Mothers who care for technology-dependent children in home care

This article aims to address maternal suffering in the context of pediatric home care. It tells the story of two mothers of children who were born at term and had normal development until they suffered an accident at home and started to need technological equipment and a home care team to survive. It is a qualitative study in which two clinical vignettes are designed, to psychoanalytically investigate the resilience of these women, and how the (re)framing of maternal pain occurs from the sense of care, in the context of home care. The Caregiver Overload Scale and the exhibition of the documentary “ Um dia especial ” were used to complement the analysis. The work has as a theoretical reference the studies of Collective Health and Psychoanalysis in which the concepts of trauma, care and resilience stand out. The mothers' narrative links the individual experiences and the social context of their occurrence. The results attested the importance of home care and the absence of psychological / psychoanalytic care, essential to help the mother to find a more positive interpretation of her situation. As the research was developed with only two participants, the results cannot be generalized.
Source: Physis: Revista de Saude Coletiva - Category: International Medicine & Public Health Source Type: research