Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers

ConclusionsIndividuals with SCD and their caregivers want access to guidelines through multiple channels, including technology. Guidelines written for health care providers can be adapted to be patient-centered using Community-engaged research involving providers and patients. These patient-centered guidelines provide a framework for patients to discuss their medical care with their health care providers.
Source: BMC Hematology - Category: Hematology Source Type: research