Understanding frames: A qualitative study of young people's experiences of using standing frames as part of postural management for cerebral palsy

ConclusionsYoung people report benefits related to choice, pain relief, and participation but can also cause pain, discomfort, and reduced independence and participation. Healthcare professionals should have open, informative conversations about potential benefits and challenges of standing frames on all aspects of the young people's lives, including participation and activity.Key messages Young people value their standing frame and perceive benefits such as pain relief and participation. However, standing frames can also cause pain, discomfort, and reduce independence and participation. Most young people value having a choice about the type of standing frame they use and the environment they use it in. An exploration of each young person's personal goals and experiences as well as therapeutic outcomes is necessary when prescribing standing frames. There is a need for high quality research to demonstrate the benefits and the disadvantages of standing frames so that young people, their families, and professionals can make informed decisions about standing frame use.
Source: Child: Care, Health and Development - Category: Child Development Authors: Tags: ORIGINAL ARTICLE Source Type: research