One diagnosis can lead to a lot of doctors

I know I have been lax in writing, and I want to apologize for that. It was a quiet summer for us, and we have been spending a lot of time with the twins. They are now 3-years-old, it is hard to believe it; where does the time go? Bob had his six-month checkup for his CLL two weeks ago. This most recent checkup has thrown me back into the hectic and frustrating chore of scheduling more doctor appointments. The doctors don’t warn you about that chore or “side effect” before surgery. We are now dealing with another unusual health issue. Bob’s tongue has always had a white coating on it. Originally, we were told it was because of the chronic graft vs. host disease from Bob’s surgery. Then the doctor told us that it was a condition called lichen planus and that we should have an ENT (ear, nose and throat) doctor follow up on it because it can develop into cancer! So, we went to the ENT and that doc told us that Bob’s condition was more than he could handle. But the good news was that our ENT told us if we did see the oral pathologist he would be happy to follow up on his directions, which was good for us because the oral pathologist is at a medical center an hour and a half away. I guess we have been lucky to find doctors that are willing to learn and take direction from other more experienced doctors. So Bob’s appointment is Tuesday. He doesn’t want me to go with him, but I know from experience that I won’t get the whole stor...
Source: Life with CLL - Category: Cancer Authors: Tags: cancer Source Type: blogs