Care Maps and Care plans for Children with Medical Complexity

This study used qualitative methods to explore the experience and usefulness of care maps. Parents of CMC who already had a care plan, created care maps (n=15). Subsequent interviews with parents (n=15) and HCPs (n=30) of CMC regarding both care maps and care plans were conducted and analyzed using thematic analysis.ResultsData analysis exploring the relationship and utility of care plans and care maps revealed six primary themes related to using care plans and care maps that were grouped into two primary categories: 1) Utility of care plans and maps; and 2) Intersection of care plans and care maps.DiscussionCare plans and care maps were identified as valuable complementary documents. Their integration offers context about family experience and respects the parents ’ experiential wisdom in a standard patient care document, thus promoting improved understanding and integration of the family experience into care decision making.

Source: Child: Care, Health and Development - November 21, 2018 Category: Child Development Authors: Sherri Adams, David Nicholas, Sanjay Mahant, Natalie Weiser, Ronik Kanani, Katherine Boydell, Eyal Cohen Tags: RESEARCH ARTICLE Source Type: research