A multi ‐national qualitative research study exploring the patient experience of Raynaud's phenomenon in systemic sclerosis

ConclusionWe have explored the patient experience of SSc‐RP in a diverse and representative SSc cohort and identified a complex interplay of experiences that result in significant impact. Work to develop a novel PRO instrument for assessing the severity and impact of SSc‐RP, comprising domains/items grounded in the patient experiences of SSc‐RP identified in this study is underway.This article is protected by copyright. All rights reserved.

Source: Arthritis Care and Research - November 21, 2017 Category: Rheumatology Authors: John D Pauling, Robyn T Domsic, Lesley A Saketkoo, Celia Almeida, Jane Withey, Hilary Jay, Tracy M Frech, Francesca Ingegnoli, Emma Dures, Joanna Robson, Neil J McHugh, Ariane L Herrick, Marco Matucci ‐Cerinic, Dinesh Khanna, Sarah Hewlett Tags: Original Article Source Type: research