“I just need to know they are going to do what they say they’re going to do with my mom.” Understanding hospice expectations from the patient, caregiver and admission nurse perspective

Hospice care is associated with less distress, fewer hospitalizations, and improved caregiver outcomes [1 –3]. The decision to enroll in hospice, however, is influenced by many factors: understanding of hospice care, emotions and fear, cultural and religious beliefs, and acceptance of terminal diagnosis [4,5]. Although 40% of all decedents in the U.S. are under the care of hospice [6,7], an estimated 10-15% of individuals who enroll with hospice subsequently disenroll prior to death [8] often due to not understanding hospice [9].

Source: Patient Education and Counseling - August 6, 2018 Category: International Medicine & Public Health Authors: Carey Candrian, Alexandra Tsantes, Dan D. Matlock, Channing Tate, Jean S. Kutner Source Type: research