Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review

Conclusions: With caregiver and surgeon input, we identified 7 information priority areas related to HD. A review of the literature on the priorities found little evidence to support the development of high-quality guidelines. More research is necessary to meet the information needs related to HD as identified by stakeholders.

Source: Journal of Medical Internet Research - December 21, 2018 Category: General Medicine Authors: Kristy DM Wittmeier Kendall Hobbs-Murison Cindy Holland Elizabeth Crawford Hal Loewen Melanie Morris Suyin Lum Min Ahmed Abou-Setta Richard Keijzer Source Type: research