The Government Shutdown, Rare Diseases And A Gala Dinner

The US government may be shut down, but disease does not distinguish between Republicans and Democrats (so we are told). So what better way to honor the politicians who stand by patients with rare diseases - no matter what happens in this great, wide world - than to hold a sw.y dinner and bestow awards? This is what the Rare Disease Legislative Alliance plans on October 10. The advocacy group is hosting the RareVoice Awards Gala, which is supposed to provide an opportunity to strengthen relationships with members of Congress and congressional and government agency staff. “This year's celebration will be a well-deserved ‘thank you’ party for congressional staff who have been working late into the night and through the weekends these past weeks to continue to support our efforts and serve constituents despite the looming crisis,” according to the e-mail invitation (and here is the web site info). So who is being honored at the Arena Stage, a theater in Washington, DC, next week? The honorees will be David McKinley and Michael Burgess, two of the House Republicans who… drumroll, please… helped create that same ‘looming crisis’ by voting to shut down the government unless Obamacare funding was yanked. McKinley, by the way, is from West Virginia and Burgess is from Texas. There is an irony here, yes? The e-mail invite, a copy of which Pharmalot has obtained, notes that “disease does not stop progressing to wait for treatment.” These fellows, in case you were no...
Source: Pharmalot - Category: Pharma Commentators Authors: Source Type: blogs