Stigma in adults with sickle cell disease and family members: Scale development and pilot study in the USA and Nigeria

ConclusionTools to assess stigma in adults with sickle cell disease are useful in individuals and family/social supports across cultural populations. The Conceptual model highlights the complexity of systems that can affect stigma. Implementation of the tool can identify issues such as isolation, fear and burden. Further development and analysis is needed to influence education, treatment, and policy.
Source: International Journal of Africa Nursing Sciences - Category: African Health Source Type: research