Adolescents ’ experiences of living with sickle cell disease: An integrative narrative review of the literature

Sickle Cell Disease is the commonest monogenic haemoglobinopathy worldwide. Living with a long-term condition such as sickle cell disease during adolescence constitutes a significant challenge for the key stakeholders due to the combined effects of chronic illness and adolescent development. For adolescents with sickle cell disease to be cared for and supported appropriately and effectively, it is crucial that health professionals have a comprehensive knowledge and understanding of how adolescents experience living with the condition.
Source: International Journal of Nursing Studies - Category: Nursing Authors: Source Type: research