Using a Facebook Forum to Cope With Narcolepsy After Pandemrix Vaccination: Infodemiology Study

Conclusions: The group studied is a good example of social media use for self-help through a difficult situation among people affected by illness and disease. This shows that social media do not by themselves induce trench warfare but, given a good group composition, can provide a necessary forum for managing an emergency situation where health care and government have failed or are mistrusted, and patients have to organize themselves so as to cope.
Source: Journal of Medical Internet Research - Category: General Medicine Authors: Source Type: research