Chapter 15 The impact of Huntington disease on young people

Publication date: 2017 Source:Handbook of Clinical Neurology, Volume 144 Author(s): Matthew Ellison This chapter covers the challenges young people impacted by Huntington's disease (HD) experience on a daily basis. Research suggests young people in HD families are twice as likely to struggle with issues such as self-harm, depression, anxiety etc. Yet support for young people in HD families is generally lacking. Young people in HD families have to face their own genetic risk for HD, caregiving responsibilities, social isolation, financial woes, educational impact on top of witnessing their family member progressing with HD and gradually losing one ability after another until they are unable to do anything. There are plenty of challenges when you're a young person impacted by HD. This chapter covers most.
Source: Handbook of Clinical Neurology - Category: Neurology Source Type: research