, to pursue her request to end her 13-year long conservatorship under the hands of her father. This has sparked a reassessment of the ethics of conservatorships, or legal guardianships, and how to distinguish between what Spears described as “conservatorship abuse” and a moral obligation to protect vulnerable people. … (Source: blog.bioethics.net)
Source: blog.bioethics.net - August 2, 2021 Category: Medical Ethics Authors: Blog Editor Tags: Conflict of Interest Cultural Decision making Featured Posts Gender Disparities Justice Media Psychiatric Ethics #FreeBritney Conservatorship mental health Source Type: blogs
Standard Racism: Trying to Use Crisis Standards of Care in the COVID-19 Pandemic
By George J. Annas and Sondra S. Crosby
This editorial can be found in the latest issue of American Journal of Bioethics.
Lowering the standard of care in a pandemic is a recipe for inferior care and discrimination. Wealthy white patients will continue to get standard of care medicine, while the poor and racial minorities (especially black and brown people) will get what is openly described as substandard care rationalized by the assertion that substandard care is all that we can deliver to them in a crisis.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 30, 2021 Category: Medical Ethics Authors: Blog Editor Tags: Clinical Ethics COVID-19 pandemic Diversity Featured Posts Health Disparities Health Policy & Insurance Health Regulation & Law Justice Social Justice Vulnerable Populations crisis standards of care racism structural racism Source Type: blogs
Standard Racism: Trying to Use “Crisis Standards of Care” in the COVID-19 Pandemic
By George J. Annas and Sondra S. Crosby
This editorial can be found in the latest issue of American Journal of Bioethics.
Lowering the standard of care in a pandemic is a recipe for inferior care and discrimination. Wealthy white patients will continue to get “standard of care” medicine, while the poor and racial minorities (especially black and brown people) will get what is openly described as substandard care rationalized by the assertion that substandard care is all that we can deliver to them in a crisis.… (Source: blog.bioethics.net)
Source: blog.bioethics.net - July 30, 2021 Category: Medical Ethics Authors: Alyssa Burgart Tags: Clinical Ethics COVID-19 pandemic Diversity Featured Posts Health Disparities Health Policy & Insurance Health Regulation & Law Justice Social Justice Vulnerable Populations crisis standards of care racism structural racism Source Type: blogs
